Date:
16 Aug 1999
Time:
00:25:39
Remote User:
 

Comments

Hello Hannah and Stephanie. Just making sure the guestbook works as planned! Beautiful Angel, Hannah! Love, Laura Stants

Date:
16 Aug 1999
Time:
07:29:03
Remote User:

Comments

Hello Hanna. The web page is excellent.

Date:
16 Aug 1999
Time:
22:49:43
Remote User:

Comments

Hannah is so adorable, Stephanie. Thanks for letting me hear her cute little voice on the phone. It was so cute to hear her say, "Hi Brandi." Thanks for being such a good friend to me. Things are crazy at home now. I'll explain in the FSMA guest book and to you later.

Thanks for being so good to me.

Your friend, Brandi Schmidt

Date:
17 Aug 1999
Time:
13:11:11
Remote User:

Comments

Hi Hannah and Stephanie,

Great web page. Hannah is very pretty little girl. I'll talk to you later.

Christine Brooke

Date:
17 Aug 1999
Time:
22:31:52
Remote User:

Comments

Grandpa Winfrey just viewed the site. Hello, Hannah. I love you!

Date:
18 Aug 1999
Time:
18:07:35
Remote User:

Comments

Hi guys! It's great seeing the work you're doing on Hannah's site. I'm going to be asking you for help! Hope you're all well. Hugs to Hannah from me and Casey. Sue

Date:
19 Aug 1999
Time:
12:51:43
Remote User:

Comments

Hi Stephanie and Hannah,

Hannah, you are a beautiful little girl. I can't believe you have grown to be such a big girl. Take care and may the Lord bless you!

Betty Fenstemaker

Date:
19 Aug 1999
Time:
15:15:12
Remote User:

Comments

Dear little Hannah - we are very excited to see your webpage. We love you! Uncle Kip and Aunt Sally and Gabriel

Date:
19 Aug 1999
Time:
15:23:51
Remote User:

Comments

Grandma Winfrey told me that I could contact you on your web site. You are adorable! Gabriel would love to come see you. Perhaps that will happen sometime in the future. Love, Uncle Kip

Date:
09 Oct 1999
Time:
17:43:56
Remote User:

Comments

Happy, Happy 3rd Birthday Hannah! Hope you have a marvelous time at your party! Love and hugs, Your Buddy, Casey

Date:
27 Oct 1999
Time:
00:02:53
Remote User:

Comments

Hannah, You are so precious and beautiful. Pa and Grandma Sally wish you a wonderful third birthday. We know you and Snow White will have a super day. We wish we could have been with you when you rode the horse. Love and kisses. Pa and Grandma Sally

Date:
25 Nov 1999
Time:
16:59:21
Remote User:

Comments

dear Hannah: We are here at your grandma and grandpa's for Thanksgiving dinner. The turkey was delicious. I have seen your pictures and you are a very pretty girl. I saw some of your birthday party and I loved your bonnet cakes. I have been going to call you, think of you often, but I have not called you can tell, huh. When I had my office I had your picture up and I could pray for you each day. I do not have your picture up since I am not in my office, but I pray for you when I go on my walk each day. Was glad to see how you had grown. Do you like your wheelchair? It looks like a nice one. Then who was having the most fun you or dad on that horse ride. By the smile on his face I thought he was enjoying that. Well I better quit. I should get one of these, huh, then I could keep in contact with you better. Have a great holiday season and enjoy all the great Christmas lights. I think they are so pretty.

Date:
25 Nov 1999
Time:
17:02:18
Remote User:

Comments

Hi Hannah, I guess you notice I forgot to sign your note. This is Aunt Donna and Uncle Loren from Pratt. We are at Grandma and Grandpa's house and Uncle Stephen is here along with Kip, Sally, and Gabriel. Then your Great Grandma and Grandpa Nixon. are here to and they all say Hi, and Happy Thanksgiving. Aunt Donna

Date:
09 Dec 1999
Time:
14:39:05
Remote User:

Comments

Hi Stephanie! We just discovered Hannah's Web site and want to say hi. Hannah looks great and your doing a wonderful job. Thanks for being such a caring and loving friend in our SMA family (even from a long distance). You've been a welcome voice in our battles. With Love Gerry, Bobbi and Cole Hampton

Date:
20 Jan 2000
Time:
13:54:55
Remote User:

Comments

Hi Hannah. what a beautiful web site. Your two year old picture is also beautiful. Thank you for sending this address to my e-mail. Love, Andrea

Date:
21 Jan 2000
Time:
22:04:43
Remote User:

Comments

Hi little Hannah! I just made your website picture my wallpaper on my computer cause you're so sweet! Baby Gabe is asleep but he would send you a big hug and a kiss. Love, Sally

Date:
23 Jan 2000
Time:
01:56:33
Remote User:

Comments

Love your pictures, you are a very beautiful little girl. I would love to tell you that my cousin Aaron is 19yrs old, and he has SMA type 2. I will keep you and your family in my prayers. God Bless!!!

Aaron can be reached at Hotwhls501@aol.com

Date:
29 Jan 2000
Time:
23:23:04
Remote User:

Comments

Stephanie, I love all of the new pictures of Hannah. I think of you all often and wonder how Hannah is doing. She looks great. Thanks for sharing her with us. Love, Brandi Schmidt

Date:
14 Feb 2000
Time:
23:29:38
Remote User:

Comments

Happy Valentines Day my sweet angel. I love you more then words can say. MOMMY

Date:
21 Apr 2000
Time:
15:58:24
Remote User:

Comments

Hey there Hannah, Tim & Stephanie..This has got to be the most beautiful web site I have ever seen, (and I have seen quite a few!) It is so great to see that you are trying to educate the common household about this terrible and unfortunate disease. Good luck and take care! Happy Easter Hannah!!! () () =.= ^ Love John, Krys & Kelli

Date:
24 Apr 2000
Time:
20:06:59
Remote User:

Comments

Hello Hannah,

What a beautiful little girl you are! Your grandma and grandpa Winfrey told me about your page. 'hope the Easter Bunny was good to you! We'll be thinking of you, Cousin bob

Date:
24 Apr 2000
Time:
22:01:32
Remote User:

Comments

Dear Hannah: Hello from Derby Kansas. We are Kim & Glenda Martens. We just discovered your lovely web page of pictures and information. Please say thank you to your parents for shareing you with us and the world. You are a very special little girl. You obviously have lots of people who love you very much. You are very lucky! We are good friends of your Grandma and Grandpa Winfrey. We will keep you in our thoughts. Love, Kim & Glenda Martens. E-mail at mib@southwind.net

Date:
04 Jul 2000
Time:
19:06:29
Remote User:

Comments

Hi Hannah, you are a beautiful little girl. We love the website. Tell your mommy hello and we'll have to talk sometime. Best Wishes to you and your family, you are in our prayers. Love, Liz and Kalair (4 months-type 1)

Date:
19 Nov 2000
Time:
12:42:35
Remote User:

Comments

I think what you're trying to accomplish is wonderful and I think you're very courageous to be doing what you're doing. I lost my two sons thirty years ago to this disease and I was led to believe that it was very, very rare. Needless to say there were no web sites to go to then and very little information other than medical descriptions to be found. Having just started to become familiar with the internet it occurred to me to submit the name of this horrible disease and see what came up. I was expecting nothing and found so much thanks to people like you and others who are sharing your lives with others. As bad as it still is, there seems to be so much more being done for these babies now than there was thirty years ago. It heartened me to see that at least there are now some procedures for prolonging what time they do have here with us. Tho reading these sites and looking at all the photos have brought back very painful memories they have brought back good ones too. I don't think that the pain ever goes away, we just learn to live around it. God bless you for your efforts.

Date:
23 Feb 2001
Time:
23:48:57
Remote User:

Comments

good job on the great web site it is very nice.

Date:
09 Apr 2001
Time:
23:04:44
Remote User:

Comments

HELLO HANNAH! WE LOVE YOUR WEBSITE! WE HOPE EVERYTHING IS GOING OK FOR YOU AND YOUR FAMILY. LETS PRAY FOR A CURE NOW!! LOVE, TRACY AND SKYLAR, TYPE 1, 10 MONTHS

Date:
05 Jul 2001
Time:
04:42:45
Remote User:

Comments

the angels r a great touch!!!!! Angels for a little angel

Date:
10 Oct 2001
Time:
08:37:31
Remote User:

Comments

Thank You so much for sharing what you are doing with Hannah, after visiting your web site I told my sister to ask her doctor about Tolorex. My niece is 5 months old and was diagnosed with Type 1 last month. I would love to hear from you about how Hannah is doing, feel free to contact me. Mindi Watson.....My email is Mindi_Watson@yahoo.com

Name:
Kalair
Email:
kalairmyrick@webtv.net
Date:
31 Dec 2001
Time:
14:20:51
Remote User:

Comments

Hi Hannah! My mommy, grandma and I just came to your website to look at the pic of you in your potty chair again since I will be getting one soon. Anyway, I just wanted to say hello, and we love you guys! Tell your mommy we want to see some new pics of you soon, and some of your baby sister also. I hope you had a wonderful Christmas, and I can't wait to finally meet you in person in the new year to come! Love, Kalair Myrick (22 months, SMA type one)

Name:
Amy Barnett mommy to Lily type 1, 7 months old
Email:
pupnamy@aol.com
Date:
09 Jan 2002
Time:
17:46:42
Remote User:

Comments

Stephanie..I have been here many times but never signed the guestbook. I want you to know how much I admire you and Hannah....you are such an inspiration to parents like myself just now on our road with SMA. I love to look at the pictures and all your information has been so helpful with Lily! You are doing a great job and I look forward to meeting you one day soon. I hope you will be there in May (by the way how are you traveling there if you are going?). God Bless and keep up the good work.

Name:
Charlotte
Email:
charlottegp@yahoo.com
Date:
10 Jan 2002
Time:
08:53:10
Remote User:

Comments

Thank God Hannah that you have such precious parents wanting to share dietary information with other parents...I have a fourteen months old boy, magnus, with sma type1/2 -- I hope the two of you can meet one day. I am curious though -- whether the contact email address of this site has changed? Because I tried to write this long email to it..and it bounced back saying the address had 'fatal errors' whatever that means. I would love to hear from you. thanks, and all the best to you and your family, charlotte

Name:
Hannah Price
Email:
these_dreams@hotmail.com
Date:
17 Jan 2002
Time:
05:43:11
Remote User:

Comments

just searching the web for something interesting when i came across my name in big red letters! must all hannah prices grow up to have stunning looks! i speak from personal experience. loadsa love from another hannah price

Name:
Cindy Cox-mom to Danny 19yrs (sma2)
Email:
ccoxcgc@yahoo.com
Date:
16 Mar 2002
Time:
08:13:42 PM -0500

Comments

Thanks so much for all the nutritional info. Danny doesn't need any breathing assistance or feeding tubes, but the info about amino acids, glutamine, etc. really makes sense for him. We're gonna start adjusting diet and supplements right away! Also enjoyed the great pics of Hannah...THANKS!

Name:
Stephanie Wilson (malia's mommy)
Email:
malias_mom@webtv.net
Date:
21 Mar 2002
Time:
11:21:43 PM -0500

Comments

Hannah and family, I just wanted to look at your gorgeous pictures. I hope you are still showing her the ropes. Hannah you are a very specil little girl, and you have the most adoring, caring,parents anyone could ask for. I can't wait to meet you and your mommy and your baby sister!!!!! Well you keep on keepin on lttle Hanah, and remember that I will think of you always. You stay healthy and happy til I get to meet you OK. Talk to you real soon sweetheart... Love your other aunt, Stephanie Wilson

Name:
Sephanie Wilson
Email:
Date:
21 Mar 2002
Time:
11:25:06 PM -0500

Comments

Hannah, I meant showing your baby sister the ropes!!! I know you are though, and I forgot to as you, if you see my precios Malia soon, let her know we miss and love her very much. I pray everynight for her to watch over all our SMA angels still here on earth. Love you, Stephanie

Name:
Stephanie Wilson (Malia's mommy)
Email:
Malias_mom@webtv.net
Date:
29 Mar 2002
Time:
09:07:29 PM -0500

Comments

Hannah, I was just sitting here loking at a picture of you and your baby sister, and I wanted to come and see your site again. I come here often, but I don't always write to you. I want to thank you again for helping our other SMA friend, Kalair.You and your mommy are very special people. Your daddy and sis are also very special. I think of you all the time, and hopefully will see you in May, so you better stay healthy, and be good so that we can play. I will talk to you later Hannah, but keep up the good work, and know you are a very special, loved, little Angel. Love Stephanie

Name:
Skylar (SMA1, 22 mo) and Mommy Tracy too!
Email:
OurLilSky@aol.com
Date:
08 Apr 2002
Time:
04:54:01 PM -0400

Comments

Hi Hannah, Mommy and I were looking at your site and Mommy realized that she hasn't signed it in a year! I am looking forward to meeting you (and your baby sister) and playing dress up with you and Kalair next month. I am so excited! Well I (along with Mommy) wanted to stop by and say "HI".....See you soon, Skylar Elizabeth

Name:
Tracy aned Skylar SMA1 23.5mo
Email:
OurLilSky@aol.com
Date:
20 May 2002
Time:
05:58:54 PM -0400

Comments

Hi Hannah! We are so happy we finally got the chance to meet you! You are an amazing little girl and so funny! You are a true inspiration to all of us. Skylar says that maybe next year she will be more into "Pretty Pretty Princess". Tell your Mommy and Daddy that we said hello and be sure to give your beautiful little sister a hug from us. We love you!

Name:
Elisa
Email:
angelmouse_eli@yahoo.com
Date:
21 May 2002
Time:
10:41:54 AM -0400

Comments

Hi Hannah, you are a brave, beautiful and wonderful little Angel! I wish you all the Best! Take Care, Little Angel Eli™

Name:
Karen Reilly
Email:
Karen_Reilly@us.ibm.com
Date:
25 Jun 2002
Time:
10:28:28 PM -0400

Comments

Hannah - I love your web-site - the pictures are great! Thank you for sharing with us!

Name:
kristy henry
Email:
khenry76@excite.com
Date:
12 Jul 2002
Time:
07:34:01 PM -0400

Comments

Hi Hannah you are a beatiful little girl. I have a nephew that is 6 months old and has sma type 1. He is currently in the hospital fighting pnemonia and doing better. A lot of the information I found useful and I am going to insist that his parents read your web site. You are obviously doing some thing right your daughter is wonderful. The information that you gave on the bipap regarding doctors saying the oxygen levels being normal and pushing a trach are exactly what my nephews doctor is saying so I hope that they will go and read what you have said it can only benefit him. I can't wait to see more on hannah's web site. I would appreciate any information you could give me and my family THANK_YOU kristy henry (805) 526-0786 I live in Simi Valley California if you feel like calling!

Name:
Crista Bairett
Email:
rickandcrista@earthlink.net
Date:
18 Aug 2002
Time:
11:59:54 PM -0400

Comments

This is a wonderful site! Someone recommended that I come here to learn more about the amino acids diet. My little girl is just Hannah's age. Laura is type 2 and starting Kindergarten soon. Best of luck and thanks for the great info!

Name:
Carol
Email:
Starsdreamer@aol.com
Date:
20 Aug 2002
Time:
03:04:16 PM -0400

Comments

Hannah, I have seen your pictures and you look so beautiful. Your mother has taken good care of you by reading and informing herself of all she can do for you. I have a little niece at Miami Children's Hospital. She is only 5 months old. All the doctors are saying that what she seems to have is SMA type 1, however, they are still running tests and they will give us the results in 1-1/2 weeks. Just like you, my niece is sooooo beautiful. Words cannot describe her beauty. I hope and pray to God that she will make it, just as you did and that soon, but very soon, someone will find the CURE for this horrible disease. Hang in there Hannah. We are all pulling for you and all the kids that are affected. With loving thoughts, Carol

Name:
Hannah Williams
Email:
rodneyw@2khiway.net
Date:
29 Sep 2002
Time:
03:13:59 PM -0400

Comments

Hey Hannah,I think you are so cute and you look so sweet.The way I came upon this web site is when me and my friend Stephanie Thompson were sending an E-Mail to a friend and we saved it.I tried to get back to it but instead this came up.I thought it was so cool to have a web site with my name on it and I loved the whole thing.Best wishes to you and I hope that I will meet you some day and by the way I love the song on this web site it's my fravorite song too!May the Lord bless you and keep you safe.GOOD BYE.

Name:
Hannah
Email:
Date:
11 Oct 2002
Time:
08:12:05 AM -0400

Comments

Hello Hannah How bless is that pic? I love Alex Band from The Calling hes BUFF!!! Bye Love Hannah

Name:
CINDY LIGHTFOOT
Email:
FOOT1111@AOL.COM
Date:
02 Dec 2002
Time:
06:12:24 PM -0500

Comments

I SENT A E--MAIL TO YOU ! DEC. 2 2002 JESSE WOULD LIKE TO HAVE HANNAH'S ADDRESS AT HOME SO MY 11 YR.OLD SON CAN HAVE A PEN PAL. HANNAH WOULD YOU LIKE A PEN PAL? I'LL BE PRAYING AND SO WILL JESSE. GOD BLESS YOU! GOD'S SPEED. THIS SONG YOUR PLAYING IS ALSO JESSE'S AND MY SONG. TAKE CRE AND WE'LL REMEMBER YOU IN OUR PRAYERS. CINDY AND JESSE LIGHTFOOT. 42 HILAND PL. ,BENTON ARK. 72015 FOOT1111@AOL.COM

Name:
Sallie, Kalair's grandma
Email:
kalairs-grama@comcast.net
Date:
27 Dec 2002
Time:
10:36:57 AM -0500

Comments

Hi Hannah! I just wanted to drop you a note and congratulate you on your new baby brother! Wow, now you have a baby brother and a baby sister! Things must be busy at your house. You give your Mommy and Daddy a kiss for me please. Much love, Sallie

Name:
Yvonne McDonald
Email:
ian.yvon.mcdonald@clear.net.nz
Date:
25 Jan 2003
Time:
04:09:24 PM -0500

Comments

Thankyou so much for the wonderful information you have shared on your site, which I visited about 6 weeks ago. I am a Homoeopath and have a litte 2year old client with SPA type 2. With the information gained from your site his mother was able to convince the pediatrician to change from pedisure to vivonex,(it has taken some time but it has now happened and he has agreed to give us 2 weeks!). I was wondering if you used any other supplementation with the vivonex? I would be very keen to communicate via email if that is possible at this time, as I realise you will be very busy with a new baby, congratulations. Thank you so much once again, it was certainly so empowering for us to have this very valuable information. Kindest Regards Yvonne Mcdonald

Name:
Lisa Ritchie
Email:
Date:
15 Feb 2003
Time:
02:48:56 AM -0500

Comments

Hi Stephanie and Hannah!! This web site is beautiful. I think the two of you are making such an impact on so many little lives. Keep up the good work. Happy Valentines Day to the Price family! I will keep you in my prayers darling Hannah! Love to you and your mommy-Lisa

Name:
Geneva Couser
Email:
geneva_co@yahoo.com
Date:
25 Feb 2003
Time:
11:42:17 AM -0500

Comments

Thanks, for introducing me to your website. I read the Medical Information and it will help me a lot with my grandson. Your daughter is such a beautiful child and we will add her to our special prayers. I am a Police Officer in Washington, D.C. and I hope to meet you and your family at the SMA conference this year.

Name:
T. BURSOTT
Email:
Date:
04 Mar 2003
Time:
05:10:32 PM -0500

Comments

My heart, thoughts and prayers go out to your entire family. Your daughter's photo show her bright and cheerful personality! Thanks for sharing.

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
March 10, 2003
Time:
03:02 PM

Comments

Hi Hannah, Hope you are doing well and having a great day! My dog, Wyatt, sends you big slobbery doggie kisses. Love your buddy, MJ - http://caringbridge.org/ny/mjpurk/

Name:
MJ
Email:
TWEETYROLL88@AOL.com
Date:
March 15, 2003
Time:
12:18 PM

Comments

Hi Hannah, How was your day? Hope you it was great! Keep smileing and know Wyatt and I love you! Huggles and Kissems, MJ - http://www.our-sma-angels.com/Margaret/

Name:
Janet Kett
Email:
jakett@cybertrade.co.za
Date:
March 17, 2003
Time:
02:53 AM

Comments

My newborn granddaughter Kaylyn Jay Moroney is having tests at the moment for sma we are praying for the result to be negative, but whatever we are to face I know with the help of Jesus and other sufferers we will get through this ordeal.

Name:
MJ
Email:
TWEETYROLL88@AOL.COM
Date:
March 25, 2003
Time:
03:20 PM

Comments

HAPPY SPRING Hannah!!! How is your weather? It's been so nice here and Wyatt gets to go for a walk almost everyday. Hope you can go outside soon and enjoy the warm weather! Have an awesome day! Love, MJ - www.caringbridge.org/ny/mjpurk

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
April 04, 2003
Time:
06:38 PM

Comments

Hey there! Hope you had a great week! I'm doing alright. I'm so happy Spring has 'sprung'. Unfortunately, it's been kinda chilly here, so Wyatt and I haven't been on many walks. But that's ok because, Wyatt enjoys digging in the back yard. He digs and digs to find his favorite toy...ROCKS! If you want to, you can e-mail Wyatt and he'll write you back. He LOVES e-mail so much! His e-mail address is NewBrnCar4wyatt@aol.com . Please feel free to e-mail him anytime! Have a great week and remember, Wyatt loves you and so do I! Love, MJ - http://www.picturetrail.com/gallery/view?username=bshanson68

Name:
Jessica
Email:
teddybear90270@yahoo.com
Date:
April 30, 2003
Time:
04:50 PM

Comments

Hello I just want to say that you have a beautifull baby and I want to tell you that I hope you enjoy every moment with her. I had a niece named Aimee I don't know if you have read about her and I miss her a lot but I knw that she is not suffering no more because she is now in heaven. I am 17 years old and I just wanted to say hello and I also wanted to say that you have a cute baby Bey!!!

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
May 04, 2003
Time:
12:12 PM

Comments

Hello friend! Hope you are doing well and having a great week. I've had a great week! The weather has been very nice here and Wyatt and I have really enjoyed it! What have you been up to? I hope you are feeling well and having a great day! Love your buddy, MJ - http://caringbridge.org/ny/mjpurk/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
May 14, 2003
Time:
05:51 PM

Comments

Hey buddy! How have you been? Hopefully great! If not, feel better right away, okay? I have to go to hospital again soon. :-( So, if you don't hear from me, don't worry, I'll be back really soon!!!! Remember I love you and stay well! Huggles (haha a new word) MJ - www.caringbridge.com/ny/mjpurk

Name:
Kerry
Email:
kerryphegan@hotmail.com
Date:
May 20, 2003
Time:
11:56 AM

Comments

hello mum and little hannah. my cousin has an eight week old baby girl who in the last week has been diagnosed with sma. i have found this sight lovely to visit and the information was great to read. Take very good care kerryxxx

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
June 01, 2003
Time:
01:35 AM

Comments

Hi there! How are ya? Hopefully you are feeling GREAT today! Wyatt says he hopes you are having good weather! Stay strong and well! Love your buddy, MJ - http://www.our-sma-angels.com/Margaret/ NY Hugs and Hope www.hugsandhope.com www.caringbridge.org/ny/mjpurk

Name:
Sherri Ballinger
Email:
sgball2@uky.edu
Date:
June 23, 2003
Time:
01:53 PM

Comments

God bless you and your Princess--Hannah. My prayers will be with you.

Name:
Melissa Albright
Email:
melissa.g.albright@kp.org
Date:
July 04, 2003
Time:
05:33 PM

Comments

These are beautiful of your daugter.

Name:
Katie
Email:
Y2katie11@yahoo.com
Date:
July 08, 2003
Time:
04:27 PM

Comments

Hi Hannah I just want to let you know that I love you very much and that I will always be here for you. And never forget that you a are an angel from God and that you are here to make a diffrence in people's lives and you are making one in mine. I love you for that more than words can show. You are just like one of my little sisters forever. I Love you somuch Katie your big sis!

Name:
Email:
Date:
July 18, 2003
Time:
01:37 AM

Comments

Hananh, I am so glad I got the chance to meet you and your family. You are such a special little girl who means a lot to me. I am so glad you are still goig strong. Thank you for being Kalair's new best frien. And tell your momy that I am thinking of you always.. Keep your brother and and sister in line ad always remember that you have one more family in KC that loves you. Love Malis's mommy

Name:
Pa and Grandma Sally
Email:
winfreys@yahoo.com
Date:
August 16, 2003
Time:
09:40 PM

Comments

Hannah, I've been checking out your lastest pictures on this website. Your are getting prettier and more special everyday. Not only did I see your pictures here, but I also saw you with Kalair on her website. Pa and I miss you all the time and are sorry we do not get to see you as much as we would like. Can you believe your 7th birthday is coming up? Bunches of love and kisses for you from us both. Pa and Grandma Sally

Name:
Barbara A. Price
Email:
baprice29@yahoo.com
Date:
August 20, 2003
Time:
03:53 PM

Comments

I lost my first grandchild, a boy, to SMA almost 5 1/2 year ago at the age of 1 month. It still hurts. Cherish Hannah....she's truly an angel!

Name:
Vicky Burnett
Email:
vbrunett426@yahoo.com
Date:
August 26, 2003
Time:
12:05 PM

Comments

I am Ethan James Burnett's grandma. Ethan is 3 years old and type 1 SMA. Hannah, you are a cutie. xox

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
September 07, 2003
Time:
06:48 PM

Comments

Hi Hannah: Sorry I haven't visited you in awhile. I was on vacation and I finally got my computer back (they had to fix it). I am back in school and working hard...I had to come home early Friday cuz I was sick. Hope you are doing ok. TTYL Love, MJ www.caringbridge.org/ny/mjpurk

Name:
Angela Wissman
Email:
tori1@charter.net
Date:
September 19, 2003
Time:
07:20 PM

Comments

I enjoyed Hannah's site. I am the mother of a 6 year old girl with type2. We are very blessed to be parents to these children. God bless.

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
September 22, 2003
Time:
01:29 AM

Comments

Hello, How are you today? How is your weekend going? I am home sick and Wyatt is keeping me company, snuggling in bed with me. If you check out my caringbridge website, you can see a picture of Wyatt and I snuggling in bed. Have a good day. Love, MJ www.caringbridge.org/ny/mjpurk http://www.our-sma-angels.com/Margaret/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
September 29, 2003
Time:
10:43 AM

Comments

Hey! How are you doing? I'm still sick, UGH! Wyatt is very cuddly lately and loves to snuggle with me. I wish Wyatt could come and snuggle with you right now! Hope you are having a great day! Love MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
October 12, 2003
Time:
12:46 AM

Comments

Hi! How've you been? I'm finally am feeling better! I started some new medicines that really help! Wyatt is really sad today. My dad vacuumed the couch so Wyatt can't sit or lay on it. Oh well, guess he'll just have to snuggle with me! Hope you are doing and feeling GREAT! Love and hugs, MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
October 25, 2003
Time:
10:19 AM

Comments

Hi! How are you? I still have a cold...:( Wyatt has been very good and cuddly! He actually has a new website! If you want check it out go to, www.freeweb.com/mj88 . He'll have a guest book soon so check back and let him know you have visited! Hugs to you, MJ & Wyatt www.caringbridge.org/ny/mjpurk www.our-sma-angels.com/Margaret

Name:
Skylar and Tracy
Email:
ourlilsky@aol.com
Date:
October 27, 2003
Time:
10:11 PM

Comments

HAPPY 7th BIRTHDAY HANNAH!! Hope you had a GREAT day. (((hugs))) from Pa

Name:
Skylar and Tracy
Email:
ourlilsky@aol.com
Date:
October 27, 2003
Time:
10:11 PM

Comments

HAPPY 7th BIRTHDAY HANNAH!! Hope you had a GREAT day. (((hugs))) from Pa

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
November 03, 2003
Time:
09:51 AM

Comments

Hi! How are you? How was your Halloween? Mine was pretty boring. We didn't have many trick-or-treaters here. Wyatt didn't enjoy Halloween very much...He barked and barked at everybody who came. Wyatt says I ruv yoou...That means I love you...I hope your doing well! Hugs, MJ & Wyatt http://www.caringbridge.com/ny/mjpurk PS. Sorry to hear about your toys!!! I have lots of stuff to send to you!!!!!! I love you!!!

Name:
April harris
Email:
sh6Hrr@aol.com
Date:
November 22, 2003
Time:
07:09 PM

Comments

Name:
April Harris
Email:
sh6Hrr@aol.com
Date:
November 22, 2003
Time:
07:15 PM

Comments

Hannah's Family, I to pray for you and your family durring the days to come. I came across Hannahs site at the starlight page. I to lost our little girl in Aug of 2003. Her and Hannah had the same wheelchair.She was only 2.5 . and miss her so much to just hold her it feel naked not to be pushing the chair and the threapy she ws my life and took my soul with her when she left. I know My Mikayla has a special angel friend to run with like they have never done here. May God Bless you well keep you in our prayers Warmly April www.caringbridge.org/tn/kayla

Name:
Julianne
Email:
julianne_999@hotmail.com
Date:
December 02, 2003
Time:
10:52 PM

Comments

Hello Hannah and Stephanie, Can I firstly say what a beautiful girl hannah is. My 6 month old son Conor was diagnosed with SMA Type 1 at 3 months old. The doctors here, in the U.K. told us to take Conor home and make him comfortable as he would not see his first birthday. We werent going to sit back and wait for that to happen so we got on the internet and found out about Dr. Bach in New Jersey. We flew over to see him and he prescribed a Bi-PAP for Conor. When we got back home we had to buy one as the doctors over here do not think they are beneficial to our children. We now have the Bi-PAP but are having trouble getting Conor used to it. When we put it on him he screams and holds his breath. If you or anyone else has any tips on how to introduce Conor to it, please let me know ASAP, as we all know how vital it is to be used straight away. Thankyou very much Julianne, Phil and baby Conor

Name:
Ashley
Email:
jnaw28@msn.com
Date:
December 11, 2003
Time:
10:12 PM

Comments

Hi to all the Prices, Thank you so much for all your help with Christian going to the hospital. I could really see God at work through you guys. I know it wasn't easy to pack everyone up and drive to Orlando, but I can't thank you all enough. YOu are amazing people. Have a beautiful Christmas! Ashley Ward

Name:
Ashley
Email:
jnaw28@msn.com
Date:
December 11, 2003
Time:
10:12 PM

Comments

Hi to all the Prices, Thank you so much for all your help with Christian going to the hospital. I could really see God at work through you guys. I know it wasn't easy to pack everyone up and drive to Orlando, but I can't thank you all enough. YOu are amazing people. Have a beautiful Christmas! Ashley Ward

Name:
Mr.s Namra saad
Email:
saadm73@hotmail.com
Date:
December 15, 2003
Time:
03:16 PM

Comments

Hi I think what you'v done for your little angle is great and with that you'v become a great source of information for others to.Thank you.

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
January 24, 2004
Time:
12:14 PM

Comments

Hi! Sorry I haven't written in awhile, I've been sick and not feeling up to writing. It is so cold here. It snowed and snowed here today! Wyatt loved playing in the snow. He took his favorite toy (his tennis ball) out with him. He played and played for hours! Anyway, I hope you are doing well and it isn't too cold by you. Big hugs from me & Wyatt! Love MJ - http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.com/ny/mjpurk "A life spent making mistakes is not only more honorable, but more useful than a life spent doing nothing." -George Bernard Shaw

Name:
Kris
Email:
Date:
February 08, 2004
Time:
04:09 AM

Comments

Hi! Please keep working on your site - it's so informative and helpful. The page on nutrition is tremndous. It really means a lot to us who are looking for info. Best wishes to pretty Hannah!

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
February 29, 2004
Time:
01:11 AM

Comments

Hi! Happy Leap year!! Its hard to believe its almost March. I've still been home sick, no school for me. :( I have been doing homework but not much (shame on me). Wyatt sends you big slobbery dog kisses from NY. Hope you're doing well! Love, MJ http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.com/ny/mjpurk/ MJ "Just living isn't enough," said the butterfly, "One must have freedom, sunshine and a little flower." -Hans Christian Anderson

Name:
Hannah
Email:
hannibella@hotmail.com
Date:
March 17, 2004
Time:
04:41 AM

Comments

My names Hannah too!!!!!!!!!!!!!!!!!!!!!!!!!! Please contact me, lots and lots of love Hannah. Andy says hello!

Name:
Hannah
Email:
hannibella@hotmail.com
Date:
March 17, 2004
Time:
06:50 AM

Comments

Hello, my names Hannah too!!!!!!!!!!!!!!!!!!!!

Name:
Hannah
Email:
hannibella@hotmail.com
Date:
March 17, 2004
Time:
06:51 AM

Comments

Hello, my names Hannah too!!!!!!!!!!!!!!!!!!!!

Name:
Hanna
Email:
hannaprice@onetel.com
Date:
May 06, 2004
Time:
03:10 AM

Comments

Hello Hannah and her family! I live in England, and was encouraged by a colleague to look my own name up on the internet. Little did I know what I would find! I don't know much about SMA, other than what I have read here on your website. I would like to say what a brave, beautiful girl you are, Hanna, and that I wish you all the best in your many years to come. Mum and Dad, you are doing a brilliant job. You will be in our prayers always. Yours sincerely, Hanna Price

Name:
Mary Rose Tully
Email:
mrtully@mindspring.com
Date:
May 25, 2004
Time:
08:24 PM

Comments

Hi Stephanie and Tim! It is so gratifying to see Hannah growing and know we at the milk bank had a little part in that. Mary

Name:
Dee Buckley
Email:
gbuckley
Date:
May 27, 2004
Time:
08:10 AM

Comments

She is beautiful! Thanks for recognizing the milk bank. We know how important the breastmilk is, but it is so much more powerful coming from someone who knows firsthand. We were so happy to help her and you and your family are doing such a great job. Thanks for sharing....Dee Buckley RN, IBCLC, co-cordinator of the milk bank in Raleigh, NC.

Name:
Nicole Parent
Email:
gkparent@yahoo.com
Date:
July 09, 2004
Time:
03:53 PM

Comments

I had fun visiting you today. I hope to see you soon. I have some software to share with you. I love you!!! Love, Nicole :)

Name:
Laura smith
Email:
Date:
July 22, 2004
Time:
09:51 AM

Comments

Hi Hannah! Hope you get better soon! I love the music on your webpage, you look like a very beautiful girl on the pictures. God bless you. Love form laura. xxxx

Name:
nimra
Email:
saadm73@hotmail.com
Date:
August 27, 2004
Time:
05:49 PM

Comments

dearest and lovely Hannah i`m writting all the way from Pakistan and i wanted to tell you that i love you and pray for you every day i tell how brave you are to my 2yr old son who has sandhoff disease and is fighting the same battle...may you and your family be blessed with all the strenght in the world,love nimra.

Name:
nimra
Email:
saadm73@hotmail.com
Date:
August 27, 2004
Time:
06:12 PM

Comments

Hey Hannah its me again just wanted to say please reply back as omar (my 2yr old son)is anxiously waiting for your reply you are his hero and mine to we as parents are lucky to have you as our kids, it does take time to realize that at first but actually God sends down angels so that they can gather and spread all the love that there is and when they complete thier job, God takes them back.All my love and prayers for all the angels out there.

Name:
Janet
Email:
jakett@cybertrade.co.za
Date:
October 19, 2004
Time:
02:34 AM

Comments

We lost our first precious granddaughter to a muscle disorder 18months ago July this year we were blessed to have another beautiful granddaughter

Name:
Tracy and Skylar
Email:
ourlilsky@aol.com
Date:
October 30, 2004
Time:
02:17 PM

Comments

AHHHHH!!! I haven't really been on the computer lately and I just realized I slipped on your birthday! I am SOO sorry. HAPPY BIRTHDAY HANNAH! You are such an amazing girl. I hope you had a great day. You are a true inspiration to all the kids and to me also I love playing games with you and I would do it anytime. Although you are much better than me. We love you ... you big 8 year old. Love, Tracy and Skylar

Name:
Kim and Charlie
Email:
ksykora@sbcglobal.net
Date:
December 30, 2004
Time:
10:49 PM

Comments

Thanks for sharing all your wonderful information. Hannah is a beautiful young girl and I hope that Charlie can stay as healthy as you've kept Hannah. Blessings and hugs - Kim Sykora mom to Charlie SMA Type I 16 mths old.

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
January 17, 2005
Time:
02:29 AM

Comments

Hi!!!! Sorry I haven't signed your guest book in awhile. I hope you are doing ok and are enjoying the winter so far. I have a new website! It is <a href="http://www.mjthesmaqueen.com/"> MJ - The SMA Queen</a>....If you want to check it out. If you don't see your website on my friends page (and would like to) e-mail me, and I will put you up ASAP. I hope you have a <img src="http://www.mjthesmaqueen.com/valmiscani.gif">! and remember, <img src="http://www.mjthesmaqueen.com/valani3.gif"> MJ

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
February 02, 2005
Time:
11:42 AM

Comments

Hi !!!! <img src="http://www.mjthesmaqueen.com/image006.gif"> Mickey and I wanted to say HAPPY FEBRUARY!!!! I hope you are doing well today. Big hugs to you and your family! Love, <img src="http://www.mjthesmaqueen.com/MJButterfly.gif"> http://www.caringbridge.com/ny/mjpurk - My Journal http://www.our-sma-angels.com/Margaret/ - My Original Website http://www.mjthesmaqueen.com/ - My New Website

Name:
Terry Cortes
Email:
t_cortes@sbcglobal.net
Date:
February 06, 2005
Time:
11:18 AM

Comments

Enjoyed this website tremendously; thank you for being a resource to me. Rob is SMA type 1, 6 1/2 years old. We are looking to change his nutrition/diet and regulate his bowels and I was referred to your website; Hannah is beautiful:) Know you have started me on thinking about how to better help Rob:) After I do some homework, I might contact you; thank you for sharing your story and all of your insights. Have a blessed day.

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
February 14, 2005
Time:
11:59 AM

Comments

<img src="http://www.mjthesmaqueen.com/polarbear_val.gif"> I hope you have a very happy Valentine's Day! Love, MJ

Name:
Jeanna
Email:
red542000@aol.com
Date:
February 22, 2005
Time:
12:49 PM

Comments

Hannah: I come here often because I keep looking and reading about the amino acid diet. We need new pictures of you on here!! You are eight years old lets see how great you look. You have a great Mommy that has been helping me with Elizabeth's diet. Come visit Elizabeth's site and sign her guest book. www.our-sma-angels.com/elizabeth/

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
March 08, 2005
Time:
10:48 AM

Comments

Hi: I know that I am early, but I wanted to wish you and your family a <img src="http://pic17.picturetrail.com/VOL815/2822478/6549091/88274216.jpg"> & <img src="http://pic17.picturetrail.com/VOL815/2822478/6549091/88272883.jpg"> I hope you enjoy your Spring!! Love, <a href="http://www.mjthesmaqueen.com/"> MJ </a>

Name:
Tracy Lynn Morin
Email:
morinfamily@sympatico .ca
Date:
March 16, 2005
Time:
08:22 PM

Comments

My heart goes out to your entire family. I came upon your site by looking up acidophilous because I pregnant for my fourth child and I heard that this pill/vitamin may help treat my infection. Hannah is a beautiful little girl and I will pray for her and you to live long fulfilled lives. There is no doubt that she has made you and your husband stronger people throughout these tough times. Keep your faith in God and he will make sure that no matter what happens to your little girl here on our small planet, all of you will some day enjoy the happiness and joy that you deserve. My thoughts and prayers are with you. Sincerely, Tracy Lynn

Name:
marie
Email:
mariesk8s@aol.com
Date:
March 27, 2005
Time:
02:18 AM

Comments

i am a nursing student doing research in my junior year and am studying the benefits of the bipap. thank you so much for sharing such personal information on the subject and giving insite to yet another benefit!

Name:
ian
Email:
ian155@msn.com
Date:
April 10, 2005
Time:
03:37 AM

Comments

hi it is ian

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
April 12, 2005
Time:
10:37 AM

Comments

Hi my friend!! Did you know that <img src="http://www.mjthesmaqueen.com/snags/ItsSpring-jumpingFrog.gif">??? I hope that you had a very happy Easter! I got to go to Ohio and spend time with my family and friends. I put pictures up on my website so <a href="http://www3.caringbridge.org/ny/mjpurk/photo.htm"> check it out </a>, if you want to. I'm so glad that <img src="http://www.mjthesmaqueen.com/snags/srungturtle.gif"> Love and warm Spring hugs, <a href="http://www3.caringbridge.org/ny/mjpurk/"> MJ </a>

Name:
Kalair Myrick
Email:
kalairsmom@yahoo.com
Date:
April 17, 2005
Time:
10:25 PM

Comments

Hi Hannah, my mommy and I just stopped by to see if you had any recent pics on here and to tell you hello! I would love to see a picture of you if you have any new ones online. My mommy made me a caringbridge journal. It is at http://www2.caringbridge.org/ks/princesskalair/ if you would like to see a recent picture of me (on the photo gallery page). There are pictures of my new baby brother on there too, only 59 more days until I get to meet him!! I miss you and I love you, tell Eliza and Ian I said hello and tell your mommy and daddy that my mommy says hello too! One of these days I will get to come to Florida for my Make a Wish trip, maybe I can come visit your family then too! I hope you are having a great day, I love you...Princess Kalair

Name:
heather dunham
Email:
motherlyisis@aol.com
Date:
May 04, 2005
Time:
02:29 AM

Comments

Hello my name is Heather my son is Kaige and he is 2 this month he has type one SMA. I just started Kaige on the AA diet on April 23rd. He is also on a study for Stanford with Dr. Wang . He was the first child on this study and is almost finished with it. (In 2 months) He has never had a problem with the drug and has blood drawn everytime we go . This time his test came back a little abnormal. Enought to have blood drawn again. Which I still need to do. The ALT (SGPT) and AST(SGOT) came back high. This is showing high enzymes in the blood.. Well that is what I was told. Do you think this has to do with the diet? What should I do? I need to have blood drawn in a few days sooner then later. So do you think it is the diet or maybe something else. When I do take him in to have him tested should he fast for the 6 hours?? You will be a big help. I am just learning all of this . And I want to thank you too. I printed up your article and brought it to Kaige's g-I doc. and too the Dietician. And they gave me a RX for tolerex and for alot of the vitamins ect. Very helpful!!!I was so glad that I had it on hand to do so. Made everything go so smooth. They also want to give Kaige a30 min breathing test to see how many calories he is burning. Will this be good information to have or will it not apply to him cause he has SMA1.

Name:
Charlie's Mom (Kim S)
Email:
charlies-mom@our-sma-angels.com
Date:
July 19, 2005
Time:
04:49 PM

Comments

Hi Hannah and Steph -- Just wanted to stop by and look at your photos. It was so nice meeting your Mommy at the conference, Hannah. I'm sorry that we didn't get to meet you too. Hugs - Charlie, Kim & Lily

Name:
April
Email:
rainbow_kids_04@yahoo.com
Date:
July 29, 2005
Time:
01:12 AM

Comments

Hello i wanted to say Hanna is such a beautiful Child a gift from the lord i am touched by her i think i have meet you before or at least came on hannas photo or site before My niece kylee died at 3 months old in 2003 so i know run a ministry for sick children with prayer partners around the world we have a site if u wish to see it let me no May God bless your hanna and you to In Christ April marie

Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
September 10, 2005
Time:
04:57 PM

Comments

Hi Friends: I'm SO sorry that it has been so long since I have visited you! I had a very busy summer ,including visits to Ohio, New Jersey, Connecticut, and Virginia Beach. How was your summer? I hope you are feeling well and if you are not, GET BETTER SOON! I will be back soon and will try to sign at least once a month! My banana, Annie Bannie, wanted to say hello to you! Big hugs, MJ

Name:
MJ
Email:
TWEETYROL88@aol.com
Date:
December 12, 2005
Time:
12:15 PM

Comments

Hello! I thought I would share this beautiful website with you and your family. <a href="http://www.wisehearts.com/CmsMF.htm">Merry Christmas to My Friend!</a> Wishing you and yours a wonderful week! <img src="http://www.mjthesmaqueen.com/schlittencujo.gif"> MJ http://www.caringbridge.com/ny/mjpurk

Name:
Amanda
Email:
Date:
January 20, 2006
Time:
08:01 PM

Comments

hey hannah this is amanda i know you don't know we but i was just on google and i saw this picture and i thought you were really cute so wanted to sign it i am 11 years old i hope you have a good weekend it is Friday! your SOOOOO cute! sorry if you dont like poeple that dont know you sign your guest book but i had to! ~*~Amanda n her friend becca~*~ becca says hey! P.S i have a BEST FRIEND with the name of Hannah

Name:
Email:
Date:
December 15, 2006
Time:
10:57 PM

Comments

Hannah, Sara and I love your website. Your mommy is so smart. You are special to have such a good mommy. Sara wanted to let you know that she has the same butterfly dress as you and Sara wears glasses too! Sara's new glasses are transitional and it makes it soo much easier to go out in the sun. We will keep you and all the SMA kids in our hearts this season so that we can have healthy happy holidays! LOL~ *Christy & Sara*