|
RJ's Story |
Ronald Williams Jr., our RJ, was born
February 17, 2003 and died at home in his sleep on June 9, 2003.
Before he was born Ron, his dad, was SO excited to finally get his
boy! Ron's birthday is February 19th so RJ was ALMOST born on his b
day! I got induced because I couldn't wait any more! 7 lbs 6 ozs and
19 inches! TONS of brown hair :)
He was such a happy, smiley baby with such big brown eyes! He loved
pooh bear and so many people loved him. At 2 months of age he was
rushed to St. Francis Emergency Room with pneumonia...he was
transferred to Mary Bridge Children's Hospital where he was in
Pediatric Intensive Care Unit (PICU) for a month...they ran many
tests and was finally diagnosed with Spinal Muscular Atrophy (SMA)...we
were heart broken. I wish we were given the info we have now and I
wish I had internet than so I could have has all the support from
the SMA community that I have with Alli... because of lack of
knowledge we were steered so wrong...he only had morphine and
oxygen...at his funeral we played "In the Arms of the Angels" by
Sarah McLaughlin. At his funeral, his big sister, Kayla read a
story she wrote about him. He is buried in federal way WA in Gethsemene Catholic cemetery in the baby section...
|
|
Please be Patient while
RJ's Song, |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
