Name:

Miss Lucie

Email:

Lucimck@yahoo.com

Date:

13 Sep 2001

Time:

15:49:13

Comments

Dear Betsey, I sorry that I haven't told you, we got Conner's picture. It is hanging on the board in the front of the classroom. The children were thrilled that they may be on the sight. Then after reading your note to the class we were shocked by the news. I actually thought my own world was falling apart. All I wanted was the people that I loved near me. Both my children live away from here and I felt so alone while I tried to keep the little children from hearing too much from the older ones. Parents came and picked lots up early. I didn't blame them at all. By the end of the day, I only had 6 left out of 24.Then, all I did yesterday was hug, pet and rock some of my students. They wanted to know if a plane will crash here. My poor little children. I know everyday is a leap of faith. However, it is so hard to explain to little 8 and 9 year olds "Why" when I don't even know. Enough...how's our young Prince doing today? Are the pooper diapers getting back to normal? I hope so. I hate so to hear that he has been so uncomfortable. Betsey, are you getting back into the regular routine? I can't wait to hear all about your trip. Use the number to call and talk if you need to. We will keep praying. Give Conner lots of Bunny Nibbles. Be sure he knows they are from me. Remember you and John are loved very much. Miss Luice

Name:

Mommy

Email:

Date:

14 Sep 2001

Time:

02:00:30

Comments

Thanks Laura for updating the page and for getting the new pictures up. Check out the pictures. Miss Lucie, let us know who drew that cute picture of Conner. I didn't mean to discriminate but I chose the picture that showed Conner so large and was so easy to see. They were all great! Thanks and I tried to get a picture of the class. I didn't get it through on that round but I will. If Laura gets it, it gets up fast.

Conner had a great day today. He had the best day he's had in a long time. Good numbers, everything was good. Sweet baby! Talk soon.

Name:

Grammy

Email:

Date:

14 Sep 2001

Time:

07:52:47

Comments

It's just so sad watching so many people going through the loss of loved ones and knowing so well what it feels like.We really must appreciate the ones we have here and love them each and every day. Conner-boy, I love you. I'm going to look at the pictures now and I'll call you later and sing with you.

Name:

Mommy

Email:

Date:

15 Sep 2001

Time:

00:32:00

Comments

Well, Conner has had another good day. Good numbers, good nap. He had lots of fun with Miss Belinda. He sang and talked. Tonight he woke up around 10 pm so I laid down with him and sang. I laid beside him, very close and tucked my hand around his body under his narrow, bony back. I have to keep my elbow up and not relax my arm or it'd be too heavy on his chest and ribs. I sang and Conner sang. Oh, he is such a good singer! The child is adorably cute and this is my place to brag so I go on. His curly hair is angelic. His eyes are olive. Who has olive eyes? I have never seen olive colored eyes before. After we sang he said, "aahhhh...ha.ha.ha" It's so cute when he does that. Okay, enough talking about my sweet love. Hope all yours are doing well. Good night.

Name:

Email:

Date:

15 Sep 2001

Time:

09:46:56

Comments

Betsey, You can never brag to much on that precious boy! That's what we want to read about!!! So brag on! Obviously we didn't make it home this weekend, but maybe soon and I will come by to see Conner. Maybe I can bring Price. Love to you... Shelley

Name:

JODI RODGERS

Email:

Date:

15 Sep 2001

Time:

22:15:55

Comments

HELLO JOHN & BETSY! JOHN I FINALLY GOT A CHANCE TO LOOK AT YOU WEB SITE. I HOPE THIS HAS BEEN A GOOD DAY FOR EVERY ONE. I WILL KEEP YOU ALL IN MY PRAYERS. JUST LET ME KNOW IF THEIR IS ANYTHING I CAN DO.

Name:

Mommy

Email:

Date:

16 Sep 2001

Time:

05:00:24

Comments

Its very early in the morning and I'm up listening to old high school rock n roll songs off of napster. The nurse just left and we talked about everything under the sun before she left so I'm up. Conner is up, too! We're all up. He had another good day. We got outside yesterday with Grammy! Glad you made it mom even for a day. We'll take you when we can get you. Conner enjoyed his day. He got to see Aunt Julie and cousin Jim before he passed out in the den. He was too tired. Hope we have another good day. I think we will! Baby will sleep late since he's up now. Talk later...

Name:

Belinda

Email:

belinda 2@frontiernet.net

Date:

16 Sep 2001

Time:

08:35:33

Comments

Betsey, I am so glad that you all were able to get outside yesterday. It was so nice with that 'Fall feeling' in the air. It is great to have those good days. Conner looked so cute the other day when we dressed him up. I think he liked the feathers best. He is so precious! I hope you and Conner have another good day. It was nice to see your Mom again she is a sweet person; I know you must get alot of strength from her. Take Conner outside and enjoy this beautiful weather today! Love, Belinda

Name:

Grammy

Email:

Date:

16 Sep 2001

Time:

09:41:49

Comments

Hey Conner, we won't tell Drew that Miss Belinda dressed you up like a little girl, but it sure was fun, huh? Those "fedders" felt good on your face (even Drew would have like that!) Too bad Abby wasn't there to join in and play dress up. Outside was fun, too. Grammy got some pictures that I'll develop today. I wish there were more time and you were closer so I could see you more often. You are surrounded by good people, though, and I'm very grateful for that. The Riggs boys do a good job of giving you all the male bonding you need. Mommy just devotes herself to you and we all love you from all corners of the earth. See you soon, Love, Grammy

Name:

Miss Lucie

Email:

Lucimck@yahoo.com

Date:

17 Sep 2001

Time:

11:44:10

Comments

Dear Betsey, I'm so glad your Mother got to come for a visit. Sounds like Conner and all of you had a great time together. Betsey, we are still praying for everyone. The children in the classroom were thrilled that Timmy's picture was on the sight. Thank you for taking the time to look at them. They ask about Conner every morning as they arrive. I'm so touched by some of the sweet things they say. Today it was around 48 this AM and most had to have a jacket as they waited for the bus. One wanted to know if Conner was going for a ride in his wagon today and would he have to have a cap on if it got windy--because they are suppose to wear one to cover their ears. Such joy your son has brought to so many. May I say that I am very proud to be friends with your family and kissin' buddies with your son. Betsey, get rest when you can. Give the young Prince bunches of kisses from me.Tell John Hi! I'll write more later. Much Love, Miss Lucie

Name:

gina fimbel

Email:

Date:

17 Sep 2001

Time:

21:01:26

Comments

betsey & conner, I hope you two are hanging in there. my thoughts are with you. i am feeling so sad these days. of course we all are with the events of this week. i only hope my little angel was helping those poor people on tuesday. have a good night conner and betsey. you both are loved!

Name:

Email:

Date:

17 Sep 2001

Time:

21:51:36

Comments

Name:

Mommy

Email:

Date:

17 Sep 2001

Time:

21:52:25

Comments

Bye Robert. We love you. Conner has an angel now. His Uncle Robert loved him so much.

Name:

Grammy

Email:

Date:

18 Sep 2001

Time:

08:15:43

Comments

This is a sad time for the Carlisle family. Losing Robert here on earth is so devastating for those who loved him and they are many. He is greeted on the other side by many who love him, also. It pained him so much to see Conner unable to run and play and watch him struggle for air. Robert was one of those people who wanted everything and everyone to be happy and carefree all the time and tried to keep his life that way as much as he could.Maybe he allowed himself to be in denial about the saddness and unhappiness that is part of life. But he always tried to smile in the face of pain. He loved his family perhaps more than himself. I'll miss my little brother. He'll be a worthy angel for my baby Conner.

Name:

Auntie Reea

Email:

Ree-a@msn.com

Date:

18 Sep 2001

Time:

09:04:40

Comments

Betsey,

I am so sorry to hear about Uncle Robert. My heart is with you and your family and I will be thinking of you all. I know that in spite of everything that Conner, with his loving, sweet way, will be able to put a smile on his Mommy's face today- even through the sadness. I love you guys and wish I could be with you. Give Conner kisses for me!!!

Name:

Mommy

Email:

Date:

18 Sep 2001

Time:

14:54:07

Comments

Well, Conner is having a good day. He's been a little clogged but I think that is from when we took him outside. Everytime we take him out he gets a lot of junk in his head. It wouldn't surprise me if he had bad allergies considering so many in his family have them pretty bad.

I didn't write it on here the other week but our divorce is final. I can't get too personal in order to protect John's privacy but I have felt divorced for a while so the change is really just on paper. I can't speak for John and I have no idea how he's dealing with this.

As far as Robert, I feel numb to everything. I am either a pro at dealing with loss or this is going to come back and hit me when I least expect it. I am trying to work out and stay healthy in order to deal with all this loss and change but sometimes I have to ESCAPE!!!! I really can just forget everything sometimes and it feels wonderful to forget. And I don't mind returning because I have a beautiful little face to kiss. Anyway, I wish John could have something to look forward to or little moments to forget.

However, I'm headed into the fire going to Robert's funeral. I guess I'll go up tomorrow. I know my anxiety level will rise dramatically as I approach the area.

Okay, time to go sit with Conner. He's mellow today after talking all day yesterday. He answered every question I asked yesterday and today he doesn't want to talk. He just wants a continuous stream of videos. I get in his face and say, "TALK TO ME!!!!Please, talk to me! Pay me attention. Conner.Conner.Conner." Oh, how that bugs him.

Name:

Belinda

Email:

belinda2@frontiernet.net

Date:

18 Sep 2001

Time:

18:07:48

Comments

So sorry to hear about your uncle. So many tragic things are happening in the world that it really makes you see that you should live each day like it was your last day. But of course you should do that anyway not just when tragedy strikes. I get so caught up in working and keeping up with day to day tasks that I feel like I am putting things off for "one day". Seeing Conner always brings me down to earth, reality and what is really important. Thanks for sharing him with me. Belinda

Name:

Mommy

Email:

Date:

19 Sep 2001

Time:

06:27:36

Comments

I can't sleep. I guess my anxiety level is beginning to rise-which means a trip to the gym this morning. Conner is sleeping beautifully though. This is the first night he has slept all the way through without a two or three hour wake up thing early in the morning. Maybe he's finally getting back to a normal kind of schedule. I won't count on it.

I got him some new toys yesterday-Mr. Potato Head, a VeggieTales puzzle, some foam letters and numbers, and a new VeggieTales video-a silly song roundup. John and I enjoyed it. I could hear John in the other room laughing at it with Conner. The two tvs are connected in the front room and the den and I could see that John was rewinding parts of it and watching them over. Those vegetables really are kind of silly.

Hey Ms. McKinney's class! We enjoyed the VeggieTales pictures among all the other great ones you all did for Conner. Also, Timothy-I'll get your name under the picture I posted on the site. Thanks to all of you. You are so sweet for thinking of us. I think of you and your kindness all the time.

Name:

Grammy

Email:

sangar@mindspring.com

Date:

19 Sep 2001

Time:

07:29:50

Comments

Hi Conner, Betsey, John and all you readers, I saw the pictures that the children in Miss Lucie's class did for Conner and I was so impressed. What wonderful, caring and very talented little people you have the pleasure of teaching, Miss Lucie. They really put their hearts and minds into those pictures. Conner must feel like a real celebrity with so many fans and friends. We are doing what we must here to show our affection for Robert. We will say goodbye to his body, but we will never forget - there are many good memories to hold in our hearts and that's what we will dwell on in the next couple of days so that we can get through this very painful time. As usual, we will do it together, as a family.

Name:

Mommy

Email:

Date:

19 Sep 2001

Time:

22:59:07

Comments

I'm at my mommy's. Tonight was hard. I didn't want to see Robert but I did and I touched his hair. It was soft. I am glad I got to see my grandparents and everyone else but I hid after a while because it was easier. I didn't hide in a closet-I just stepped out. Well, I will miss him. I do now.

I talked to Conner when I got home. He acknowledged mommy and uttered a couple of his famous sounds. This morning I kissed him and I could smell his new baby smell. I think a mommy knows what I mean. I know his smell, you know...on his brow...in his sweat. I just breathed it in and tried to make some sort of connection in my brain so I'll always remember what it smells like. I smelled it the first moment I held him and the months after and I smelled it today. Okay, enough about odor-I'm going to sleep.

Name:

Gwendolyn Butler

Email:

gbutler@bulloch.k12.ga.us

Date:

20 Sep 2001

Time:

13:31:40

Comments

Conner has been on my mine for some time now. I can still hear the conversations Mrs. Connie and I would have across from each other. Email me back and let me know how thing are going for Conner, you, and John. I saw John going into work one morning and he didn't look happy/well, just tired/wore-out, my heart goes out to all of you. I have four children myself, and what a mother goes through noone will ever know or can even imagine. Mrs. Connie has been a part of my life for that past two and a half years, as well as your family. We have shared so much and I want to continue to keep in touch.

Name:

m

Email:

Date:

20 Sep 2001

Time:

17:39:29

Comments

Name:

Mary Davis

Email:

GUMBEA38@A.O.L.COM

Date:

20 Sep 2001

Time:

17:50:22

Comments

DEAR BETSY,

I JUST READ CONNER'S STORY, AND SAW HIS PICTURES FOR THE FIRST TIME. HE IS ONE OF GOD'S SPECIAL GIFTS. I WAS SO HAPPY TO SEE YOU, YOUR MOM, JEFF AND BILLY,EVEN THOUGH IS WAS A SAD OCCASION, THE JOY OF SEEING PEOPLE I HOLD DEAR WAS A BLESSING.

REMEMBER

D

Name:

Meredith

Email:

Date:

21 Sep 2001

Time:

00:00:01

Comments

Hey there to the Prince of Charming! I hope you had a great day!!!! Betsey- I don't know how Conner like clowns?? But I realized today that if he likes them then I could put on my Candy the Clown clothes and put my make-up on and he could have a clown come visit at the house. I'm free up until 3pm this coming week so if you think it is a good idea let me know. I would love to if not I am visiting cause I have a few things for him anyway. You and your family have been on my heart these past few days. Just remember if you EVER need anything I'd love to do it. (running errands, bringing a meal, helping out when ya'll don't have a nurse, I did learn how to wash clothes this summer so I'd love to help out if you need anything!) Let me know about the clown thing cause I could do balloon animals.

Name:

Mommy

Email:

Date:

21 Sep 2001

Time:

21:59:16

Comments

Meredith-Conner would love the clown!!!! He'd probably cry but that would be pretty funny and I'd like to get it on video. Please come-just call me. I should be home after 2 all week. Conner is doing fine. I gave him a bath after his nap. He was dirty after my being gone for two days. He gets sponge baths but nothing's better that a good tub bath. He held his sponge star throughout his bath. Conner is wearing his yellow veggietales t-shirt and watching Toy Story holding his woody doll. He just visited with granddaddy. Daniel will probably come by later and he and John will go do something and I may join them later when the nurse comes. Conner should be asleep by then. But now he is awake, so I must go!

Mary and Gwendolyn, I am glad you sent a message and saw the page. We'll keep in touch. Thanks for caring. Conner calls!

Name:

Betsey

Email:

Date:

21 Sep 2001

Time:

22:03:41

Comments

Meredith-I said I'm free after 2 but if I know which day you're coming I'll be here earlier.

Name:

Grammy

Email:

sangar@mindspring.com

Date:

22 Sep 2001

Time:

07:38:47

Comments

I miss my little buddy! Wish I could be there. Things are still a little sad here. It was good to see our old friends eventhough under very unpleasant circumstances. I wish I had had time to talk to everyone. Many people are donating to SMA in Robert's name and I'm sure that would make him very happy. He was very distraught about Conner's situation and had a hard time even talking about it. Next week, I must find more "gainful" employment, so that life can go on and bills be paid. I'll call you later, Conner, and we'll have a little chat about this clown who's coming to see you. Just remember "clowns are funny, not scary". Love to Betsey and all the Riggs folks.

Name:

IRENE

Email:

irnlest@enia.net

Date:

23 Sep 2001

Time:

00:35:19

Comments

I LOVE YOU CONNER.

Name:

Grammy

Email:

sangar@mindspring.com

Date:

23 Sep 2001

Time:

14:31:25

Comments

Hi Conner Love, I haven't talked to you in a couple of days and will call later. I enjoyed the No. Ga. mountains yesterday and today and want to LIVE there. I wish I could take you to the top of a mountain and let you see the whole world from way up there. There are so many things I wish for you but then I know that I'm really wishing them for me, too and with you we just have to enjoy what we can. I'll never be the famous artist or actress I once wanted to be and you'll never be on that mountain top with me. We'll have to find joy in our moments together and our conversations on the phone. I love you, darling boy.

Name:

me meredith

Email:

Date:

23 Sep 2001

Time:

22:00:41

Comments

HEY HEY! Betsey- I was planning on trying to do the whole clown thingy on Tuesday... if that is a good day for you and Conner. (and of course we can always play it by ear) Time wise it would be better for me either in the morning (10 ish ) or in the afternoon (1 ish) however I can arrange otherwise easily. Plus I want to work with Conner's schedule so that he can be HAPPY!! I'm so excited!!! I'll call you tommorow afternoon to make sure of the best time for ya'll but if you check this before and post me a message I'll check it in the morning. I hope you are doing better and I am praying for peace in ya'lls hearts. Ya'll are truely amazing!

me meredith

Name:

Mommy

Email:

Date:

23 Sep 2001

Time:

23:43:34

Comments

Irene-you know Conner loves you too. Meredith-1 on Tuesday sounds good to me.

Happy Birthday Mom. I am glad you had a nice trip. Conner had a calm day. We just slept and watched movies all day. I hope he'll go on to sleep. I put him to bed around 9 and he is still fighting.

Miss Lucie, hope things are going okay. Got your message and I'll write soon. Thanks and we are thinking of the family.

Name:

Belinda

Email:

belinda2@frontiernet.net

Date:

24 Sep 2001

Time:

05:31:44

Comments

Hi Betsey, John, & Conner, I had a great time playing on the laptop with Conner Sat. Thanks!!!!!!!!Belinda

Name:

Grammy

Email:

Date:

24 Sep 2001

Time:

08:10:55

Comments

As I read over Conner's many messages from all those who love him, I realize how fortunate he (and we) are for all these wonderful people we might not have met if it weren't for Conner...Irene, you do such a great job as do you Belinda, and Peanut and I still remember Kathy and our great talks,and all the nurses. Miss Lucie and her children who are so bright and loving. Meredith, Tara, all Betsey's friends who have continued to love her and added Conner to their lives. Of course, the family members who keep him in their hearts and prayers. We are really lucky! Thanks everyone.

Name:

Caroline & Kristiann

Email:

Date:

24 Sep 2001

Time:

14:57:12

Comments

Dear Mrs.Besty, we saw your picture with Conner.You are very pretty. Thankyou for puting Timothys picture on the site. We took picturs of us with Conner's picture. We like Veggie Tales too, Conner.Did you have a nice ride in your wagon?We are planning to draw more picture's for you.Thankyou for your picture's. We have a picture of you so everyone can see it.Ms.Mckinney put your picture that you and your mom made.It is very pretty.Conner is very cute.Conners hair is curly and brown.My [Kristiann} hair is brown, Caronline'sis curly.We went to Young harris Collage on a feild trip today .We are studing space.IT RAINED!!!!We didn't get to play at the park.So we came back to school.And ate lunch in the classroom.Ms McKinney said we were loud. And we were!We are drawing pictures for empty stocking.We will draw Conner some angels.Ms McKinney reads story's to us.Conner would like the story's also. Time for class.We hope you and Conner have a SMILING DAY. Kristiann & Caroline.

Name:

Betsey

Email:

Date:

24 Sep 2001

Time:

15:58:50

Comments

How precious! Thank you for your message Kristiann and Caroline. I will read it to Conner when I bring him up front near the computer. We appreciate your thinking of us. I'm so sorry it rained on your field trip. That's my luck! We are looking forward to seeing the angel pictures. I hope to hear from you soon. Tell your classmates and Ms. McKinney that Conner and I said, "hello!"

Name:

Mommy

Email:

Date:

24 Sep 2001

Time:

22:26:22

Comments

Conner gets to see the clown tomorrow. How cute. He'll sit there with his mouth open. That's what he always does when he sees something really neat. He smiles later when we talk about it. Conner got to visit with Tara today. He did fine today with the exception of a semi-rough morning. He's up now but hopefully he'll get to sleep soon. Conner's nap was short today. He's stable though.

Name:

Mommy

Email:

Date:

25 Sep 2001

Time:

07:20:46

Comments

Well, Conner didn't go to bed til 3. I went to bed at 1. The nurse told me this morning and I can't go back to sleep. I want to know what his deal is. I even gave him medicine before I put him down. She said he was crying. UHHH. That hurts my heart. What is wrong with him? She said she had to suction him through the night. I hope he's not getting the ear thing back. Who knows? I guess I'll find out as the day goes by or tomorrow.

Name:

Auntie Lisa

Email:

Date:

25 Sep 2001

Time:

08:45:53

Comments

Conner, It was so good to visit with you this weekend! Every time I see you, you are more & more handsome! I watched the video last night that I made of you thanks for being my star & the i love you's you kept doing with your fingers! You truly are an angel!

Name:

Mandy

Email:

addeal@bulloch.k12.ga.us

Date:

25 Sep 2001

Time:

12:18:31

Comments

Betsey, Just took awhile to read the journal entries from lately. I wanted to tell you how PRECIOUS Conner was the other night when I came by to get Colby's medicine from Sonny. He was just ADORABLE. He had just had his bath and looked so peaceful laying there. You could tell the nurse really cared for him. Hope you and Bessie had a good time. Just remember that even though I don't write often, I DO love you, John, and Conner VERY much. You are always in my prayers. Love, Mandy

Name:

Mommy

Email:

Date:

26 Sep 2001

Time:

06:20:52

Comments

I'm up again. This time Conner stayed up til 4. I just put him back to sleep. His food machine went off a little while ago and when I opened my connecting bathroom door, his door slammed shut and woke him up. I don't understand how we get Conner up at the same time everyday but he stays up later and later every night. I am going to wear him out today and see what happens. We are going to have a full day. The clown (Meredith) is coming today instead of yesterday. He may have been watching the door all night thinking the clown was coming.

I left last night to have dinner in Savannah around 8:00 and he seemed fine. In fact, Conner seemed fine all day yesterday. His ear is draining a little but it is clear. He didn't act like he was in pain and his pulse rate has been fine. I'll keep watching. I always suspect that left ear of being the cause of all problems. His teeth have got to be causing him problems. Conner's over 2 and only has 2 teeth. That's unnatural and its got to hurt.

Anyway, we're excited about the clown. I've been showing him books with clowns in them. We're going to wear Conner out so he sleeps great tonight.

Mandy, the nurses are very good with Conner. When I called last night on my way home Tracey, the nurse, asked where Conner's night-time CD was-she said, "Conner is having a fit!!! He needs that CD!" They spoil him as bad as I do. I felt so bad for Conner yesterday. We were playing a game of charades. He wanted something or something done. He was trying so hard to tell me something and form the words. I was hopping around his room asking yes or no questions. "You want the fan on? You want your mirror? The ball of light on? Your light off?" I had no idea and he wasn't satisfied until his daddy came in and starting singing to him. So, maybe that was it. Oh, how he loves daddy! Okay, bye.

Name:

Grammy

Email:

Date:

26 Sep 2001

Time:

07:44:29

Comments

Of course he loves his Daddy...he looks just like him (except for the curly hair) From the moment he was born, he has truly fit his name little John Conner Riggs, Jr. and therein lies his handsomeness. I hope today will be a good day for you and Conner. Frankie is coming down here today, so I'll definitely get a few laughs. We can always find something to laugh about (usually it's ourselves) Seems the older we get, the funnier we are, or crazier or it just seems that way and we're really just getting senile. Oh well, as I tell Lauren "laughing feels better than crying". Love to my little fiesty guy.

Name:

Mommy

Email:

Date:

26 Sep 2001

Time:

21:23:00

Comments

Conner has not stopped talking about the clown. He loved it. Thanks Meredith so much. He is asleep and its only 9:15! I hope its for the night. We wore him out. I'm worn out, too, so I'm going to get ready for bed in a little bit and hopefully fall asleep soon.

Name:

Sparkle the Clown

Email:

Date:

26 Sep 2001

Time:

23:06:34

Comments

Conner- I had so much fun being SiLlY with you today!! I absolutely loved my beautiful portrait of myself. (Although you were so sweet to make me so pretty.) We both know that my hair did not look near as good in person as it did in your picture. I promise I did wake-up early and try to curl and fix it for my special friends.(Do you know how to work with my frizzies..??) Conner thanks so much for introducing me to your cool friends, Maggie and Emmie. Emmie slept right through our silly songs and coloring. I really enjoyed our special time and you tell Mommy and Daddy when you are ready for me to come back. I LOVE YOU DEARLY! XOXOXO Sparkle

Name:

Grammy

Email:

Date:

28 Sep 2001

Time:

07:27:14

Comments

I miss you and love you, my sweet little boy. I hope mommy will bring you up here soon for a visit. We'll get Drew and Lauren and maybe even Abby to come and see you. Maybe we can have an early Halloween Party...you know how those kids love to dress up, especially the girls. Drew just wants to play with his cars and go outside. Hope you and mommy have a good day. I guess mommy is going to need some sleep today since she had to take care of you alone last night,so be a good boy for Irene.

Name:

Mommy

Email:

Date:

29 Sep 2001

Time:

01:06:32

Comments

Conner had a treat today. He got see the clown and play with Miss Belinda. Yesterday he got to feed the ducks. He quacked! That was cute. He's doing okay but his sleeping schedule is all off. I don't really care as long as he gets a chunk of sleep. Okay, time for bed.

Name:

Mommy

Email:

Date:

30 Sep 2001

Time:

12:42:52

Comments

Conner's latest obsession is Elmopalooza. He focuses on a thing for about a week and he has to have it over and over. He made me play it three times in a row last night. I know every song by heart. I'm sick of it. I wonder how many days we have left until he gets tired of it. We played with the computer yesterday. Belinda-we played the ant game for a long time. Thanks for leaving that for him.

The nurse and I were just talking about how long Conner is getting. If you haven't seen him, he is about to my waist or a little higher if he could stand. But I'm kinda short, so...but he is so long! If he could stand next to his cousin Drew, he'd dwarf him. But Drew's kinda short(like his dad), so...Drew was so cute with Conner when we took him up there. He's usually afraid of Conner because of the machines. But the last time he was taking his cars and trucks over to Conner for him to play with. So precious. All Conner's cousins love him so much. They realize his ethereal aura when they see through the "earthly" machines. I see it everyday, every minute!

Oh!!Miss Lucie, we are so glad the baby arrived. Congratulations on your new grandbaby. We hope everything goes well and healthy.

Name:

Meredith

Email:

Date:

30 Sep 2001

Time:

20:25:18

Comments

HEY HEY! Betsey I had the best week last week anpage/version4.0/bin/

Name:

Meredith

Email:

Date:

01 Oct 2001

Time:

17:53:55

Comments

Hey there! I am unsure as to what happened to that above message.. hmmm. Just wanted to say how much I enjoyed seeing Conner last week. It was amazing watching him do his preschool lesson with Ms. Belinda. (She was great) And I want you to know I am counting on that weekend to Atlanta. (Grammy have Betsey go ahead and ya'll pick out a weekend.)Hope Conner is doing great. Tell him that Sparkles sends her love. me mere

Name:

Robyn Petty

Email:

steele815195@aol.com

Date:

01 Oct 2001

Time:

22:33:57

Comments

Hi Betsey! I am coming home and I can't wait. We are leaving Friday - driving - with Madison, Steele and the new dog - 20 hours - should be fun. Anyway, we hope to be there by Sunday. I would love to come visit sometime next week. I also would love to bring Maddy and Steele if that is okay. Both have been well for a long time now and I will make sure they are well. I really am so excited about visiting. We haven't been there in quite sometime and we are ready. I can't wait to see Conner. Maybe we could go out to dinner one night. If nothing else, I would love to meet you at the gym and work out with you. Jeff and I usually get a visitors membership if we are there for a week or more. Please tell John and Mr. Sonny hello. Give Conner and yourself a big hug. We look forward to seeing you soon. MUCH LOVE, ROBYN

Name:

Mommy

Email:

Date:

02 Oct 2001

Time:

00:21:32

Comments

Robyn, just call us when you get here. Conner would love to see you and the kids.

Meredith, we had fun with you, uh, I mean Sparkle. We continue to talk about the clown.

I got to give Conner good news today. I told him that his Aunt Shannon and Uncle Billy are having a baby!!!! When I said, "Conner you are going to have a baby cousin!" He squealed. He's been visiting with babies lately and now he gets his very own. He smiled and squealed and Billy got to hear him. I am so very, very, very excited!!!!!! I was so happy to have gotten to tell Abby, too. I hadn't talked to her in a while. I miss her so much. I feel like my nieces and nephews are my own. I love them so much it hurts when we spend too much time apart. I know my family members feel that way about Conner. Okay, I have had Conner to myself for 2 nights in a row. Tonight, I have a nurse so I must take advantage and go to sleep.

Name:

Mommy

Email:

Date:

02 Oct 2001

Time:

22:51:59

Comments

Conner has had a normal day. Lots of Elmopalooza and tarzan yells. He did Tarzan yells throughout the entire movie tonight. So precious. He is my precious love.

I've been trying to do practice tests and be disciplined to take the LSAT this weekend. We'll see. I'm pretty prepared but I have much more practicing to do this week. John's helping out and I hope Conner will hold out and not get sick this week. If he does, I'll just work it in!

Name:

Momma

Email:

Date:

02 Oct 2001

Time:

23:39:16

Comments

If any nurses or doctors (or if you are just interested) are reading this, this site or article may interest you. The research is by Dr. Bach, the doctor Conner saw when we made our trip to N.J.

http://www.doctorbach.com/sma.htm

Name:

Grammy

Email:

Date:

03 Oct 2001

Time:

07:27:19

Comments

Conner, you weren't very vocal with me yesterday, but I sure heard those Tarzan yells when you were watching Tarzan. I wish I could see you and hope that Mommy will be able to bring you up here next week. I haven't had any of my babies around lately and it's very disheartening. Babies are what make life worthwhile. Courtney's little Erica is having a tea party birthday on Saturday and I'd love to take my little girls over there. Wouldn't they be cute all dressed up at a tea party? Unfortunately, that won't be possible. Maybe someday I can have a tea party for them and you can come, too. Boys get to go to tea parties too, and you don't have to wear that pink boa. You can dress like the little gentleman that you are. Good luck on Saturday to your mommy. She's very smart, you know. She'll do just fine and someday she'll be a lawyer like Uncle Billy and Granddaddy Bill (and all those other Carlisle guys).

Name:

Mommy

Email:

Date:

04 Oct 2001

Time:

06:34:02

Comments

Conner is going to be a clown for Halloween, so far. He may get tired of his wig by then. Sparkle, we got a Sparkle the Clown wig for Conner. Needless to say, he looks so funny in it. I asked him if he was Sparkle and he said, no. But I asked if he was a clown and he said, yes. He's Conner the Clown.

He was so excited to have company last night. Miss Belinda and her son, Ryan came to dinner. I kept telling him that a big boy was coming to play with him and he'd smile real big. He had a great time visiting.

I stayed up late practicing. It seems the longer I practice the worse I get. I guess I just get tired. I'm going to work on it all day so I can get out for at least a couple of hours tonight and get a beer and relax and forget about it. I'll play some pool-my therapy.

I'll report more Conner cuteness tomorrow. He is doing so much and understanding more and more everyday. That worries me that he is understanding so much. I'm afraid I'll have to explain his death to him or why he can't move or something. I never expected he'd live this long. That's not pessimistic if you'd lived with his frailty and had seen him dying over and over. The fact that he is still here, breathing, understanding is an absolute miracle. Prayers, huh? Okay, I'm off.

Name:

Miss Lucie

Email:

Lucimck@yahoo.com

Date:

04 Oct 2001

Time:

07:07:18

Comments

Dear Betsey, You are a very brave young lady. Anything with a SAT or PRAXIS in it scares me to death. Good luck Saturday. I know you will do just great!!! Glad Conner is having "Smiling" days and enjoying company. Be looking for another package from the students. Angels have been on their minds lately--so they have drawn all sorts, shapes and sizes for Conner. The leaves are turning beautiful colors and the leaf-lookers are ariving. Wish all of you could come for a visit. Take care--good luck--and remember we are still praying for each one of you and your family. You are loved. Miss Lucie

Name:

Belinda

Email:

belinda2@frontiernet.net

Date:

05 Oct 2001

Time:

08:10:52

Comments

Ryan and I enjoyed supper and visiting with everyone. That was so nice of you to invite us. Ryan enjoyed playing with Conner and recording on his Big Mac Switch. Now you can hear that sweet little country boy voice every time Conner pulls the switch. We love you. Belinda and Ryan

Name:

Mommy

Email:

Date:

05 Oct 2001

Time:

12:47:59

Comments

Miss Lucie, I can't wait to see the new pictures. They always make our day! The kids amaze me with their sweetness. We hope the baby is doing well.

Belinda, Conner pulls the string and good as he can. Its sad that not too long ago he could pull it with his arm and now he can't move his arm at all. That right arm was the last large movement he had. That's not true, his knees-when propped-are still pulling. We have to rig up a string to his knee. He turned white on the therapist today. That doesn't surprise me because he had a loud rattle early this morning. I tried to get it out enough for him to go back to sleep. He stayed awake until a little while ago, though. I hadn't seen him since early this morning and when I walked in his room his face was very white. I'll work on his rattle when he wakes up. He was also bleeding out of his ear. It went from clear drainage to blood. We'll see. Time to call the doctor.

Well I got out a couple of hours last night. No beer of course. Need to keep the brain fresh. I didn't play pool either. I was too uptight and impatient to even wait for a game. My (lawyer)brother has told me to STOP PRACTICING. "If ya ain't got it by now, ya ain't gonna get it!" Of course, I have to keep going through some of the questions so I can know why I've missed them. Anyway, when its over tomorrow, I'll be relieved. One hurdle out of the way, many more to go. One step at time, right? I can do that. I'm stubborn and persevering. Probably why I'm divorced now but why I will survive and be better than ever (one day). Bittersweet success awaits me.

Name:

Mommy

Email:

Date:

06 Oct 2001

Time:

07:32:05

Comments

Well, we have Conner on an antibiotic and ear drops. We'll follow that for a couple of days and see if it helps. He had a fever last night. Daddy's going to take care of him today so I know he'll be fine and happy. He loves his daddy. I hope I'll be getting some new pictures-clown pictures-up soon. Even though he's not feeling well, he is still acting cute and happy. What a sweetie.

Name:

Grammy and Lauren

Email:

Date:

06 Oct 2001

Time:

13:50:55

Comments

Yeah! The test is over and you can relax for a while. Hope Conner isn't feeling too bad. He sounded pretty good on the phone just now. He likes to count his fingers with me. Here's Lauren's message: Hi Conner! I want to see you so bad! How are you and your mommy? I know you like to count so,1,2,3,4,5,6,7,8,9,10!Can you count by yourself?Well,g2g.(Got to Go.)Bye!Lauren

Name:

Mommy

Email:

Date:

07 Oct 2001

Time:

22:38:27

Comments

I guess I did okay on the test. Regardless, it is over and I celebrated last night. I had fun. We went out, played pool, danced, drank beer. It was lots of fun and I was so relieved to get that test behind me. The next steps are getting recommendations, write my personal statement, find money(financial aid or something), and apply. I want to get my application in by January. We'll see. That's a short period of time to get all that done. Anyway, about my sweet baby Conner...he had Meredith/Sparkle come stay with him last night while we went out. Thanks so much Meredith. You are going to make a great nurse. You already do. I know Conner had a fun time with you last night. We have not had nurses all weekend. We had one earlier today but that was it. No one yesterday, last night or tonight. John stayed up with Conner last night so I guess tonight is my night. No problem. Irene will be back tomorrow. I like the routine of the weekday. It makes us feel safe and secure.

Name:

Meredith

Email:

Date:

08 Oct 2001

Time:

21:45:36

Comments

Hey there Betsey, Conner, and John! Conner I had a BLAST on Saturday night! (our first official "date" watching your favorite movie, "Elmopalooza") Betsey- I had a blast and feel so much more confident now.... so call me again. I'm ready!!!! LOVE LOVE me mere

Name:

Mommy

Email:

Date:

09 Oct 2001

Time:

00:19:43

Comments

Conner had a pretty good day. We got him out around 3. It was such a pretty day. We took him out in his wagon, took him for a ride in the van and fed the ducks. Belinda, he was so cute trying say, duck. Maybe he'll say it for you. We'd say, daddy, daddy, daddy-duuuhhh-ck. He did a good job. What a sweetie! And of course he did his tarzan yells all through the movie and sang with Elmopalooza.

Name:

Betsey

Email:

Date:

09 Oct 2001

Time:

00:45:48

Comments

There is an interesting and important article at this address. It is an explanation of a misdiagnosis of SMA type 1 when it was really that the baby was fed honey. It gives an explanation of the dangers of feeding babies honey. I didn't know.

http://www.discover.com/neuroquest/neuroquest.html

Name:

Email:

Date:

09 Oct 2001

Time:

00:48:48

Comments

oops-when you get to that site, go to "search the site" to the left and put in this title,

Vital Signs: The Baby Who Stopped Eating

Name:

Email:

Date:

09 Oct 2001

Time:

00:51:58

Comments

Okay, that didn't work. Put in-spinal muscular atrophy- and that will bring up the article. Now nobody is going to read it because its too much trouble but it really is interesting especially if you're the parent of a baby!

Name:

Belinda

Email:

belinda2@frontiernet.net

Date:

09 Oct 2001

Time:

05:59:15

Comments

I'm glad Conner was able to get out and see the ducks. I wish I could have heard him trying to say duck. He tries so hard! Have a great trip to your Mom's and tell her I said 'hello'. Give Conner a big hug for me. Love, Belinda

Name:

Grammy

Email:

Date:

09 Oct 2001

Time:

08:17:30

Comments

I'm getting all revved up for Conner's visit. I'm having second thoughts about what's on the menu after reading about his visit to see the ducks. Hope he won't mind if we eat...."duck". Well, we just won't tell him. I'm trying to arrange for some of the family to come over and see our big boy. If I have things my way, we'll have all the cousins together and aunts and uncles and maybe even the great grandparents. Betsey if any of your friends want to come "all the way out here", we'd love to have them, any time. My house is a mess, but I can always "kick" things under beds or whatever. There'll be plenty of food and fun. Now it's time to go looking for that second job that will pay next month's bills. Love you, Mom

Name:

cenda borwn

Email:

cenda-brown@westcare.com

Date:

09 Oct 2001

Time:

09:49:33

Comments

I visited Conner's site today. He is a true angel. On the way to work today, I heard the song "Angels in Waiting". He truely is an angel. The song makes me think of Conner. Please give him a love for me today. We enjoyed our visit and will come again soon.

Cenda

Name:

Mommy

Email:

Date:

09 Oct 2001

Time:

13:16:10

Comments

Cenda, we like that song, too. Grammy told us about it. Well, I guess we're not going to Grammy's. I started trying to wake Conner up at 10:30 am and its 1pm and he won't wake up. He has a fever which the doctor feels is what is keeping him lethargic. We're taking him in in just a little bit. It will be hard getting him from the parking lot to the office off his bipap. He won't like that. His o2 was running low and pulse high but the o2 has come up a little and the pulse down a bit. We gave him some tylenol. Maybe we'll know more after some blood work and pee test.

Name:

Email:

Date:

09 Oct 2001

Time:

17:10:41

Comments

Conner is still sleeping and going back to hospital to do more tests.

Name:

Miss Lucie

Email:

Date:

09 Oct 2001

Time:

18:10:57

Comments

Hang in there Betsey!!!Give hugs and kisses to Conner. Maybe this is just one of those little upsets. I mailed the angel package from the kids today. Be looking for it.Take care. Remember you, Conner and John are loved. We pray every day for all of you. Much love, Miss Lucie

Name:

Gina Fimbel

Email:

Date:

09 Oct 2001

Time:

21:46:33

Comments

Betsey, I'm wondering how Conner is doing now. I"m praying everything is "okay" and that he is keeping comfortable. It's funny you put the link to that article about the honey. The day we took Andrew to the Pediatrician when he first noticed something wasn't right, he looked Andrew over for a long time and asked me "Have you been giving this baby honey?" His question seemed harsh although I know he didn't mean it to. I couldn't understand why he was asking me that but finally he explained it to me. Anyway, just my little story. Praying for you guys. Love, Gina

Name:

Belinda

Email:

belinda2@frontiernet.net

Date:

10 Oct 2001

Time:

06:06:53

Comments

I am so sorry Conner is feeling so bad. I am praying that he will feel better soon. He is so precious!!!!Love, Belinda

Name:

Caroline and Kristiann

Email:

Date:

10 Oct 2001

Time:

08:11:52

Comments

Dear Conner, Our class is going to say a prayer for you at our moment of silence time this morning. We are goin to pray that you will get well soon. And that you can go outside and ride in your wagon. Be brave while the doctors check you out and smile real big when they talk to you. Miss McKinney mailed the angel package yesterday-we hope you like the pictures. We hope you feel better Conner. We will write again soon. Love, Caroline and Kristiann.

Name:

Mommy

Email:

Date:

10 Oct 2001

Time:

13:32:35

Comments

Thanks so much to all of you. Caroline and Kristiann, I have felt very numb lately and I haven't cried tears for a long time, not when I saw the bombing on tv, not when I went to my uncle's funeral, not when I was so worried yesterday that Conner wouldn't get better, but I cried tears when I read your message because it was so incredibly sweet. Conner was brave yesterday and actually gave the nurse a smile after she took blood from him just because she spoke to him in a sweet voice. For reasons that we do not know, he was a little dehydrated, had a fever, his potassium was low, his O2 was low, his pulse was high, he was lethargic all day and impossible to arouse, and today he is acting like yesterday didn't exist. I thought he was dying yesterday and today he is fine. We gave him Pedialyte in addition to his regular feeding and gave him some mushed up banana-doctor's orders. Very bizarre. Conner's little body is just so vulnerable. He's in his room now talking very loudly and watching Elmopalooza. I will keep you updated.

Name:

Mommy

Email:

Date:

11 Oct 2001

Time:

14:53:19

Comments

We just got back from the hospital to give more blood. Conner did a good job and he got a sticker. They're gonna check his stuff again. He's acting like he was never sick. I have no clue what could have caused him to get that way for the day and then just recover. Although Pastor Jones did come pray over him that day. Hmmmmmm. Irene knows the secret.

Name:

Grammy

Email:

Date:

11 Oct 2001

Time:

17:56:19

Comments

Conner, my man, you sounded so good and strong on the phone today. I know Mommy and Daddy are taking good care of you (Irene, too) and you're getting your strength back. Tell Mommy when you give that Tarzan yell, you want BANANAS. Love you, Grammy

Name:

Shelley

Email:

Date:

11 Oct 2001

Time:

18:45:01

Comments

Betsey, I have not been able to check on Conner (via his web site) in a couple of days and I am so sorry he was not doing well! I can only imagine what a scare that was. Please know that we love all you guys and are praying for peace and strength! How I wish there was more I could do for you guys... Lots of Love, Shelley

Name:

Mommy

Email:

Date:

12 Oct 2001

Time:

14:50:04

Comments

Well, the potassium thing was probably the lack of it in his formula and maybe a virus-I think the doctor said? Anyway, Conner is fine now and we'll just make sure he gets potassium-BANANAS or whatever and try to pump more food into him which is hard because it seems like he's getting food all the time now. And get his shots-flu and rsv- and hopefully get him through the winter.

He talked and talked to Miss Belinda today. I could hear him in the room trying to mock her. He is so bright eyed today. He is precious.

Name:

Email:

Date:

12 Oct 2001

Time:

14:51:32

Comments

I said that wrong. The virus didn't cause low potassium-I meant, in addition, he probably had a little virus. Maybe...don't really know.

Name:

meredith

Email:

Date:

12 Oct 2001

Time:

17:36:52

Comments

Betsey - Let me know a good afternnon next week for Sparkles to come and visit.(I'm off Monday - Thursday.) I didn't check the website thinking ya'll had gone on your trip... and then I was a little scared. Hope my little buddy is doing better. me meredith

Name:

Grammy

Email:

Date:

13 Oct 2001

Time:

08:09:30

Comments

Conner, you need to cheer Mommy up today. She and grammy have both been a little down lately and that means we need outside help to get the smiles back on our faces...so that's your job with Mommy and when Mommy is happy, grammy feels alot better, too. So you have a good day and we'll all do the same. All my love...and kisses.

Name:

Mommy

Email:

Date:

13 Oct 2001

Time:

18:05:49

Comments

Mommy's doing much better. We enjoyed a visit from Robyn, Jeff, and Steele. They brought Conner a present. He was sleeping, so Steele and I put it by Conner's head so he'll see it when he wakes up. That was sweet. It is his 27th? month birthday today! What a big boy!!! And Steele is so adorable!!!!!! I loved hearing him talk with the two year old lisp and the letters all mixed up. Conner got to visit with Felicia, her boyfriend, and their puppy earlier. He licked Conner's hand and Conner petted him. But after about 4 min. it was time for puppy, Betsey, Felicia and anyone else in the line of the video to MOVE!!! He seems to be doing okay today. He had a little fever last night but I think he's okay.

Name:

mom

Email:

Date:

15 Oct 2001

Time:

00:58:51

Comments

Check out new pictures. Thanks Laura for managing to get the class picture up. We got the angel pictures and they are so wonderfully artistic! There are so many ideas represented through the use of the angels, Conner and color. I love them and I will keep all of these pictures for my entire life. Conner doing okay. We're trying to give him more food which is hard. His stomach stays tight even when its empty and he grunts and is fussier than normal. Alright, check out the pictures. Laura got some up tonight and will probably get the rest tomorrow. She's fast.

Name:

Shelley

Email:

Date:

15 Oct 2001

Time:

18:32:23

Comments

Betsey, Those new pictures are great!! I LOVE the one of him on the striped mat...close up. He is truely a beautiful child! Who do they say he looks like? Have you compared him with yours and John's baby pictures? I keep staring, but I can't tell...the coloring is John's I think, but he doesn't really get in the sun does he...maybe your shaped face?Anyway, he has got to be one of the most beautiful boys I've ever seen (and I've seen a few ;-). I also like the pic of him dressed as a clown. I'm sure you showed him what he looked like...did he like it or was he scared? Well, I hope you are all having a super week. I was glad to read that your feeling better Betsey! Love, Shelley

Name:

Robyn Petty

Email:

steele815195@aol.com

Date:

16 Oct 2001

Time:

10:01:20

Comments

Betsey, It was great to see you and John and Conner. I wish he would have been awake, I am glad I got to see him though. I did not think there was much change in him from the last time I saw him and that was several months ago. Jeff said the same thing, that he did not look like he had lost much weight or anything. He is soooooo cute. I just looked at the new pictures. What an adorable clown he makes. My favorite pictures are the one of you kissing him, the one with him and John looking at each other and my most favorite one is the one of him asleep, I want to hold his sweet little hands and kiss them all over. They look so adorable and he does look so peaceful. It is my FAV! Who drew the one of Conner in the wagon. What an adorable picture. I am sure it is someone is Ms. Lucy's class. What a special class she has. You look GREAT by the way. I hope you did good on the lSAT, keep us posted. Lots of hugs and kisses to you all. THanks for the sweet comments about Steele, he enjoyed his visit. I wish he and Conner could have met. Maybe next visit. Much Love, Robyn P.S. Give Mr. Sonny a hug for me!

Name:

Auntie Lisa

Email:

lisa__crump@hotmail.com

Date:

16 Oct 2001

Time:

15:41:17

Comments

Oh Conner, you look so precious!!!! What an awesome clown you are. I hope you are feeling well, I miss you, at least I can watch my video of you & see your sweet self. I can't wait to see your mommy this weekend & I know you will be in great hands with your daddy! Stay sweet!!!

Name:

Mommy

Email:

Date:

16 Oct 2001

Time:

17:23:05

Comments

Well, we tried to take Conner outside after his nap but he cried and grunted. So we brought him back in and put him right back on his bipap. He is now happily watching Babe. It is such a pretty day but he absolutely did not want to ride in his wagon. He's calling now so I must go! Lisa we will have a good time with all the girls this weekend. One more wedding down, two more to go! Or three but don't count on it.

Name:

Mommy

Email:

Date:

17 Oct 2001

Time:

22:35:34

Comments

Conner had a pretty good day. I made dinner and Belinda and Ryan came to visit again. Conner loves his company!! He talked like crazy right as y'all were leaving Belinda. I think he wanted y'all to stay. Okay, gotta go pack for Conner's Aunt Reea's wedding and sleep. Daddy's in charge this weekend! Good bye!

Name:

Grammy

Email:

Date:

19 Oct 2001

Time:

08:06:48

Comments

My dear little Conner, I sure do miss you and hope you are doing well with Miss Irene and Daddy while Mommy is away. I know she'll be beautiful in Aunt Rea's wedding and she'll enjoy being with her buddies but I'm sure she's missing her little boy also. When she gets home, Grammy will go down and see you and her and we'll do fun Halloween things. Be a good boy for Daddy and Miss Irene and all those other caregivers and family members who will be there to keep you happy and comfortable. Bye Bye

Name:

belinda

Email:

belinda2@frontiernet.net

Date:

19 Oct 2001

Time:

09:16:47

Comments

Ryan and I enjoyed supper so much!! You are a wonderful cook. We always enjoy visiting with Conner and all of the Riggs family. Ryan thinks Conner is so special. He is always asking me 'have you checked on conner today?' have a great trip to florida. i know that conner will be in good hands with john and irene. conner is loved so much by everyone. love, belinda

Name:

Grammy

Email:

Date:

22 Oct 2001

Time:

06:41:24

Comments

Conner, I finally talked to your mommy last night and she didn't sound too good. Seems she picked up a little "bug" down in Florida and has spent alot of time in the bathroom...poor mommy. But she will be home today and can't wait to see her big boy's smiling face. Daddy said you had a good weekend. I'm glad, though I missed talking to you. I want to see you soon. I talk to your cousins yesterday. Abby liked the present you and mommy sent and she wore it yesterday for her birthday party. Kisses to you and Daddy. (we won't kiss mommy right now, she might be contagious!)

Name:

Deborah

Email:

Date:

22 Oct 2001

Time:

17:40:24

Comments

I hope you had fun on your trip. Guess what? It's time for more paperwork. Just call when you are up to it and I will come whenever. Love Deborah

Name:

Betsey

Email:

Date:

22 Oct 2001

Time:

18:22:08

Comments

I was having a great time until I got the 24 hour virus from hell. Actually Aunt Reea passed it on when she got done with it. Then about 3 or 4 of the bridesmaid's got it. I wanted to die. Thanks for being so descriptive, mom. Poor Maria missed her rehearsal dinner because of that thing. But the wedding turned out perfect. Anyway, I still don't feel good so I'm going to lay down. I had Conner all afternoon but I just slept beside him and changed his face things out and turned him and stuff. But he's sleeping now, so...

I did miss him. A whole lot.

Name:

Miss Lucie

Email:

Date:

22 Oct 2001

Time:

18:59:38

Comments

Dear Betsey, Welcome back!! It sure is hard not to be able to read your entries on a daily basis.When you are gone, I find myself looking for notes from your Mother to let all of us know how Conner is doing. Sorry about the "bug". Get as much rest as you can. I'm glad Conner had a good weekend. However, even though John is so very good with him, I'm very sure he missed his Mommy. The kids have been doing more art work. I'll send another package later. Glad you are home. I missed hearing from you. We will keep praying and sending "smiling thoughts". Love and kissses to Conner, John, and you. Miss Lucie

Name:

Mommy

Email:

Date:

25 Oct 2001

Time:

00:25:42

Comments

I feel great now. Back to normal. Conner's acting a little weird though. Maybe his tummy. Grunting and whiny. But when we put his bipap back on, he's fine, so....we do. But that keeps him from being able to spend any time outside. And its so PRETTY! Well, a good thing this weekend is that we get to see ABBY!!!!! Very good!!!! The bad thing is that she has a cast from her shoulder to her wrist-she broke her arm and that broke my heart. I can't stand to think of her in pain. (She was jumping on the bed). No,no,no. Well, we get to see her and that is great. Conner is already excited. He was saying, Abby, yesterday. He'd do the "aaaaa" part and I would make his lips to the "ba" part. "Abba" Oh well, gotta go.

Name:

Grammy

Email:

Date:

25 Oct 2001

Time:

19:28:57

Comments

Yes! I can't wait to see Abby and Conner. I'm working on bringing Lauren, also. But don't know yet. Wish I could have Drew, too. But I guess that would be a little too much for me without some parental help. Abby will have to have everything done for her since it was her right arm she broke and she's right handed. I have job interviews today, so I may be back into the retail cosmetics business soon. That means few weekends and lots of sore feet. Oh well, it's a living. See you soon, little buddy. I love you guys.

Name:

Mommy

Email:

Date:

26 Oct 2001

Time:

07:25:26

Comments

Conner's had a decent day. I held him today. I couldn't help it. I just pulled his floppy body off the bed into my lap (very carefully). I held him until John got home then put him back on the bed and he cried! My heart broke so I pulled him back into my lap and told him I'd just hold him until he got tired of it and then I cried all over his neck and face. I couldn't help it. It was so nice to hold my baby in my arms. I know he was uncomfortable and had a hard time breathing but he hung in there for the both of us. He is really an angel and you can see it, you know, when you look into his olive eyes.

Name:

Miss Lucie

Email:

Date:

26 Oct 2001

Time:

09:28:23

Comments

My Dear Betsey, How my heart hurts for you. I know Conner loved having your arms around him. Keep hanging on. You are doing great and being so strong. I'm sure Conner wanted you to hold him as much as you wanted to. Keep thinking of how much fun he will have seeing Grammy and his cousins. Take care of yourself. Hugs and kisses to John, Conner, and you. You are loved. Miss Lucie

Name:

gina fimbel

Email:

ginafimbel@yahoo.com

Date:

26 Oct 2001

Time:

09:31:31

Comments

betsey, reading your latest journal entry just tears my heart into pieces. i am so glad you were able to hold your little angel today. you & conner are two very, very special people. as always, my thoughts and prayers are with you both every day. love Gina

Name:

Grammy

Email:

Date:

26 Oct 2001

Time:

19:56:08

Comments

Today's the day! I'll go pick up Abby and Jeff and then we'll go by Lauren's and visit with Drew and Aunt Shannon and MAYBE we'll be able to bring Lauren with us. Then we'll come back to my house and see Granddaddy and change cars so we can bring Aunt Betsey her bed. So we'll be getting down there pretty late, unless we decide to wait til morning to leave. That would be fine with me, but it's hard to get people up and moving as early as I'd want to go. Anyway, we can't wait to see Conner and Betsey and all the gang. Conner, please get lots of rest and stay well, so we can have a fun birthday party for your cousin Abby. Maybe, Grammy will get to hold you this weekend. That would be very nice, if we could make you comfortable. You are my angel.

Name:

Belinda

Email:

Date:

27 Oct 2001

Time:

00:32:04

Comments

Dear Betsey, It broke my heart to read about your holding Conner. It has to hurt so much not to be able to hold him and love on him all the time. I think about how much I grab Ryan and love him. I wish that you and Conner could do all of the things that Mamas and little boys do. There is nothing more precious than the time that you spend playing and being silly with your kids. Even with Rick and Randy being about grown, I still wish that I could just hold them and rock them and make everything ok. If only we could protect our kids from the hurt and pain. It doesn't seem right that Conner has had to have so much pain. He is so precious; he melts my heart everytime I look into his eyes because he looks so alive and vivacious like he could conquer the world if he had the opportunity. Thanks for sharing him with me. You are all so special. Love, Belinda

Name:

Mommy

Email:

Date:

27 Oct 2001

Time:

10:36:59

Comments

Abby and Lauren are here!!! And Grammy and Conner's Uncle Jeff (Abby's daddy). Birthday party tomorrow! I also find out my LSAT scores. Hmmmmm. I may not want to share them if they aren't good. Abby has a tummy ache so gotta go.

Name:

Lauren

Email:

Date:

27 Oct 2001

Time:

10:41:14

Comments

Hey,Conner! How are you? I know you're just laying in your bed going eeeeeeeeeeeh,eeeeeeeeeeeh.I am about to come in and start rubbing your head,so get ready!!!!

Love,Lauren

Name:

Lauren (Betsey's neice.)

Email:

Date:

27 Oct 2001

Time:

10:51:10

Comments

Conner was great today! He was very sweet. He will not let me out of his sight! Now, Conner keeps whining whenever Grammy or Jeff or Betsey or Abby comes in to try to stop him from whining,I go in,and he stops!!!!Well,g2g!(Got to Go!) Lauren

Name:

Mommy

Email:

Date:

28 Oct 2001

Time:

03:37:47

Comments

Conner has had a great day today enjoying Abby's birthday. Abby has had a good time with all her new stuff-dress up stuff and barbies. Lauren is going to dress up as a clown right now. She says she is going to be TWINKLE, Sparkle's daughter. We think she's a clown prodigy. We told her she might even be able to skip clown school since she's so good at it.

Name:

meredith

Email:

mereday@hotmail.com

Date:

29 Oct 2001

Time:

09:59:21

Comments

Betsey- I just want you to know how much I enjoyed Abby's birthday party. Just seeing one child's eye sparkle is worth putting on all that make-up. But Saturday I saw SPARKLES in everyones eyes so it didn't even seem like a task to put on and take off all that crazy make-up. (even Belinda's eyes sparkled while she was picking on how long the blue turtle's tail was. ha ha) I enjoyed spending time with Conner and getting to meet all of his great cousins I read and hear so much about. I learned Abby definetly has a future in go- go dancing, tell Lauren I'll teach her a few tricks from clown school, I hope Jim wasn't too scarred for the rest of his life

Name:

meredith

Email:

Date:

29 Oct 2001

Time:

10:08:34

Comments

OF COURSE I WOULD HIT THE WRONG BUTTON and send a message only half way typed!!! (betsey I told things always happen to me.)

I hope Jim wasn't too scarred from the clown for the rest of his life. And of course it was joy within itself just spending time hanging out and singing with Mr. Prince Charming himself, Conner. Oh how I love him and his PERSONALITY!! He is so very smart and knows how to work his ways.( He must have gotten his smarts from his GREAT PARENTS) Thank Ya'll for letting me spend time with Conner and his gang.

I looked in my notes at the house about that number for Make-A-Wish and I didn't find that toll free number but I did find an e-mail address which might be easier anyway. Just let me know if I can help with anything with it or if you can't reach someone at the office. You're a GREAT GREAT Mommie for Conner.

Make-A-Wish (478) 755 8450 georgia@wish.org website- www.wish.org

Name:

Belinda

Email:

Date:

29 Oct 2001

Time:

17:31:17

Comments

What a great party you had for Abby Sat. Thanks for including me. Abby and Lauren are just as precious as you have always said. It was wonderful to see Conner up and enjoying the party. I think he may have been just a little jealous of the attention Abby was getting-typical of a 2 year old, but great to see that he could express it. You do a great job with him. It was nice to see all of your family again and Sparkles- who has so much love for Conner. Love, Belinda

Name:

Mommy

Email:

Date:

30 Oct 2001

Time:

01:00:20

Comments

We are so glad you both could come, Meredith and Belinda. The clown was a treat. Abby's never seen a clown. She'll remember that birthday forever. We all will since her arm is broken. Oh and Conner did get jealous when Abby opened up the present with the pink boa. He remembered playing with the feathers with Miss Belinda and wanted them for himself so he cried until Belinda rubbed them on his head!

Conner's crying today and had a rough morning yesterday. Irene thinks its his front teeth coming in and I agree. He is displaying signs of cutting teeth but they end up looking like ear infection, allergies, tummy ache-other problems we have without the teething, so...we just treat and wait.

My lsat score was not too great but adequate enough to get me into John Marshall in Atlanta. I DO NOT like to not succeed when I begin trying something, so now I am determined. I don't have to be the greatest, I just have to accomplish the task no matter what. The task is to eventually pass the bar and whether I go to John Marshall or GA State, I shall accomplish the task!

Name:

Miss Lucie

Email:

Date:

30 Oct 2001

Time:

03:02:54

Comments

Way to go, Betsey!!!!!! You'll do great. I 'm very proud of you and your determination. You will do just find. Sounds like everyone had a great time this weekend. Hopefully Conner will not have too much trouble with the teeth coming. Maybe those ear infections will be few and far between this year. I'm mailing a package to Conner from the kids today. Some of these new pictures are really good. Check out the one of you wearing angel wings. They were so proud of them. Take care and recover from your exciting weekend. Give the Prince bunny nibbles from me. Much Love, Miss Lucie

Name:

Grammy

Email:

Date:

30 Oct 2001

Time:

19:35:15

Comments

What a great weekend...worth all the driving to get Abby and Lauren and then down to Conner's house. Everyone had fun and Abby really enjoyed being with her Carlisle family again. I left her with her Daddy yesterday, dressed up like Cinderella (with a broken arm). I hope we'll be able to see her on a regular basis. It makes life so much easier when we can all be together, even just for a little while. Now we have Lauren's birthday to look forward to. Maybe that will be our next reunion. Love and kisses to Conner and all.

Name:

Mommy

Email:

Date:

31 Oct 2001

Time:

02:11:09

Comments

We are going to try to come up for Lauren's birthday-from Nov. 15-18. Irene's said she'd ride up with us and help then spend the weekend with her daughter. We'll see if he's feeling up to it. Conner's doing okay today. He has such a funny personality. He really does seem like such a mixture of John and me. He can tune you out very easily (John), be very fiesty (Betsey, Abby, Grammy) and yet can charm you with his eyes and utterances (daddy,uncles, granddaddies). And he has an incredible sweetness that shines through-his angel side-like Connie. I contend that he is perfect in a world where no one is. How many mothers can say that her child has never made her angry? I can. My son has never disappointed me and never, never done anything to make me angry. Conner may be dying but his disease has rendered him incapable of behaving in a way that tests my limits of anger or aggravation with him personally. And he's two! What a sweetie. Time to go rub him and sing him to sleep...

Name:

Email:

Date:

30 Oct 2001

Time:

23:23:00

Comments

Dear Betsey, I agree that you can see all of the family members in Conner. Isn't it amazing how different combinations can make a person special?

Ryan asked if you had passed your test. I told him you did a great job. He said, "don't forget to tell her that I got a "nine-point". He was so excited about his deer and happy that you had done well, also.

Have a HAPPY HALLOWEEN!!!! I know conner will be precious in his clown hair and make-up. Love, Belinda

Name:

Mommy

Email:

Date:

31 Oct 2001

Time:

01:08:37

Comments

Ryan got a nine point! Good for him, he passed his test better than I!!! Belinda, tell him I'm proud even though the thought of a dead deer with blood everywhere makes me disgusted (don't tell him that). I understand its a southern male cultural thing. Good for Ryan!

Well, Conner is going trick or treating tonight. We're going to go to Jim and Julie's and take him out with baby Jim. We haven't decided between clown or astronaut yet. I'll ask Conner before we leave and see what he wants-if he has a preference. We will definately take pictures. He won't even know what he's doing but he will when its over and we'll talk about it a lot. Something's up with him but I haven't quite figured it out. Irene and I can feel something's wrong but can't quite pinpoint the cause. It always makes itself known eventually. His ear is draining but I'm not sure its infection fluid. The light is out in the thing I look down his ear with so I can't see if its red or not. They're so cheap, I'll just buy another one instead of buying a whole pack of rare sized batteries to fit in it and some bulb that is tinier than my pinky nail. Oh well, bye!

Name:

Grammy

Email:

Date:

31 Oct 2001

Time:

19:51:36

Comments

So, Conner, how did you like Halloween? What did you decide to be - an astronaut or a clown? I hope mommy took lots of pictures and will let us all see. Abby had to decide between Dorothy and Cinderella. I'm pretty sure she decided to be whatever mommy wanted. You know mommy's can manipulate their kids decisions. And you were probably whatever your mommy wanted. What was little Jim? Did he scare you? Or rather, did you scare him? You probably did if you were the clown. He was a little scared of Sparkle last Saturday. Anyway, hope you all had fun. I'm counting the days til your trip up here.

Name:

Mommy

Email:

Date:

31 Oct 2001

Time:

23:07:13

Comments

Conner ended up being the astronaut. I asked him repeatedly and he wanted to be both, I guess. The wig was too hot on his head so we just put on his flight suit and a cap. He turned blue after one house but he did trick or treat to ONE house. I asked him after we got him cleared up and in the house if he enjoyed trick or treating and he smiled real big. So, I guess it was worth the effort. We got him over to Jim and Julie's. Baby Jim was a honey pot and he was SOOOO CUTE!!!!!!! He made it to two or three houses and brought Conner back some candy. Conner actually did get to taste the one piece of candy he trick or treated for. We enjoyed hanging out at Jim and Julie's last night. The whole family was there and it was nice.

Name:

Mommy

Email:

Date:

02 Nov 2001

Time:

01:22:36

Comments

Conner's day was normal. Altho@

Name:

Mommy

Email:

Date:

02 Nov 2001

Time:

01:22:44

Comments

Conner's day was normal. Although he stayed awake for about 9 1/2 hours. He would NOT take a nap. I'm glad he thinks life is so great he can't miss out. His bowels are continuously giving him problems. We give him lots of colace to soften and enemas here and there, so hopefully that will keep him comfortable. We knew eventually it would be an issue. Irene's giving him his treatment now. I hear him beeping.

Name:

Email:

Date:

02 Nov 2001

Time:

01:34:16

Comments

Dear Conner, We are glad that you had fun on Halloween. Did you like the taste of the candy? We had a party in the classroom. We also earned a popcorn party for reading so many books. Miss McKinney said you like to listen to stories. So so we. We are practing for our Veterans Program. We are going to sing songs and listen to people talk that have been in wars. Conner did you like our pictures we did in computer lab? We like going there. WE hope you are having a fun day and that you are getting to go outside and see the colors of the leaves. We made a pile on the playground and jumped in them. If you were here we would throw leaves up in the air and let you see how they fall. Miss Mckinney said you may not be feeling real good because of your ears. We get the earach too. It hurts. We hope you get to feeling better soon. Time for more classes. WE will write again soon. Love, Kristiann and Caroline

Name:

Email:

Date:

02 Nov 2001

Time:

02:18:37

Comments

Kristiann and Caroline, we did get the pictures and Conner LOVED THEM!!!!!! He smiled as we went through each one. They were very colorful and artistic! You are both so sweet and thank you for being compassionate about Conner's earache. As I have said before, I will keep these pictures for my entire life. They are like diamonds and gold.

Name:

Grammy

Email:

Date:

02 Nov 2001

Time:

20:01:24

Comments

Hi Conner, Hope this will be a great day for you. You are so lucky to have all these children who draw pictures just for you. They must be very sweet loving young people. I got a phone call last night from your cousin Drew. He has never talked to me on the phone before, so it was a real treat. You talk to me alot. It is so nice to hear little voices saying "Grammy", but in Drew's case it's more like "Bammy". I'm looking forward to you and mommy and Irene coming up next weekend. Hope you stay well so you can make the trip. Love you,

Name:

Betsey/Mommy

Email:

Date:

05 Nov 2001

Time:

18:43:01

Comments

Conner's doing fine. He was saying, "dog," today. "daahhh." We watched the movie, Cats and Dogs. Very cute. I was squeezin' his cheeks like you said to make the o sound, Belinda. Conner is still napping right now. Thanks Meredith for babysitting Conner Sat. I had a great time at the game and after- I went dancing, of course. Now, back to being Mommy and then off to Grammy's soon. Conner should be waking up soon, so I'm off. Conner has taken such a good nap, I was able to do laundry and redo my room. I totally changed it all around. A change is refreshing and good sometimes. Like now.

Name:

Grammy

Email:

Date:

06 Nov 2001

Time:

08:02:56

Comments

Ok, go ahead and change your room, just don't lose your feng shui...just kiddin'. You don't have enough space to worry about feng shui. Hope Conner has a good day. We've been kind of dragging around here for a couple of days. Can't decide how much is physical and how much is mental, but I'll work on both and be fine. It feels like the weather is getting cooler. So it may be time to get all the summer clothes put away and see what's left. I wish you were here now, Betsey, when I have some time. When you get here, I'll be working everyday. But at least I'll have peace of mind and money. Love you, little buddy, and little buddy's mom.

Name:

Belinda

Email:

Date:

07 Nov 2001

Time:

13:17:10

Comments

I am so happy to hear that Conner is trying to shape some vowel sounds--Great job! I really enjoyed sitting with Conner and baby Jim Sat. night. It is so sweet to see the two of them together. Conner watches so intently as Baby Jim plays and Baby Jim is so gentle and loving with Conner. He sticks his little finger out and barely touches him- so precious. Wonderful little Riggs boys!!!! Love, Belinda

Name:

Mommy

Email:

Date:

08 Nov 2001

Time:

13:13:29

Comments

Conner had a good day yesterday. He talked and sang. He went in the den for a little while then we fell asleep cuddled on the floor. Conner is a good cuddler. Then John and I went to the movies. I ate way too much popcorn but that was my goal. Granddaddy babysat and did a mighty good job. When Sonny got there he walked out of Conner's room briefly and Conner called him back. "Ahhhhh! Aaaaahhhhh!" I told Sonny he needed to get back in there, Conner was calling him. I'll work on getting Halloween pictures up today.

Name:

Mommy

Email:

Date:

09 Nov 2001

Time:

11:54:05

Comments

Check out new pictures and more on the way! Conner is doing fine. He got his RSV shots last night. OOOO. I tried to give him one while the nurse gave him the other so he'd be stuck at the same time. I couldn't pierce his skin because really I don't know what I'm doing. Tracey ended up giving both. So, I'm sure that just hurt even more but he cried until I started praising him for doing such a good job. Then he bowed up like a big boy and the tears ceased. Conner loves praise. I also gave him a haircut. I'd like to say it looks good but he looks like he looks like a mental patient from One Flew Over the Cukoo's Nest. It grows fast. Well, check out the pictures.

Name:

Tracy Smith (Walker)

Email:

Date:

09 Nov 2001

Time:

14:56:15

Comments

Name:

Tracy Smith (Walker)

Email:

tracysmith@shoesforcrews.com

Date:

09 Nov 2001

Time:

15:11:20

Comments

Betsey,

You and your family have been on my mind a lot over the past few years, so I finally decided give your mom a call today. It is amazing how the years just fly by. I was so touched by Conner and his story, you both are such beautiful strong human beings. I have a 3month old boy and feel so lucky each day I get to spend with him, because there are no guarantees in life and how long it will last so all we can do is savor the precious times we have. Your story makes that point so clear. I hope that we can keep in touch, I will be checking out your website often to see more pictures of Conner. Much love, Tracy

Name:

Grammy

Email:

sangar@mindspring.com

Date:

09 Nov 2001

Time:

17:37:51

Comments

It was such a pleasant surprise to get a call from Tracy today. What a sweet person! Over the years I have made so many good friends with young people that have come in an out of my home with my children and Tracy is one of my favorites. She will be a wonderful mother to little Ben and I look forward to meeting him and her husband some day. I haven't talked to Conner today, but we'll chat tomorrow morning. Mommy said he was getting a much needed nap when I called. Love to all,

Name:

Mommy

Email:

Date:

10 Nov 2001

Time:

13:04:46

Comments

Tracy, my long, lost sister! I am glad to hear you have a healthy little boy. I know you are a wonderful momma. Conner is a special thing. He makes me a good momma.

Conner is getting his speech therapy right now with Belinda. He was having a rough treatment this morning so I just put his bipap back on. He couldn't quite get clear enough to breathe on his own. We'll work on him more later. He's fine now on his breathing machine and he's talking and playing. I slept later than usual since I didn't have a nurse last night. I was up most of the night but I watched legally blonde which was entertaining. Time for lots of coffee...

Name:

meredith

Email:

Date:

10 Nov 2001

Time:

15:27:31

Comments

Hey Conner! I'm in Panama City with Mrs. Brenda. You were the first person she asked about. I hope you have a great weekend. I'll come by to play before your BIG trip to Grammy's! Betsey- I'm off work Wednesday, Thursday, and Friday if you need any extra help. love love me meredith

Name:

Mommy

Email:

Date:

12 Nov 2001

Time:

01:40:29

Comments

Conner's day was fine. We laid in John's room and I watched movies and loved on Conner. He didn't watched videos. He just laid there and let me rub his head and arms and legs while I watched my movies. I thought he'd go to sleep but he laid there for hours letting me rub him and snuggle with him. Eventually we took a nap and it was so cozy and secure having him right up under my arm and so close beside me. For a little while he had daddy on one side and mommy on the other. He must have been in heaven.

Name:

Miss Lucie

Email:

Date:

12 Nov 2001

Time:

06:28:13

Comments

My Dear Betsey, What sweet loving Conner must have felt during that tender time you and John shared with him. I hope Conner has a great day and that you and everyone are getting ready for a great time at your Mothers. We are still praying and sending lots of loving thoughts your way. Give hugs to Conner and John and remember you are loved. Miss Lucie

Name:

Grammy

Email:

sangar@mindspring.com

Date:

12 Nov 2001

Time:

08:42:22

Comments

That does sound like a heavenly time for Conner - with Mommy and Daddy. What security for a little guy, surrounded by those who love you best, being touched and caressed and adored. We could all use a little of that kind of attention from time to time. Just let the world go away - no worries, just live in the moment. I'm sure it was good for Mommy and Daddy also. Of course, we all have to get back to reality and, hey, here it is! Monday morning - the real world is hitting us smack in the face. Work, school, Conner's treatments. Oh well, we can do that, too. I went to Lauren's "mini" birthday party Saturday. I snapped a bunch of great pictures of little Avery, Drew, Lauren and all her friends, only to get home and find that I had no film in my camera. I guess these 58 years are catching up with me. Ah maaaan! (As Abby would say.) I'm looking forward to Thur. I'll let you know my work schedule later today. Kisses to my little buddy.

Name:

Tracy Smith

Email:

tracysmith@shoesforcrews.com

Date:

12 Nov 2001

Time:

11:41:01

Comments

Hey Conner, Hey Betsey!

I always knew you would be a great Mommie, Conner is a very lucky boy to be loved so much and by so many people. I was up this weekend all night as well, Ben had his first cold and was so kind to give it to mommie too. Hope you are having a good day today and please give a kiss to Conner for me. Love-Tracy

Name:

Belinda

Email:

Date:

12 Nov 2001

Time:

13:12:54

Comments

Hey John, Betsey, and Conner: I am so glad you all had a great day snuggling and loving together. Those are the precious times in life that you will always cherish and never forget- nothing else compares to it. I will miss Conner while you are away on your trip. I am so glad you can visit with Grammy; she will cherish the time with you. Have a safe and fun trip! I hope you have time to RELAX. Let your mama take care of you- Mama's like taking care of thier babies--always. Love, Belinda

Name:

Mommy

Email:

Date:

13 Nov 2001

Time:

01:25:15

Comments

Conner is an excellent snuggler. More pictures are up. And I'm going to put pictures of my trip to Ft. Lauderdale hanging out and Maria's wedding.

Conner was really cute tonight. Sat. night and tonight I put in my own cd's to sing him to sleep because I get tired of singing the same old nursery rhymes until he goes to sleep. Conner doesn't care as long as I'm singing. Well, as long as I was singing, he was singing-LOUD! He'll make his voice go up and down and long and short sounds. He sang so long tonight until his eyes shut and he couldn't make one more sound. He is SOOOOO CUTE!!!!

We had a special visit today from Elizabeth Murray. She has a neuromuscular disorder that is somewhat similar to Conner's. It is equally devastating. Elizabeth is two, also, and is so precious and we enjoyed talking with her parents. I think she was excited to see Conner. Conner had a bit of an attitude at first. I think because we turned his video off. I need to teach him some manners. But he did talk a little bit and I think he really enjoyed his guests. I asked him later if he liked Elizabeth and he said, "uh-huh." I asked him if she was special like him and he said, "uh-huh." I think he picks up on the word "like." Okay, I'm tired. Good night.

Name:

Belinda DeLoach

Email:

Date:

13 Nov 2001

Time:

06:04:04

Comments

I am so glad you all were able to meet Elizabeth and her family. I always thought Elizabeth and Conner would 'connect' if they were together. What a precious family- just like yours. I hope Elizabeth gave Conner one of her big, pretty smiles. I would love to visit with Elizabeth and Conner together one day. Love, Belinda

Name:

Kristiann and Caroline

Email:

Date:

13 Nov 2001

Time:

08:30:20

Comments

Dear Conner, How are you? We are fine. We are having lots to do at school now. Our Veterans program was held last Friday. Everyone was so excited because Mark Wills sang. He's a famous country singer. Guess what? He use to go to our school and played ball with Mrs. McKinney's children, Mandi and Mark. They are friends. We also had a parade Saturday. You would have liked it. Our school had a float. You could have been on the float with us. Mrs. McKinney walked next to the float. She looked tired afterards. It was over three miles. We hope you have a good time at your Grammys. The sun has been shining lots and we have a new basketball court on the playground. Are your ears better? Turkey Day is soon and we are out of school. We will draw you some Turkey pictures and send them to you. Have you seen Shreik the new movie. It's real funny. You will like it. We saw the pictures of the party for Abby. We liked your picture dressed up like a clown. We have to start class. We hope you have a sunshiney happy day. Love, Kristiann and Caroline

Name:

Email:

ginafimbel@yahoo.com

Date:

13 Nov 2001

Time:

17:42:11

Comments

Betsey, If you could possibly send me Elizabeth's address I would love to send her a special package from Andrew's Toy Box. I would appreciate it! Also, I can't remember if I told you about the website or not, but if not check it out at www.andrewstoybox.org. I think about you and Conner so much. Prayers are always with you both. love, gina

Name:

Mommy

Email:

Date:

13 Nov 2001

Time:

18:34:16

Comments

Yes Gina-that is incredibly thoughtful. Kristiann and Caroline, thank you for your lovely message to Conner. He told me to tell you that his ear is better. He went to the doctor today and the specialist looked at it and said it looked okay. The good news is that the specialist feels like we can stop it from coming back.

Name:

me meredith

Email:

Date:

13 Nov 2001

Time:

20:04:17

Comments

Conner Conner... I am so glad to hear that your specialist has good ideas about helping to keep your ears from hurting you. You do know Conner that your special friend Elizabeth knows Sparkles the clown. Maybe even one day, Sparkles could come play with the both of you together and Belnda too. (oh - goodness could you handle the excitement?) Well right now you are getting prepared for your BIG trip to Grammy's. I'm so excited for you and Mommie and Grammy and Mrs. Irene! I've really been thinking about you alot this past week and I have missed our play time. You are such a SPECIAL angel and I am so thankful that we get to have our special play times together!! I will call tommorow (Wednesday) and see if I can stop by and play for a little while... plus I have a surprise from Mrs. Brenda. I know you love surprises!! Keep rested and know that Miss Meredith loves you bunches!!! love love me meredith

Name:

Laura Marsh

Email:

lmarsh@ftrsm.com

Date:

14 Nov 2001

Time:

09:53:12

Comments

Betsy-

I've been very out of touch lately. I sat and read about 3 weeks of your entries this morning. It sounds like the Riggs family has been very busy. I am SO glad that Conner is doing well and that the two of you have had the opportunity to enjoy lots of snuggle time. There is nothing better than snuggling with a sweet 2 year old!

Now that it's not so hot and buggy, I wondered if Conner would want to come and see the horses and cows. We are finally back in our house (moving -- the main reason I've been so out of touch) and we would love to have y'all come out. Just let me know if you think Prince Conner would enjoy it (Her Royal Highness Ashley June will be happy to show him around!!!!)

Ashley June is going to be a big sister this summer. We're expecting a July baby - like Conner! Needless to say, we are doing alot of praying for a healthy child.

You probably already have people lined up to do this but I would love to write you a recommendation to law school if you still need another. Just let me know. You will be an outstanding attorney (although you should be forewarned that the first year of law school is fairly miserable). However, after all you've been through, it should be a piece of cake.

Just wanted to let you know that you are all still on my mind and in my prayers. Much love, Laura

Name:

Mommy

Email:

Date:

14 Nov 2001

Time:

11:30:56

Comments

I love getting new baby news! That makes my day. Unfortunately, my sister in law, Lauren and Drew's mommy, is not having a baby anymore. But she is going to try to get pregnant again. We are very sad but hopeful! So, it is nice to get some good baby news.

We took Conner to Miss Belinda's last night to visit with Ryan and his brother Randy. We enjoyed the wonderful supper, Belinda. I wish we could have gotten there earlier. We just threw Conner in the car with his bipap and pulled him inside and plugged him up and he did fine. Laura, I would love to get Conner out to your house to see the horses. He would LOVE IT!!! I understand there is a way to get a boat battery or motorcycle battery or something to hook up the bipap. I don't know how but I may go by that marine store and look at the boat battery and ask someone to help me figure out how to connect the two. Whatever.

Laura, thanks for the recommendation. It may be a little bit before I need it. I have time on my side with regard to getting in and going. So, I am going to take advantage of all this time and try to get together a good application. That may mean re-taking the LSAT but I really don't want to. I am sitting on the fence about that but I do have time if I decide to, so???? But I don't have time if I am not going to retake it. I won't stress, just keep working towards it, maybe not efficiently but effectively.

Conner is trying very hard to talk today. I actually think he is tired of watching Elmopalooza. What a wonderful thing!!!! I was sick of it weeks ago. I wish I could understand him. And last, Abby-we love you-sweet girl! Another strong survivor Carlisle lady being groomed through hardship...

Name:

Belinda

Email:

Date:

14 Nov 2001

Time:

11:32:52

Comments

John, Betsey, and Conner: Ryan and I enjoyed your visit so much last night. Conner seemed really happy; I think he enjoyed the turkey and the squirrel calls; Perhaps Ryan can make a turkey caller out of him. Betsey, I think Ryan was flirting with you when he was showing you his turkey calls- he says that you are so pretty. I am so thankful to have special friends like all of you. Take care on your trip and have a great time. Love, Belinda

Name:

Email:

Date:

14 Nov 2001

Time:

15:28:41

Comments

turkey calls have often been known to grab my attention.

Name:

Mommy

Email:

Date:

14 Nov 2001

Time:

19:26:27

Comments

Tell Ryan to keep the turkey calls coming! I'm flattered. I forgot to sign my name earlier. Well, it looks like its Conner and me going to Grammy's tomorrow. We are going to have lots of fun! Me and my little buddy. Gotta go do his tx and bath and get him ready for bed and then I shall watch a movie in my cozy, warm bed as I sip on a quenching glass of red wine. Hmmmmm. How relaxing! Isn't life great? As long as the kids are safe, I can take a deep breath and relax.

Name:

Miss Lucie

Email:

Date:

15 Nov 2001

Time:

06:18:30

Comments

My Dear Betsey, Thanks for responding to the kids. They really enjoy hearing from you. Have a safe trip and enjoy the time. Love, Miss Lucie

Name:

Grammy

Email:

Date:

15 Nov 2001

Time:

08:01:57

Comments

Yeah! Betsey and Conner are coming! I'm so exciiiited (as Abby would say.) I'll go get Abby tomorrow. Today, I have to work, but I'll be counting the minutes when it gets close to 4:00. Grandaddy will be here to help with the equipment. Please be careful, Betsey and don't hesitate to get help if you need it. I know you are tuned in to that by now and don't have a problem with asking for what you need. Can't wait to see you and the big boy. Love you, Mom

Name:

Shelley

Email:

Date:

15 Nov 2001

Time:

09:09:47

Comments

Hey Betsey and Conner! Me and Price enjoyed visiting with you guys the other week. I especially loved that Conner was talking with me so much! That just made my visit!! Thanks so much for having us over! Pricey is "sending" Conner a little gift via Anya (my sister - that's why the package will say from VA). She got Ty and Brady one of these and I immediately thought Conner would like it too! Anywho...we may be in town soon and will stop by again. Love to you all, Shelley

Name:

Mommy

Email:

Date:

17 Nov 2001

Time:

10:42:21

Comments

We are at Grammy's and we are going to Lauren's in a little bit. Conner just had an episode. He turned blue on his bipap. Not very good. I don't know why. He immediately went back to sleep. I don't know. Makes me nervous. Thanks Shelley and Miss Lucie. We got both of your packages! We call the lava lamp, the bubbles. And we love the books you sent Miss Lucie. Conner loves Rolie Polie Olie! Thanks so much for thinking of my baby! He knows he is loved. He got to see Mammaw and Pop Pop yesterday. He just stared at them. Gotta go!

Name:

Email:

Date:

18 Nov 2001

Time:

10:38:40

Comments

Hi Betsey, I hope Conner is doing better. That must be so scary for you. I know your mom loves having you there and it is always so nice to be in our parents home. There is no place like it! Please give Conner a hug and kiss from us. We look forward to seeing you all next month. I can't believe Christmas is already here. Please know that you remain in our thought and prayers. We love all three of you. Robyn

Name:

Mommy

Email:

Date:

18 Nov 2001

Time:

22:27:44

Comments

Another sma baby has died. Maranda Forstall died Sat. at 9:43 pm. She lived in Illinois.

We are home and Abby is here with me. Conner did fine the rest of the weekend. Others were sick though and Tracey(nurse) went home sick tonight. My family got her sick. Oops. Hope Conner doesn't get sick. We tried to be more careful with him. He's had the flu shot, too. So...? Robyn, it was good to here from you. Gotta go check on the kids and get Abby to sleep. I am so relieved and happy to have her. Goodnight.

Name:

Mommy

Email:

Date:

19 Nov 2001

Time:

16:18:26

Comments

I'm sorry. Maranda died Fri. night not Sat. I was reading the oursmaangels guest book and one after another entries is of a parent who has lost a child to sma. I just wonder when Conner's time will come and it drains me. I can't totally not think about it but I know I can't dwell on it either. I don't but I do know we'll be lucky if he makes it through the winter. I said that last year and it was quite an accomplishment that he did.

Name:

Grammy

Email:

Date:

19 Nov 2001

Time:

18:59:45

Comments

I hate to think of the little angels leaving us. You're right, Betsey, we are lucky to still have Conner here on earth. As long as he can enjoy his life and be comfortable, we will thank God for letting us keep him here. He is our special gift. I know it's alot of work to have Abby there, but you'll be able to get her in a routine and she'll be company to you. Sorry we got Tracy sick. I was miserable last night, but I'm back to normal today. Rest is the best cure for anything. Hope John had a happy birthday. Wish we could have had a party for him. Give him my love.

Name:

Mommy

Email:

Date:

20 Nov 2001

Time:

00:08:18

Comments

Both kiddies are tucked safely into bed. Abby and Conner were both cutie pies today. Conner talked a bunch today. When Abby was going to sleep I asked him to tell her night, night and he said, nigh-nigh. So cute how much he is understanding and trying to communicate. Abby is precious and always gives Conner bigs hugs and kisses.

Conner had another blue moment today but other than that he had a good day. He has a lot of snot right now and in the morning it can be a little rough getting all of it out. I can't stand it when he turns pale. If I think about it too much it'll make me nauseated. Anyway, I'm tired. I've been up with him the last two nights and no sleep during the day. Abby will have me up in the morning, firsty and hungry and wanting to tell me her dreams so I need to go get some sleep before then.

Name:

Shelley

Email:

Date:

20 Nov 2001

Time:

09:19:49

Comments

Betsey, The fact that Conner made it through last winter when you thought he wouldn't it speaks so highly of YOU Betsey. You work so hard for Conner to make his life as best as it can be. Your doing a super job and everyone is so impressed with your strength and courage. I can only imagine how much it takes from you every day to do what you do. I am praying for you both. Love, Shelley

Name:

Email:

Date:

20 Nov 2001

Time:

17:50:25

Comments

Welcome home!!Never underestimate your abilities as a parent. You and John do a wonderful job meeting all of Conners needs. Take care of yourself. Have a wonderful Turkey Day and a blessed Thanksgiving with all the family. Call if you need me. Much Love, Miss Lucie

Name:

meredith

Email:

Date:

20 Nov 2001

Time:

21:52:07

Comments

HAPPY TURKEY Day to Conner, Abby, Betsey and John!!!

Name:

Mommy

Email:

Date:

21 Nov 2001

Time:

00:35:33

Comments

Well, we celebrated John's birthday tonight(it was Nov. 18). We had tacos-John's favorite-and boston cream cake-my favorite. Conner gave us all a big smile as we sang, Happy Birthday, and Abby blew out John's candles with him. Conner is in his room singing to Elmopalooza. Just when I thought he was getting tired of it, it made a comeback. Conner has really been doing a lot of talking lately. Abby did good today. No spankings. We learned to punch a pillow if you get angry instead of throwing things. She learned it after she threw her shoe and a pillow and knocked the clock off the side table. After her little spanking yesterday, she hasn't thrown anything. Time out just wasn't cuttin' it.

She was so sweet today. Abby asked me why I didn't talk to her like I do Conner. She said, "You ALWAYS talk nice to Conner. Why don't you ALWAYS talk nice to me." Of course I explained how I love them equally but Conner can't do anything so I never have to fuss at him. Then I asked her if I should fuss at Conner and for what and how loud I should fuss at him. She said, "No Aunt Betsey. Don't fuss at Conner." I try to tell her that we all mess up a little bit but we just have to try to do better and I love her. What a sweetie. She is so cute!!! Conner calls her when she doesn't get into his room for a little while. "AAAAA" -which means "Abby." I love having them both here. It feels so natural. Well, its late. I've been rubbing Conner and talking to the nurse for a while and I am ready for sleep.

Name:

Grammy

Email:

Date:

22 Nov 2001

Time:

09:23:14

Comments

Happy Thanksgiving to my sweet girls and boys in Statesboro. Hope you guys have a great happy day. I'll be thinking of you and wishing we were all together. Maybe, we can be together for Christmas. That would be my dream...to have my whole family together in the same place at the same time. Its seems that's an awful lot to ask these days. But I love you whereever you are and whereever I am. Love, love

Name:

Mommy

Email:

Date:

24 Nov 2001

Time:

13:17:32

Comments

We had a really nice Thanksgiving with lots of food and family. Conner had such a good time at Aunt Julie's he cried when it was time to leave. Abby had a great time playing with Thomas, Julie's nephew.

Lucie, we did get the pictures. Thanks so much for thinking of Conner! He loves getting the pictures. I'm sure he knows your names by heart.

We love having Abby despite her incredible demands! She and Conner both are special little beings.

Name:

Mommy

Email:

Date:

26 Nov 2001

Time:

00:58:05

Comments

We had a nice time today. I went to Tybee to Julie's condo with her family last night and got back today. We took Abby and Conner to the park. Conner rode around in his wagon and Abby managed to play on the equipment with her broken arm. Conner went down a small slide but didn't seem to care. He started choking up. We pulled the van up and had him on his bipap outside of the van in his wagon while Abby played. He looked so sad watching the other kids played so we left. Abby was a good sport though and came on without a fit despite how much she loves playing on the playground. She has been getting very jealous though of my attention to Conner. She cried today because I was talking real sweet to Conner. When I asked her why she was crying she took off running. Finally, she told me that she wanted me to talk to her like that. Of course I do but...I had another talk with her about their differences and needs and that I love them both equally. I guess she just needs to keep hearing it.

John made Abby a CD with the Britny Spears' song on it that Abby likes. We played it in Conner's room and sung and danced to it for him. Conner started singing with us and smiled real big at Abby! Conner seems to be doing well. I hope he continues to manage as well as he has so far this season.

Name:

Grammy

Email:

Date:

26 Nov 2001

Time:

08:27:02

Comments

Hi Abby and Conner, I miss you little sweeties. I have a couple of days off before I go back to work. Maybe I can see you...no promises. I never know just what I will be doing from one day to the next. Drew and Lauren spent Sat. night with Grandaddy and me and we really enjoyed them. Poor little Drew wasn't feeling too well and threw up on Grandaddy. Then he went to sleep and just slept and slept. His Daddy always cured his ills that way when he was little...sleep and sleep. Drew's a sweet little boy and Lauren is a good second "momma". Have a fun day! I love you all, Grammy

Name:

Auntie Reea

Email:

Ree-a@msn.com

Date:

26 Nov 2001

Time:

11:15:00

Comments

Hi Riggs Family- I hope you all had a wonderful Thanksgiving together :o). I have been thinking about you guys. I'm so glad Abby is visiting- I know she is good company for you all!!!

Hugs and Kisses, Reea

Name:

Mommy

Email:

Date:

27 Nov 2001

Time:

10:33:37

Comments

Hey Maria and Grammy and Ms. McKinney's class! Hope you kids are doing well. Thanks for thinking of Conner as much as you do.

Well, Conner had a recheck appt. for his ears in Rincon but we couldn't wake him again this morning. He would respond but not wake. You could tell he was trying to wake up and he said, yes, when I asked if he was okay but he just couldn't keep his eyes open or wake. He doesn't have a fever. His O2 did keep dropping this morning though. I don't know. His numbers are fine. Irene's giving him Pedialyte right now so we can make sure he's hydrated and rule that out. Hmmm. We'll see if we can wake him again in an hour or so. We started trying 2 hours ago and then left him alone just in case he was really sleepy. He could be REALLY sleepy.

Good news is that I think we can get Abby on Medicaid. Thanks to Carolyn at DFCS for helping me with Conner and Abby! We will get her taken care of. My precious babes. We enjoyed watching movies in my room, all three of us. Conner talked and talked. He loves Abby's interaction.

Name:

me

Email:

Date:

27 Nov 2001

Time:

13:17:12

Comments

Conner's awake and pitched a huge crying fit when Irene put in Babe. It had to be Tarzan. I have no idea what was wrong earlier but we almost never do. Being extraordinarily weak can cause all kinds of things to happen.

Name:

Kristiann and Caroline

Email:

Date:

27 Nov 2001

Time:

15:51:14

Comments

Dear Conner, Miss Betsey and Mr. John, We wanted to write you because we just read that you had a bad morning. WE hope you are feeling better now. We are fine. WE are sending you lots of pretty Christmas cards. Tell your Mommy to string them up and hang them across your room to look at. Christmas is coming very soon and you will get to open lots of presents. YOu will probably have a big Christmas tree with lots of decirations on it. We are excited about Christmas break we get lots of days off. But we have to wait for 3 more weeks. Miss McKinney has a surprise to send you. So be looking for a package at your mailbox. We are having funny weather here. This morning it looked like it would snow. It was to warm. We can't wait for snow to come. We wish you were here so you would be able to see it falling. You could catch the flakes on your toung. Take care of yourself. We might just make lots more things to send you. It would be a surprise. Smile-Smile-Smile. We hope you have happy days from now on and that you won't be having bad times anymore. Time for us to get on the bus. We will write later. Love, Kristiann and Caroline

Name:

Email:

ginafimbel@yahoo.com

Date:

27 Nov 2001

Time:

21:47:51

Comments

Betsey, I'm sorry to hear about this morning's episode. I am sure that was pretty scary for you. Thank God he is doing okay now and was strong enough to fight for Tarzan : ) Both you and Conner continue to be in thoughts and prayers daily. Love, Gina

Name:

Mommy

Email:

Date:

29 Nov 2001

Time:

00:03:07

Comments

Well Conner has done very well today. He has talked, watched movies, read books, played with Abby, fell asleep with Mommy rubbing him. Abby was good while we ran errands and went to the gym. She ate well today which she doesn't always do and played dress up and did only two slightly bad things. The second thing she did was pull down the net that has all the stuffed animals in it after I continuously told her not to touch the net. I'm sure this stuff sounds familiar to others with four year olds. Oh well, they're both fine and sleeping and I'm on my way. I woke up sick this morning. Time to take medicine and go to sleep.

Name:

me

Email:

Date:

30 Nov 2001

Time:

01:52:42

Comments

long day, Conner's fine...no nurse tonight, so long night.

Name:

Email:

Date:

30 Nov 2001

Time:

06:19:34

Comments

Dear Betsey, Take care of yourself. We are still praying for all of you. I hope Conner has a good day and that you are feeling better. You are loved. Miss Lucie

Name:

mommy

Email:

Date:

30 Nov 2001

Time:

10:13:38

Comments

Miss Lucie and class-THANK YOU!!!THANK YOU!!!THANK YOU!!!!! Abby is wearing her wings as we speak and coloring you a Thank You picture. I love the pictures of the class and of Mark Wills. It is so special that Conner has captured the attention of so many people. He is special so its no surprise! I was up all night and have lots to do today so it was a nice surprise and heart warmer to see all the cards from the class, the books!!!!!, the CD's and Abby's and Jim's presents. I will give Jim's to Julie tonight. Miss Lucie, I can't tell you how much all your packages mean to us. Conner's smiles so big looking at the pictures from the kids. He knows you all so well! THANK YOU THANK YOU THANK YOU!!!!!!!! We will put in Mark's CD's for Conner as he goes to sleep. I have been wanting to transition him to some country music since I know the twins in Richmond Hill enjoy country so much. I get tired of the same old instrumentals. Thank you so much. Time to take Abby to the doctor and hopefully get her cast off. I doubt it though because in the x-ray one bone still looked so separated. But what do I know? We'll see.

Name:

Email:

Date:

30 Nov 2001

Time:

15:56:26

Comments

Dear Betsey, You are so very welcome!!! The kids were so happy that you got their cards today and started to make more this last period of class. So---BEWARE--more will be coming. I'm so glad Conner has had a good day. I didn't actually know Abby's age-- so look through some of the books. There are several she might enjoy. I especially liked the ones with the pull up flaps. Tonight turn off the lights and see if that Christmas book really glows in the dark. Yes, Mark Wills is such a caring young man. He loved sending the picture and we will find his other CD's for you. He has such a tender heart for children. We talked for a long time about Conner. He will continue to keep up with Conner's journey. Time to load the buses. I'll write later. Much love to all of you. Miss Lucie

Name:

meredith

Email:

mereday@hotmail.com

Date:

01 Dec 2001

Time:

13:56:50

Comments

Betsey- HEY! Just wanted you to know how much I enjoyed hanging out with Conner on Friday! I noticed his hair cut and thought how all his "baby" looks are disappearing, he has his "BIG" boy looks more and more.(He is so handsome!) You and John do so wonderful with Conner and all of his special needs. I'm just amazed at ya'lls balance,strength and will to do all that you do for Conner. I LOVE YA'LL and let me know if you need an extra hand! love love meredith

Name:

Mommy

Email:

Date:

04 Dec 2001

Time:

00:27:30

Comments

Thanks Meredith. Nothing much going on today. Conner slept a lot of the day and we watched cartoons. We read and sang and snuggled. Typical day in that respect. This week is one of appointments-ENT re-check and two different Orthopedists on the same day and time for Conner and Abby. That's tricky and we really can't reschedule either. Time for sleep.

Name:

Grammy

Email:

Date:

05 Dec 2001

Time:

08:43:39

Comments

I enjoyed seeing all the Christmas cards that Miss Lucie's class made for Conner. What talented young people you all are! I know Conner appreciates having such loving and kind friends who live in a place he's never been. I hope Santa is good to all of you and fulfills your wishes. Abby is back with Conner, so he has his little buddy to make him laugh. I wish you all could meet Conner in person. He would really love all of you. You're lucky to have Miss Lucie for a teacher. She knows what's important to teach. You will profit from your time with her. Thank you for loving Conner, Conner's Grammy

Name:

Mommy

Email:

Date:

05 Dec 2001

Time:

23:56:29

Comments

Well, Conner had his ear appt. yesterday and they are fine. No earaches for now. He went to the orthopedist today and his spine is looking good-no scoliosis or signs of difficulty with it in relation to his lungs. That's good. I guess he's doing the best that a kid as sick as he is can do. He's so loved. Abby was so sweet tonight. She was picking up his floppy arm and flopping his hand back and forth. She said, "We'll teach you how to touch your neck. Aunt Betsey, can we teach him?"

"No Abby. He won't ever be able to move."

Then she went to his mouth."Your teeth! I don't think he likes it when I touch his teeth." She started drawing his face like Grammy does to her and me and like I do Conner. She said, "You're gonna be okay, Conner. You're gonna feel better." And she kissed his cheek. Oh, the sweetness in her high, innocent voice is what made me cry. Conner loved her attention and showed it by telling her, "uh-huh, uh-huh." Their interactions are so touching. Abby knows Conner is sick but doesn't really understand why he can't just BE BETTER. Long day and I'm still sick. Time for bed.

Name:

Grammy

Email:

Date:

06 Dec 2001

Time:

07:45:08

Comments

Betsey, you must take care of yourself. Yesterday was indeed a long day...long and trying. I came home and crashed. But you kept going, trying to keep Conner and Abby comfortable and happy and preparing a nice dinner for company. I'm sure John appreciated all you did to try to make everyone happy yesterday...sometimes it just doesn't matter how much we do, we just can't do it all. So when that happens be sure you do for you and Conner and Abby first and everyone else can pretty much handle their own stuff. There are some things you just can't fix.

Name:

Amanda

Email:

Date:

06 Dec 2001

Time:

11:53:31

Comments

Hi Betsy! I know you have not heard from me in a while, but I have been keeping up with how Conner is doing! I am glad ya'll had a nice Thanksgiving, and I am sure you have a big Christmas lined up as well!! I would love to come and visit over Christmas. Let me know when I can stop by!!

Amanda

Name:

Debbie

Email:

pjf714@netscape.net

Date:

06 Dec 2001

Time:

18:05:07

Comments

Hi Betsey! I just wanted to say hi,see how Conner is doing, and let you know that you can see Payton if you want at oursmaangels.com/payton. I got the idea to do a family journal from you and I think it is wonderful to have the site and be able to communicate this way! It is nice to have everyone keep updated and know how our kids are doing. When I first found oursmaangels, I was amazed at all the kids on the site and how cool it is to have a message board for family and friends and I finally did it for Payton. Also, I don't know if Maria told you but we are going to do the "so many angels" benefit again this year! I was thinking that maybe you could come down for it! Anyway, I think of you and your family often and really do hope that all is good! Love, Debbie

Name:

Mommy

Email:

Date:

07 Dec 2001

Time:

00:15:03

Comments

Amanda, just give me a call. You're welcome anytime.

I was really glad to see Payton's site. Another sma baby who has so many people who love him. I'll be sure to keep up.

Well, John and I took Abby and Conner downtown to see the parade and Santa. We didn't tell them we were going until right before we walked out the door because we never know how the situation will be when its time to leave. Abby was nicely surprised. Santa came over to Conner's wagon and took a picture with Abby and him. Conner loved riding in his wagon looking at the lights and seeing the kids running around and yelling. A lot of nice people came up and spoke to Conner and Abby. Conner had the biggest smile on his face for so long until we stopped rolling him. Then he cried. Time to go! If he kept crying, he'd choke up. He did so well and went a long time without choking. We tried to keep his head real still. Abby was a good girl today. She wanted to pull Conner's wagon at the "festibul." Okay, time for bed.

Name:

Mommy and Aunt

Email:

Date:

10 Dec 2001

Time:

01:53:38

Comments

Conner has had a good weekend. His numbers continue to be good. He's sleeping now, of course, and his pulse rate is dipping really low. That tells me that any signs of an oncoming cold or illness continue to not be present. Usually the first sign of anything out of the ordinary starts with a slight elevation in his pulse rate. He is talking and singing like crazy. I rented The Road to El Dorado for him this weekend and he loved it. Its rare that he finds a new one he likes as well as the old. So, we gotta find it and buy it!!! He talks through it and John and I caught him actually laughing while he was watching it about the third time. Anyway, he is doing well for it being the winter month of December. That is VERY good.

Well, Abby went to Sunday school this morning in her new pretty red dress. She loved it. The Sunday School teacher was telling the story about baby Jesus and Mary and Joseph. When she said the name, Mary, one little girl said, "I'm Mary." Abby always says she is whoever she is watching on tv, especially if its a girl. But when the teacher got to the part about Mary and Joseph naming the baby, Jesus, Abby said, "I'm Jesus!!I'm Jesus!" She had such a good time, and she played so nicely with the kids.

I sat in her room and watched her sleep for a while then went back to Conner's room and sat and watched him sleep. They are both so precious and their hands are so Little!

Name:

Grammy

Email:

Date:

10 Dec 2001

Time:

09:22:18

Comments

I'm laughing...I can just hear Abby now. Yes, she always wants to be the "star". I'm glad she enjoyed Sunday school and dressing up and meeting new people. Today is her Daddy's birthday, so be sure she calls him. I plan to take him to the Macaroni Grill for dinner and meet Billy and his family there. It's a nasty rainy day, but we'll just have to make it a happy one, somehow. Love to you all, Grammy

Name:

Miss Lucie

Email:

Date:

10 Dec 2001

Time:

21:07:44

Comments

Dear Sweet Betsey, I hope you, John and Conner are allright. Sounds like you have your hands full and yet are truly enjoying those sweet little people in your life. I do hope you are taking care of yourself. Remember, you must be rested when Santa comes visiting. I send lots of hugs and kisses to each one of you. Be on the lookout for the UPS man. The kids have been busy again with more cards. They have included Abby also. There will be a tape they made with Christmas wishes and songs they are singing for the Christmas program. Try not to cry too much when you listen. It is really sweet. They are still working on a few parts. It comes from the heart of loving children. We talk about you'all every day and keep track of Conner's day. They always ask how he is doing. Take care...Remember, you are loved. Miss Lucie

Name:

Mommy

Email:

Date:

10 Dec 2001

Time:

23:50:13

Comments

Great! I can't wait to get it. Conner made the class a Christmas card tonight. He drew and pasted a Christmas tree onto a card. I helped just a little. We'll send it tomorrow. My hands are definately full. I'm used to taking care of a child that doesn't move or articulate specific demands repeatedly and loudly. Abby is quite different but since I love her I guess I can take it. We battled all day today with talking back and other four year old girly, attitude stuff. She was on the couch earlier with her hair braided and she was exhausted and I really thought she looked just like I did. She really looked just like me as a kid! Then later Abby was kissing Conner's face all over and she said, "He looks like Daddy." Okay? I guess we all look alike since we're family.

I still don't know what our Christmas schedule is. I guess we need to get a tree or something. The days just fly by. There is not enough time to do anything or we're too tired or unmotivated.

Name:

Grammy

Email:

Date:

11 Dec 2001

Time:

08:40:57

Comments

This has been a difficult time to get that happy feeling. It's hard to remember this year and feel joy. Afterall, we lost two very important people this year...Connie and Robert. They have left a tremendous void in our lives. When I'm standing in the mall working, I sometimes get a glimpse of the top of a head that looks like Robert and I'm flooded with the realization that I'll never see him again. It's hard to smile and act happy when your heart is full of tears. But I try to remember that there are others in my life who have more reason to be sad than I do and I have to try to keep up some kind of happy face and be thankful for the blessings we have. I'm going to get my Christmas decorations out today, so Abby can decorate our tree this weekend. Let me know about whether or not you can make it half way on Friday evening to bring her or if you might possibly come all the way and help with decorating. I know it's hard for you to get away - with or without Conner. Of course, I prefer having Conner, but that's a real strategic maneuver...maybe for Christmas? I love you guys and will find a way to make this season jolly for these little people who know only what they see from us. P.S. don't be too hard on Abby. You were a very contrary and independent little girl...very hard headed. But also like Abby, very sweet and lovable.

Name:

abby

Email:

Date:

11 Dec 2001

Time:

12:05:07

Comments

The only thing that I wanna do is go to the park and do anything that I wanna do. I wanna go to the beach everyday before it gets hotter...The sun or the sky...Grammy knows how to get there.

Conner you are the bestest in the whole world and my life and Aunt Betsey loves you so much. (how sweet!)

Grammy I love you but I never know you are the bestest in the whole world and get to come over to your house and then grammy will say hello and I miss you so much.

Name:

Grammy

Email:

Date:

11 Dec 2001

Time:

18:51:48

Comments

Abby, you are the bestest. You and Conner and Lauren and Drew are the very bestest and your Aunt Betsey, Uncle Billy and your Daddy are ok also. I do love you, but I'm not so sure I know the way the to the beach...it's been a long time since I've seen the ocean and experienced its ability to make me feel free and whole. Maybe that's what I really need. Perhaps, after the holidays I can sneak down for a day or two and see and hear and smell the ocean...Glory, glory!

Name:

me mere

Email:

Date:

17 Dec 2001

Time:

22:20:13

Comments

Hey Betsey- I'm sorry about the other day... I didn't get the message in time! I am here for the next few weeks and I don't have class. So call me again and I promise I'll help you out. How is Conner doing??? Tell him that I miss him and will be coming over to play real soon. Call me Bets! me mere

Name:

Mommy

Email:

Date:

18 Dec 2001

Time:

00:31:24

Comments

Meredith, don't worry. I don't remember when I called! Well, the site has been down, I guess. I was out of town so I didn't know. Miss Lucie, we got all the stuff from the kids. We love all the cards and pictures. The kids even sent Abby cards and pictures!!! I punched holes in the cards and hung them by yarn on the Christmas tree. Conner is doing fine. Abby got a cold somehow but Conner never got it. John and I are amazed at his immune system. He's doing great. He's big! Sunday he fell asleep on me. I put him on me while I was on his floor and he had his bipap on. We both fell asleep and an hour later my tailbone was killing me because he was so heavy on me. He sings from the time he wakes up until he goes to sleep. Precious.

Name:

Grammy

Email:

Date:

18 Dec 2001

Time:

08:02:11

Comments

Hi you guys! I'm off to work. Tomorrow I'll be down with Abby to get her caste off. It'll be a short visit 'cause we're coming back tomorrow night. She's with Lauren and Drew today. She enjoyed her Mommy and Daddy this weekend, but she missed Aunt Betsey and Conner, also. She will really enjoy those cards from the children. I'm sure she'll want to make them a card to send back. We'll see if she can remember how to write with her right hand. Well, it's time to run. See you early tomorrow.

Name:

Mommy

Email:

Date:

19 Dec 2001

Time:

11:51:25

Comments

Well, Conner is still doing fine. His sleeping schedule has gotten a little off-he's about three hours late getting up and going to sleep. He is so funny with his answering yes and no when you ask him something. We used to ask just to be polite and now he's answering. I've learned that he likes to have his back scratched (who doesn't?). He likes his pillow which we hadn't used a whole lot. I've learned other little subtle things about his comfort through his answers, too, and it makes caring for him much more secure.

Abby and Grammy are getting her cast off right now. Abby said she wanted to stay "a couple of days" with Aunt Betsey. I want her to, too. But she'll go visit the other side of her family and all her cousins and then come back for a little while longer, I hope. I love her so much-as much as Conner and Lauren and Drew. That's a lotta love. I'm so lucky!

Anyway, we got a Christmas picture of Casey and Colin, Conner's buddies in Vermont. Casey reminds me so much of Conner. I have another picture of Casey in Conner's room and everyone thinks its Conner. We have another picture of Payton from Ft. Lauderdale on the way. I can't wait to meet you all, Debbie and Payton, when I go back down to Ft. Lauderdale which I hope won't be too long from now. I definately want to come for the fundraiser. There's a fundraiser coming up in Savannah in February. When I find out more I'll put the info. in here for our friends and family if anyone wants to go. Its very nice. There are pictures of the one last year on the site. Connie was so sick and she actually made it. She was in pain that night and felt horrible, I remember. But if you look at the picture of her, she looks beautiful-in her pink top.

Name:

Mommy

Email:

Date:

20 Dec 2001

Time:

11:57:44

Comments

Things are fine. Belinda and I were just talking about how well Conner has been doing. He is such a funny thing. He wouldn't let me sing him to sleep last night. He had to sing with me. So, I told him just to sing me to sleep and off he went with his Tarzan yell singing. I couldn't help but laugh at him. He didn't stop for an hour. Non-stop yelling-oops-singing. That's his method to fight sleep. Defiant-just like me (and Abby). Abby got her cast off and is back visiting with her cousins. I miss her snuggling with me at night and her funny little sleep positions. I can hear Conner talking with Belinda right now. I'm glad he's participating. But she always gets him to respond. Oh, Conner is really enjoying his Christmas tree and seeing his cards on it. Like last year, he looks at the tree then the tv then the tree then tv.

Name:

Auntie Lisa

Email:

Date:

21 Dec 2001

Time:

08:33:16

Comments

Happy Holidays!! Betsey I juat wanted to wish you all a Merry Christmas. I know times are tough especially around the holidays but just remember all the people who love you!! You are doing such an amazing job with Conner, it was so good to hear his precious voice last night. Stay strong (as you always do) & give that sweet sweet baby a big kiss for me. I'll see you next weekend!!:)

Name:

Auntie Reea

Email:

Ree-a@msn.com

Date:

21 Dec 2001

Time:

15:54:53

Comments

Hi Sweet Conner, Betsey, & John. I hope you all have a very MERRY CHRISTMAS and a wonderful New Year!!! I miss you all and am looking forward to coming to the fundraiser again this year. Please do keep us posted on the details. I will keep you posted about the fundraiser down here. I am really looking forward to helping Debbie with the event. I think this year we can double last years donations.

Hugs and kisses for all... Love, Reea

Name:

Sue O'Neill

Email:

caseyandcolinsmom@yahoo.com

Date:

21 Dec 2001

Time:

18:21:57

Comments

Hello Conner! Casey and Colin wanted to wish you and all your family a very merry Christmas. They wish all your dreams will come true. We will have a fun Christmas here in Vermont. There is snow on the ground and flurries every day--very holiday inspiring! Glad you received our photo. We're pretty handsome, huh! Lots of love, Casey and Colin O'Neill

Name:

Miss Lucie

Email:

Date:

22 Dec 2001

Time:

08:50:16

Comments

Dear John, Betsey, and Conner, Thank you so very much for the lovely cards. We got them the last day of school and the children loved looking and touching them. They are on the clip on the board in front of the classroom. I loved Abby's wings. Conner also has a way with cut out colors. Thank you so much. I'm so happy that Conner has been having good days. And such wonderful news at the advancement of his communication abilities. I know how wonderful his therapist must be to get those responses from Conner. I'm sure some days are difficult for him. Betsey, I truly hope things go well for all of you on this holiday. At this time we are looking for SNOW to move in on Christmas Eve and early Christmas morning. I would always call Connie everytime to tell her about how pretty it looked. We always ended up talking too long. Such wonderful memories. Such joyful talks that was always full of lots of laughter. Now it's time to start making the cookies, getting the fixings for the dressing ready and thaw the "BIRD". Mandi, Mark, Kristy, MaKenzie and I wish all of you a very happy and safe holiday with blessings that will give you happiness, peace and contentment. Remember, you are loved. Miss Lucie

Name:

Abby

Email:

Date:

23 Dec 2001

Time:

09:36:53

Comments

"Ilove you Conner. Aunt Betsey you are the famous, famous indian that I never saw before,famous indian magic." Abby.....Well that is what she had to say. Give Conner a big, fat kiss from us. Give the Riggs the love Betsey,from us up here.

Name:

Mommy

Email:

Date:

23 Dec 2001

Time:

23:31:13

Comments

Merry Christmas to all of you, too. We appreciate being loved! I hope it does snow in N.Ga. That would be so pretty. I can't imagine how pretty it must be in Vermont. Maria, we got Conner's package. Thanks so much. We haven't opened it yet, of course, but it arrived.

Today we took Conner to John's grandmother's in Hawkinsville about 2 hours away. He enjoyed visiting with his cousins. He was a little shy at first then he started talking a little more later. He never yells in front of others like he does to the immediate family and the nurses. I think other people think we're lying but I got him on tape the other night! I haven't been feeling very well so I think we're going to just hang out around here tomorrow and I'll make tacos for John for Christmas-he asks for that everytime I tell him I'll make him ANYTHING he wants-anything and luckily he chooses tacos-the easiest thing to make. We're taking Conner to Julie's early Christmas day so we need one day of rest. I am tired and going to bed right now-after I read the latest People magazine. Conner is such a cutie and is still doing good. He's getting kinda fat-a little pudgy. Not really but compared to how he was, he's put on some weight. He is really a very big boy now. I think Connie and my dad are hovering around him. His eyes are shining bright and he laughed a lot earlier when I was munchin' on his arms and cheeks saying I was gonna eat him up. Oh, he is precious!!!

Name:

Email:

Date:

24 Dec 2001

Time:

12:10:59

Comments

by the way Abby, I love being famous indian magic. That's the best way to be.

Name:

Tara

Email:

Date:

24 Dec 2001

Time:

22:56:34

Comments

Merry Christmas Conner! I love you and hope you have a great day tomorrow. Betsey, my gradmother is here and brought a gift for Conner so we would like to come by soon. Things are crazy with the wedding on the 29 but maybe there will be some time good for yall. I will just call. See you soon. Merry Christmas to you and John and the rest of the family. love, Tara

Name:

Debbie

Email:

pjf714@netscape.net

Date:

24 Dec 2001

Time:

23:57:11

Comments

Hi Betsey and Conner and John!! I just wanted to write and say Merry Christmas to you and all of your family and friends!!! I hope you got Paytons' Christmas pic!! Please let me know about your event, because we have some family in Atlanta, and I know they would like to help or be a part of your fundraiser!!!Please give Conner a big kiss for us and we hope he has a blast opening presents tomorrow! Love, Deb

Name:

Mommy

Email:

Date:

26 Dec 2001

Time:

00:46:21

Comments

Thanks Tara and Debbie...Conner had a great Christmas! I carried him into the den and we had his bubble machine going. His eyes were wide. He had helped me wrap presents the night before by securing the tape on each gift and writing the names on the cards. That was cute because while I was holding his hand with the pen in it, I couldn't write the names steady because he was jerking his shoulder back and forth to mimic writing or coloring. So, he was really trying to write when I would say, "okay, right the name." Very cute. Conner enjoyed ripping into his presents but he liked the present Uncle Jim got him the most. He mostly looked at the Christmas tree at our house when he was opening presents but when we got to Uncle Jim's and opened the big, remote bug-his eyes were so wide and he kept smiling. He knew it was a toy just for him. He stayed off of his bipap the entire time we were at Jim's. Remarkable. His cheeks never even turned red although we put him on it in the car and he was asleep before we got home. Oh, he had a great time and seeing him enjoy Christmas made all the depression and pain of it for John and me worth it. Its been tough and I'm glad its over. I hope Conner will continue to do well. I'm at Grammy's for the night and will come home tomorrow. I hadn't planned on spending Christmas with my family but since everyone was here, I just ran up after being with John's family and I'll get back early.

Oh, Lisa, Maria, Alison(your mom probably told you)- Lisa Bennett had her baby Christmas morning! A BOY!!! About 7 lbs. I'm going to get by hopefully before I go back to Statesboro tomorrow. Tara, please come by!

Name:

Grammy

Email:

Date:

27 Dec 2001

Time:

09:53:57

Comments

Christmas was good. If only Conner could have been here, it would have been perfect. Wish I could have had all three of my children together for just a little longer. I really enjoyed playing Cranium with Billy, Jeff and Suzy. What a fun game. It makes you laugh soooooo hard. It must release alot of endorphins or whatever into your system. Laughter has got to be the best medicine. When I think of the those we have lost, I like to think of them laughing. It's very easy with Robert and Connie. They were great laughers! Gary and I are planning to go back to the mountains for New Year's Eve this year. It was so nice last year. We will be staying with Burt and Gail and Elaine and Byron, since Frankie won't be there. Conner, I'll come and see you the first of the year and bring Abby back to stay for awhile. I love you little guy. Take care of Mommy.

Name:

Miss Lucie

Email:

Date:

31 Dec 2001

Time:

13:18:30

Comments

Dear John, Betsey, and Sweet Conner, We are wishing you a very Happy New Year. I continue to pray for each of you. May your upcoming year be blessed with peace, laughter, and good health. I hope Conner continues to do well and has very few health battles to fight. Looks like we are going to get the snow we were promised. Wish all of you could pack and come on up. It is, however, extremely cold. But you must have cold to get the beautiful snow. I guess it's a trade off--as so much in life is. Take real good care of yourself. Thanks for keeping in touch. Give hugs to all and bunny nibbles to Prince Conner. Remember you are loved. Happy New Year!!! Love, Miss Lucie

Name:

Gina

Email:

Date:

01 Jan 2002

Time:

20:50:59

Comments

Betsey & Conner, Happy New Year! You haven't written in a few days...I hope everything is okay with you & Conner. I'm thinking about you guys and wishing you a wonderful year of good things to come your way. Love, Gina

Name:

Grammy

Email:

Date:

02 Jan 2002

Time:

09:19:45

Comments

Conner, guess who's here in my bed sleeping? I had a late night visit from your Mommy. She's getting rested so she can continue her journey to her little boy. The snow is coming so I'll get her in the van soon and send her on her way. I wish you were here with her, so she wouldn't be so anxious to leave and we could just snuggle up by the fireplace and cuddle. I just looked out the window and the snow has started! Not big flakes, just flurries. New Year in the mountains was great as usual. I took lots of pictures. I am praying for a good year in 2002, as we all are. 2001 was a tough one, but we survived. We will continue to survive and look for happiness wherever we can find it. You, my little man, are a source of great love and happiness in all of our lives and we are so thankful that God graced us with your presence. I love you dearly.

Name:

Auntie Reea

Email:

Ree-a@msn.com

Date:

02 Jan 2002

Time:

15:57:02

Comments

Happy New Year!!! I hope you all had a wonderful Christmas and New Year. Betsey, I'm glad you got to go up and be with your family. Somehow Christmas just isn't Christmas without our families. I see the storm is headed your way so please be safe and warm :o). Give Conner a great big snuggle for me. I am looking forward to coming up soon. Any information on the fundraiser?

Love to you all, Reea

Name:

Grammy

Email:

Date:

03 Jan 2002

Time:

09:17:39

Comments

For those of you who keep up with Conner, Betsey, John and Conner had to go over to the hospital last night...Conner is fine...it was because of the storm. Their elecricity is out...hopefully not for long. They tried going to Sonny's house, but his went out also. So the best thing to do was go to the hospital where they could keep Conner's machines going with no fear of interuption. They are all fine. I'm sure Betsey is tired. She barely got home yesterday and had to leave again. She's been reminded that "there's no place like home". If only she could click her heels and be there! Abby didn't go back with her yet. She's still in Demorest with her Mommy and Daddy, making snow balls and having fun in the snow. I'm sure Betsey will fill everyone in when she gets home and back on line. In the meantime, happy new year from all us to all of you. My yard looks like a winter wonderland.

Name:

Miss Lucie

Email:

Lucimck@yahoo.com

Date:

03 Jan 2002

Time:

14:38:50

Comments

Grammy, Thanks so much for making an entry. WE have all been worried. Yes the snow looks wonderful up here also. More on the way this weekend. You should come back to the mountains just to see how beautiful yet paralyzing it is. Thank goodness the kids are allright. I wish Conner could enjoy all this weather from his own home. Maybe they will get the power fixed soon. Please let John, Betsey, and Conner know we are thinking about them. Thanks again. Miss Lucie

Name:

Amy Barnett (Lily type 1, 7 months old)

Email:

pupnamy@aol.com

Date:

03 Jan 2002

Time:

18:32:08

Comments

Just wanted to check in and "visit" with precious Connor. He is so handsome!!! What a cutie you have there...and I pray that this year will bring the cure we are waiting for. Lily sends Connor hugs and kisses.

Name:

Mommy

Email:

Date:

04 Jan 2002

Time:

16:04:18

Comments

Thanks Amy, Miss Lucie, Maria, Grammy... I'm just getting a chance to sit and write. We got home yesterday morning and then I slept. I didn't sleep too well in the hospital. When I got up I started getting things unpacked and cleaned up and Conner resituated. He's going down for a nap now, Miss Lucie, to your voice reading him stories. He is so relaxed. I gave him a good hand massage with his new bath and body works stuff to relax him before I put the tape on. I was so glad the electricity stayed on last night and its sunny today. I think we've moved through the worst. I really hate having to leave especially when its so cold and icy out. I think Conner's catching a little cold. The sma parents reading know the seriousness of "catching a little cold" but we'll try to stay on top of it and keep his lungs clear. He's done so well and continues to stay in a good mood despite all of our aggravations. Well, time to go make chili. Thought it'd be good considering the weather. Thanks for keeping up. We are looking forward to having our girl baby back soon to liven things up for a while.

Name:

Betsey

Email:

Date:

04 Jan 2002

Time:

16:16:03

Comments

Miss Lucie, I don't know if I ever told you how sweet the kids' singing on the tape is. How cute! He's listening right now and talking back to them, then he'll get real quiet and listen and say, "uh-huh" every once in a while. Oh cute, he's singing with them now! Cute. Thank you so much for making the tape! He loves it.

Name:

Mommy

Email:

Date:

05 Jan 2002

Time:

21:52:50

Comments

Conner's had a good day. His little cold seems to be going away. His pulse has been a little high but seems to be going back down. He was just yelling a minute ago because his video was ending then went off. Conner always gets real restless when the ending comes. I hope I got his sleeping schedule back on track. He was up all night the past two nights. Sweet baby.

Abby tomorrow! Let the head-strong, stubborn wars begin. She's too much like me. But she's a baby, so I go in another room, hide and laugh at her when she acts too much like me. Conner's getting his treatment...I must go finish. We start with the nebulizer which gives me a little break in the beginning. OH!! the sma fundraiser in Sav. is on Feb. 2 this year. It is fun and goes to a cure-which is literally on the horizon. They are so close to finding a cure. Money is the barrier.

Name:

Mommy

Email:

Date:

06 Jan 2002

Time:

19:53:32

Comments

Conner's had another good day. He's napping now. His pulse is still a little high and he seems warm but his temp remains normal. Hmmmm. His mood is pretty good though. Not too eventful today. We're just trying to make sure next time the power goes out there is some way to signal GA Power that our house is a priority. We tried to do that before and they just sent us a paper to sign releasing them from responsibility and that wasn't the purpose of the contact so I just dropped it. Anyway, back to the routine tomorrow.