Commentswhat a beautiful little girl! We love you Amanda! Mimi& Pops
CommentsWe love all of you. You are the greatest parents. We are proud to be your parents.
CommentsHi Scott and Amy and Amanda and Jake! I hope you are doing well and that you had a good Passover. love, Stewart
CommentsAmy and Scott, Amanda is the most beautiful little girl and you two have been given God's gift of love. Amy, your story is so touching and deeply moving. When you say Amanda was beautiful as a newborn you are so right...I see your mom in her pretty face. I wish the best for you all, you two, both sets of wonderful grandparents, great grandparents and Jake. With our strongest wishes for you, Phyllis and Norm P.S. Can you post a picture of Amanda and Jake?
CommentsAmanda is a beautiful girl. I think about you guys everyday. I am sorry that I am not in Birmingham to be with you. Love, Michael
CommentsAmanda is such a jewel-eyed beauty just like her Mamma. Scott and Amy, I am constantly awestruck by your strength. Those babies are so lucky to have you as parents. Love, Wayne, Abby and Stella
CommentsShe is beautiful. Please know we are thinking about you. Our thoughts and prayers are with you.
CommentsAmanda is so adorable, and we look forward to spending more time with you this summer. Love, Alison, Jon, Alec & Leigh
CommentsWe continue to be both inspired by your strength & touched by the love you all have; please know that we think about you every day. Love, Darren & Susan
CommentsOurlove and prayers are with you all each and every day. Miss you and hope to see you soon. Love Gary and Kathy
CommentsDear Amy, Scott, Jake, & Amanda, Amanda is a beautiful girl and you have such a wonderful family! With two children almost the same age as your two children, you are in our hearts and minds often. We'd love to see you when we are in Birmingham. Love, The Sokol Family
CommentsDear Amy & Scott, I just got through reading your touching letter. Thank you for sharing your thoughts.It was so special & you are a special family. Amanda is beautiful. Our prayers are with you & your family. Love, Sandy & Kenny
CommentsAmy, Scott, Jake & Amanda, The pictures of Amanda are absolutely adorable. We don't get to see Amanda often, so thank you for sharing your special moments with us. We send our love. Jen, Andy, Sam & Annie Rotenstreich
CommentsAmy, Scott, Jake & Amanda: What precious pictures of little Amanda. We think of you so often and admire the sharing of your feelings with those who love and care about you. Love, Judy & Jimmy
CommentsAmy & Scott, We have known the two of you since the day that you were born. We are so proud of the wonderful adults that you have become. We think of you and your family every day and pray for your continued strength and well-being for all. Thank you for sharing your story. Love, Joy & Robert
CommentsAmy & Scott, We've known the two of you since the day you were born. We are so proud of the wonderful adults that you have become. We pray each day for continued strength and for well-being for all. Thank you for sharing your story. Love, Joy & Robert
CommentsThe web site is great! Amanda is such a beautiful girl and a special blessing to everyone who gets to meet her. Our prayers are always with you.
Commentswe love you!
CommentsThank you so much for sharing this with us. You all are constantly in our thoughts and our hearts. Your strength has been an inspiration to us. We love you!
CommentsHI Amy, Amanda is so beautiful. I was so happy to see her. I hope she is doing well. Take care, Dana Swanson
CommentsStay strong. We are constantly thinking about you and your family. Love, Harriett and Don
CommentsScott and Amy, good to hear from you. I love Amanda's web page! Amy, I almost cried at "Amanda's Story." Scott, you and Amanda could win a photo contest with that picture of her in your arms. Your description of Amanda's care will be so helpful to new families, those who are in need of comfort and information. Tell "little pea" that we miss her; it's a poignantly good thing to miss you guys, since I spend an average of 40 hrs/week of my life @ Children's. Keep up the great work! I'll call u soon. David Smith
CommentsWe just finally got the chance to see Amanda's website. What a touching tribute to your beautiful daughter. We hope that she is feeling well these days, and we very much appreciate your thoughts while we go through our own difficulties. We hope to see Amanda, Jake, and you two soon. Love Evan and Ann.
CommentsOur thoughts and prayers are with you.
Commentsthanks for allowing us,whom love you all so much and have know you since you were born, to share in these very precious moments. jerry and i thank you and send all of our love and admiration to you.
CommentsWe're so proud of Amy and Scott. You have taken such good care of Amanda and still given Jake the attention he needs. You have such a great sense of responsibility for young people. Uncle Mort and I love you all very much.
CommentsAmanda is BEAUTIFUL !!!! We have her and her family in our thoughts all the time. Yoni and Anna say special prayers for her in Temple.
Commentsour thoughts are with you and your family love eileen and steve
CommentsYour web site is very informative at the same time being very personal. What special parents you are to share Amanda's life with others.
CommentsJan and I visited your web page today with the help of your Dad. He located the address. Amanda is so beautiful...seems to me she looks like the early pictures we saw of Jake. Keep up your messages so we will be able to share your good days/nights and your bad days/nights. Believe me, we think of you, Steve and Amanda much more than you could possible dream. Jan or I speak to your Dad during each week to check on 'the whole family', the Steins and the Sterns-Sterns.
CommentsAmy, You and your family are an inspiration to us all. Amanda is so very beautiful. May you continue to cherish each day you spend together.All my love and support. Leslie
CommentsMay you continue to have the courage and strength to live your complicated lives in harmony, with love and patience for all around you.
CommentsThank you so much for sharing the website with us. We keep you in our prayers and are thankful for the wonderful witness you are giving to God's grace and goodness. You are both an inspiration to us. Amanda is beautiful.
CommentsScott and Amy-That child is truly beautiful! You are such wonderful people and amazing parents. We admire you both and your strength so much and think about you almost daily. Your story is deep, meaningful and extremely touching. You lives have truly been touched by an angel. With love, Jodi, David, Daniel, Kaylee and Abbey.
CommentsHi. We are Sue Harris's mother and father. You met her at Childrens Hospital in Birmingham. Great Web Page. Keep up the good work, and also, keep in good spirits. Remember, no matter how bleak things may seem, there is always someone, somewhere, that has it worse. As the saying goes, "I felt sorry for my self for having no shoes, till I met a man with no feet." As Sue and Randy can attest to, it really isn't the end of the world. We feel so sorry for you and your family, and will keep you in our prayers. ===== Russ & Betty
Commentsshe's beautiful.god bless you all.
CommentsYour daughter is a very beautiful girl. I hope she continues to do well and God bless you both. Kim Storms
CommentsLove to all of you. You have two beautiful children, and they have two wonderful warm, and loving parents. I wish there was more we could say or do for you. We're here if you need us.Love, Susan
CommentsAmy and Scott: What a touching, beautiful website... such a beautiful daughter and her two amazing parents. Thank you for sharing. love, debbie
CommentsOur thoughts and prayers are with you,your family and Amanda. You are so brave.
CommentsHi Amy, Scott, Jake and Amanda, Hope all is well! What a great site! I was honored and blessed to have been the nurse of a sweet, beautiful, and precious angel named Taylor. It is almost 10 months since she passed away and there isnt a day that goes by that I dont think of her. Even though we were not related by blood, Taylor and I had a bond that will never be broken. I miss her deeply. She was my shining light for over two years. Thank you for sharing your story and your family. Take care and God Bless! Taylor's best bud, Peg Bailey
CommentsYou are such a beautiful family. We try to funnel our prayers,strength and love to you regularly. Since we are long distance, hopefully this is of some help. We wish we lived closer so we could do more. Thank you, Amanda for teaching us such a meaningful life lesson. All our love!
CommentsHi Amy, Scott, Jake, and Amanda- The pictures are beautiful and illustrate perfectly the love that you have for each other and for Amanda. She positively glows in every picture and it is easy to see how special she is. Warren, Josh and I keep you all in our hearts--- Love, Mindy
CommentsAmy, Scott, Jake, and Amanda- Thank you so much for sharing a part of Amanda with those of us who live far away but keep you close in our hearts always. She's just beautiful and she glows with all the love that you give her. It is easy to see just how special she is. Warren and Josh join me in sending our love to all four of you- Mindy
CommentsScott & Amy What a beautiful girl you guys have. My thoughts and my family's thoughts are with you. Your positive outlook is a true inspiration.
CommentsAmy and Scott- What can I say? Thank you for sending me the website address. You two are an inspiration to all who know you. I look forward to spending some time with y'all, as do Natalie and Abraham. Rabbi Scott
CommentsI can only say that I will pray for Amanda and her loving family. Although I cannot begin to relate to your pain, I do know that God will not abandon his people and that he has a perfect will for our lives. May HE bless through healing, strength and understanding.
CommentsAmy, My name is Lisa Hewitt Self. Your mom was my third and my fourth grade teacher. I babysat for you when you were just a little girl. Amanda is simply beautiful! She looks just like her mom. I was so moved when I read Amanda's story. She is indeed an angel. I admire the courage and dedication that you show day in and day out.I will put your family on our prayer list because we both know that God is still in the miracle business.
CommentsThe web site is wonderful. Amanda is a beauty! You are in our thoughts. I'd love to meet Amanda and Jake when you are visiting Mimi. Kathy
CommentsGreat website; thanks for sharing your story
CommentsAmy and Scott - you have a beautiful little girl; I am impressed with your courage. thanks for sharing your story.
CommentsAmanda, you are such a pretty baby, and you have a wonderful smile. Thank you for allowing me to meet you and your family ..they are very lucky to have such a beautiful baby. :-)
CommentsScott, Amy, Jake, Amanda (and Oliver, too!): We loved visiting you recently and look forward to spending more time with you very soon (we will make a weekend of it!). Amanda is very special and we think of her often. Jake is a cutie (love the long, blond locks!) and think Oliver is quite a character! We love you guys very much! ...Matt & Julie
CommentsThank you for sharing your private and precious moments with strangers like myself. Its amazing to see such courage I hope I have as much courage as alot of the families on this site. Thank you for you page on Amanda's care I have copied it so I know what products can be used to help my 5 month old girl to enjoy every second she is with us.
CommentsScott and Amy, What a humbling and sobering experience to read your story. No one ever knows what will happen in our lives, 'tomorrow'. The love and courage you posess is evident in "Amanda's story" as well as the pictures. Wasn't she lucky that God sent her to you! We send our love and prayers to you often.......I hope you feel them. Ray and Marcia
CommentsI FINELY FOUND YOUR WEBSITE AND I ENJOYED SEEING YOUR BUNDLE OF JOY. BOBBIE
CommentsI AM AMAZED AT YOUR BEAUTIFUL FAMILY, YOUR STRENGTH AND LOVE AND COURAGE. I HAVE KNOWN SCOTT FOR SEVERAL YEARS THROUGH WORK AND KNOW WHAT A GREAT PERSON HE IS AND HOW MUCH HE LOVES HIS BEAUTIFUL FAMILY. GOD HAS GREAT PURPOSE FOR US ALL, BUT HE PICKS OUT THE VERY SPECIAL PEOPLE FOR THINGS LIKE THIS. TO SHOW THE WORLD HIS CHILDREN AND WHAT LOVE REALLY IS. THANK YOU FOR SHARING YOUR BEAUTIFUL FAMILY WITH ME, YOU ARE A VERY WONDERFUL FAMILY!
Commentswe love you amanda
CommentsThank you for sharing Amanda's story.I am truly blessed to be a part of Amanda'a life. She is truly a beautiful baby, and then there's Jake. He is just prescious. Jake is very fortunate to have the loving parents that Amy and Scott are. I will always love the Stein's and I keep them in my thoughts and prayers everyday. Amanda will always be my very special angel.
Commentsamanda is absolutely beautiful - i just wanted you to know that - jenn - brit-leigh's mom
CommentsDear Amy & Scott, We just got your website address from Riv Husid and glad to have this chance to add our love and good wishes to you and your family. We were so touched by Amanda's story. She is so beautiful and you are such exceptional parents. Our prayers are with you. Riv and Herb Husid send their love. Love, Marian & Myron Radwin
CommentsAmy, I haven't seen you in so long, and when I asked Leslie about you, she told me about Amanda. I have been thinking of you every day. I'm not surprised at how beautiful Amanda is, but I do have to say, she is breathtakingly beautiful. Your words and your strength inspire me. I am so sad that you have had to weather such pain and sorrow, and I'm devastated to find out about Amanda's prognosis. I'm also happy to know you have had such a precious daughter to love, and after reading your story, I'm happy to hear that your family bond has strengthened. Please know you and your family are in my thoughts and prayers. Much love, Staci
CommentsAs always, Amanda is in our nightly prayers. She is such a beautiful little girl with very special parents. God bless you all. Sarah
Commentshi kids, hope you are having a good night. give my most beautiful girl a special kiss for me. we love you all more than we can ever tell you. mom
CommentsAmy & Scott, Our thoughts and prayers are with you, Amanda, Jake and your families. My oldest daughter is also named Amanda! Thanks Scott for sending this information to me so we can can better understand SMA. Regards, Johnny Lee
CommentsWe love and adore all of you.
CommentsHi Amy and Scott. Just wanted you to know I was thinking about you, Amanda, and Jake. love,debbie
Commentsyour web site is beautiful but of course you already know that because of the sweet little angel on every page. she is gorgeous. jessica and jason greene
CommentsI really liked your web site. My favorite part is Amanda's pictures,she is a precious child.My favorite picture is the one with her sunglasses on. I realize as mortal men no one can no the reasons for God's decisions,but if this has brought you and your family closer together and to God, something good has come from a tragic situation. Take care and God bless you and your family Greg
CommentsI just loved your whole website. Amanda is such a cutie pie. You guys are so blessed to have her, as she is blessed to have all of you. You can tell how much you all love her, & how much she loves all of you. I wish all of you, the best luck in the world. I also want to tell you how much I loved all of the pictures.
CommentsHi Amanda, Jake,Mom and DAd, I think your courage and strength lie in each others love. I'll pray that you continue to have that strength and commitment to one another. There is nothing that compares to a parants love for their child. Amanda is a beautiful little girl and I hope she continues to bring you joy. Treasure each moment.
CommentsThe pictures are beautiful. Thank you for sharing them with us. You are in our thoughts and prayers each day. Love, Gary and Susan Goldstein
CommentsYour mom told us your story and I want to add you and your family to a prayer group at St. Luke's Episcopal Church. Judge and I know your parents and think the world of them. We were both distressed to hear about Amanda, and hope that you may experience some miracle!! They happen. She is a beautiful child and I pray that you all have many wonderful times with her and that you will have the strength, patience and tenacity to see you through whatever may come. Lovingly, Pat Green
CommentsAmy, Thank you for sharing your story about Amanda with me at the "Picture This" session. Your strength is amazing. Amanda is truly blessed to have you as her mom!
CommentsAmy, Amanda is beautiful, and your story was wonderful. I will keep you and your family in my prayers. I wish I had the chance to talk with you more while you were at the hospital. Take care and may God bless you all. Love Mandy Sharpe Kiersten's Mother #556
CommentsWhat A beautiful child!!! Lots of Love to Amanda, Jake, Scott and Amy......and OLIVER the Great!
CommentsDear Amy and Scott, I'm your cousin in Washington. (Your Grandma Ethel and my mother, Libbye, were sisters) I was so touched to visit your website, read Amanda's and your story, and see those beautiful pictures. Thankyou for being out there. Amanda, Amy, Scott and Jake will be in my thoughts and prayers this New Year. Love, Your cousins: Marc, Ronnie, Kalli, David
CommentsI loved the pitcure and the web site. I will mark it in my favorites places. Our thoughts are with you. virginia
CommentsShe's beautiful!! We can see why all of our nurses love her so! Thanks for sharing your stories and pictures with us.
CommentsSept.23th What a beautiful week of memories we have itched in our mind and heart! We ALL went to Orange Beach Amanda and Jake had a wonderful time. The grandparents thank you,Amy and Scott, for making the trip so very wonderful! Mimi and Pops
CommentsDear Amy, Scott, Jake, Amanda and Oliver, Mom and I just completed your web-site and want to tell you how beautiful and insprirational your story and photos are; there are no words to express the depth of strength, courage and commitment you have made to your daughter. She is beautiful and happy in all of her photographs and I know she continues to amaze and inspire you all.
CommentsGOD BLESS YOU AND YOUR FAMILY !!!
CommentsYour web page is wonderfull. Amanda is a very beutiful baby. My prayers are with you and all the SMA angles out there.
Commentsi finally found your website and am touched by every word and picture. amanda looks so much like you, amy! everytime i see any or all of you i want you each to know that you are an inspiration to everyone. i am thankful for will and jake bring our friendship togaher and not a day goes by that you are not in our thoughts and prayers. thanks for inviting us into your story.
CommentsAmanda is absolutely beautiful! It seems these children who have to deal with so much so soon have this inner beauty that just shines through. It's really an amazing phenomenon.
Commentsthinking of you and thankful for the opportunity to hear your story and view the photos of your beautiful family. your in our thoughts. Love, Kim, Todd, Kyle and Nikki Nadler
Commentshi..hope you are having a good night. miss you all today. kiss my most beautiful girl for me. i love you. mom.
Commentsamanda you are truely a beautiful girl with a loving and exceptional family - wonderful mom, dad and a big brother - you are so very fortunate to be so very loved - you have the sweetest little face and like my brittany very expressive eyes that are full of life - i wish that i could meet you in person, but this site will have to do - i wish you and your family a wonderful holiday season and i hope i continue to hear that you are still smiling :) with much love - jenn - brittany leigh's mommy
CommentsMy family and I send you our prayers, and please know that you have often been in our thoughts throughout the past year. Your children are beautiful little blessings, and they are so fortunate to have you and Scott as parents. Your story is truly an inspiration to us all. Much love, Helen
CommentsWe just wanted to wish your Mommie,Daddy,Jake, Olivier, and you a Happy New Year! You and your family have given us so many memories during the year 2000. We look forward to the year 2001! Love you all, Mimi & Pops
Commentsi am so grateful that i had a chance to meet amanda and jakes's parents,amy and scott last month. thankyou for sharing your story with me. your love and wisdom are truly inspiring. and your story comes at a critical time for me and my family since my sister and brother-in-law are having a baby boy next month who has serious life-threatening heart problems. love to amanda,jake, scott and amy from pam and max
CommentsJust thought I would let you know that my name is Amanda Stein too! hehe! (I'm 14)
CommentsYour daughter is beautiful ... you two are absolutely amazing. Please write a book. It will help others more than you might ever imagine. I'd like your permission to place a link to your site on ours. People need to know how parents are supposed to be ... You make me very proud. Love, Russ Fine (Erik * Matt's dad)
CommentsHi Amanda! Its your first cousin Maddie. I just wanted to let you know that your Aunt Jamie and Uncle Stephen talk about you all the time. They tell me how special you are. I was very happy I got a chance to meet you. I look forward to playing with you soon. Love, Maddie
CommentsHey Amanda. It was so good to see you and Jake. You are such a beautiful litte girl with the most beautiful brown eyes, not to mention your gorgeous long hair. Jake is pretty hansome himself. I just want to wish you a very happy birthday and to let you know that I think about you and your family every day. I love you and your family very much.
CommentsAmanda is beautiful- thanking you for sharing your daughter and your touching story. We will keep you in our prayers. Hope Oliver is doing well. See you soon
CommentsDear Beloved Parents, It is so beautiful to see parents like yourselves. Your daughter must be happy as a lark and bright as a tulip. God Bless you eternally, Grace Adams
CommentsHi, My Name is Amanda Stein and I am 11 years old. I went to this web site to see if any thing about me was in there. I wanted to know what state you live in and maybe we can visit each other. I also wanted to know if her middle name is lynne. If it is I will have to crack up because we have the same name.I have 2 loving parents also that are named Jim and Dianne.Mabey we cn see each other some time. Well, Got to go read the rest of your webpage. Mabey I'll make one so you can see what I look like.Anyway,Email me at Mandiee7 , coolmandolin , or Mandiee1211. I hava Im's on the Mandiee7, but you never know which one I'm going to be on because I'm a typer. sincerly, Amanda Stein
CommentsYour site for your little girl is beautiful. I am sorry I don't know what a SMA baby is, but nonetheless, your baby is gorgeous! I, too, am bereaving my 2 babies who died (I had 3 have 1), my son of SIDS 5 years ago when he was almost 8 months old, and my daughter 3 years ago this coming October of anencephaly. If you ever need a shoulder to cry on from someone who's "been there," I am here for you. I am so sorry to see you've lost your little baby, but I am here if you should ever need a friend.
CommentsHi Amy and Scott, My Mom is visiting me in Jacksonville and we have just found your website. You have a beautiful family, and Amanda is absolutely adorable. What you have done for her is remarkable...something that only parents can understand. You are in my thoughts and prayers, as I ask about you often through my Mom. - Paige Leader-Wajsman
CommentsDear Amy and Scott, I have just become a "computer maven". The pictures of the Stein family are so wonderful. Amanda is sooooooo gorgeous.There is no mistaking who her mamma is. Sorry Scott. Know that you are in our thoughts and prayers. Happy New Year!!!! Love, Eileen & Edward
CommentsAmy, I just looked at Amanda's pictures. She is such a cutie!!
CommentsThe web site is inspiring. Sorry, I cannot find the appropriate words to express my appreciation for the demonstration of love that is so evident. Do not hesitate to lean on your friends for strength.
Commentslove ya
CommentsThis is a wonderful website... thanks for telling us about it today, and thanks for sharing such beautiful pictures of your children. You are a special family and I have enjoyed getting to know you all.
CommentsAmanda, Amy, Scott, Jake, Melissa and Oliver, Your support and inspiration for us was priceless. Thank you for opening your lives and home to us. See you soon. The Smiths
CommentsJust thinking of you. All our love. Jodi, David, Daniel & KayKay
CommentsYour daughter is beautiful and such an inspiration! I have a 7 month old nephew that is SMA 1 also and going in on August 14 for his G-tube. I am trying to educate myself so that I may help him and his family in his journey. Thank-you for sharing your daughter with people like me. GOD BLESS you and your family!
CommentsHI, MY NAME IS BRANDON AND I'M 2 YRS OLD. MOMMY SAYS WE CAN BE FRIENDS AND WRITE LETTERS TO EACH OTHER IF YOU WANT TO- IM NOT SICK LIKE YOU BUT I WOULD LIKE TO BE YOUR FRIEND. I LOKE BLUES CLUES AND BARNEY. DO YOU? WELL WRITE ME BACK I CANT WAIT TO TALK TO YOU MY NEW PLAYMATE BRANDON HUDGKIN
CommentsGod Bless Amanda and your family. You will all be in my prayers! Carol
CommentsHi, came upon the site by mistake. You have a beautiful daughter and should be very proud..those eyes! She has a namesake in Sydney, Australia. Is her middle name 'Jane'? All the best. Amanda
CommentsI came across your web site by accident--I was searching for information on Miralax, which my pediatrician has just put my 4 month old daughter on. But only a sentence or two into Amanda's story I was in tears... the weight and the pain your family must bear is unimaginable, and my heart breaks for you. I can't fathom what it must be like to know you'll eventually lose your baby, and I find myself desperately wanting this little girl I've never met to LIVE! I wish that there was something I could do to comfort you, but I don't know what, so I'll pray for you. And know that your child has impacted the life of a complete stranger, who will go home tonight and spend a little extra snuggle time with her own angel. God bless you all, and kiss Amanda for me. Sincerely, Wendy
CommentsHello My name is Jenna, and I am inspired by Amanda's story, and her smile. I was born with a rare severe genetic bone disease, which the doctors say is life threatening, and so far I am the only one that has had a rare type of this disease and i am still surviving it, and I am going to continue to keep fighting. I suffer in chronic pain 24/7 and I know what it is like to be sick all the time, but knowing that I am a hero and an inspiration to others around me keeps me going. I believe that Amanda is a hero as well, and that Amanda, as well as myself and others were brought into this world to inspire and teach others all about life. We all have a special gift, and a great smile! My webpage is: http://www.matmice.com/home/fighterandchampion Jenna
CommentsScott, What a beautiful baby! Amanda is a lucky girl to have such loving parents as you both. Your family's story is touching and courageous. It was great to see pictures of you all. I hope to see you face to face again sometime here soon to catch up on old times. Your Friend and Fraternity Brother, Jay.
CommentsI am 14 years old and my name is also Amanda Stein. I typed my name in search, and your website came up. I read your story, and it is so moving. G-d has blessed you with that special little girl.
CommentsHey! She lookz so cute! I bet it iz werid having a Amanda Stein sign your book...I was looking up my own name to see if there was anything on me on the interent. I ran into this and the funny thing is I am a second child too. Well have a great life Amanda...Peace out
CommentsHello Amanda, it is so nice to see pictures of you and read your story. You are a brave, old soul who came here to teach your parents, brother and sister, and all that you meet such important things about love and it's true meaning. Your eyes just gleam of knowledge and are so beautiful and deep. We don't know you, but we met your Dad and Jake recently and got to hear about you, and see the intense love in your father's eyes when he spoke of you and told us about you. We were blessed with a child too who came to teach us about the meaning of love, of what's important, of how to live every day as if it's the only one you get. He did not get to stay with us as long as you have been able to stay with your family though, and we miss him so much. I know you understand this. I am so glad I got to hear about you and will send you my thoughts every day. Take care little one, Jenifer Cohn
CommentsScott & Amy, I found your web site doing an internet search. I was a bit amazed to see Scott in one of the pictures and realize this was someone in my family. I just wanted to let you know that David and I will keep you close in our thoughts and prayers. Tina
CommentsHi Amy, Scott, Jake, & Amanda, I just happened to find your web site, and I am in tears. I have an 18 month old daughter, so I know the love you feel for your children. Your strength and perseverance in such difficult times is amazing. My heart and prayers go out to you. I hope your new year is filled with lots of love, hope, and happiness. Barbara (Koplan) McCarthy
CommentsI just met Amanda for the first time today and she has already inspired me. She is a reminder to me that love, family and friends are really what "living" is.
CommentsHi Amy. I came on here to see how things were going. I can't find an update. :( When you see this, give me a quick email and let me know what's going on. I think of Amanda often.
CommentsAmy and Scott, I just met your brother, Kerry and sister in law, Ellen, in Highlands at Half-Mile Farm. I am Conner Riggs grandmother. He died three years ago on April 19, 2002. He would have been three on July 13. He was born with sma 1 and our story was pretty much like yours and other sma families. My daughter, Betsey, was a very brave, loving, selfless mother, as are all the others. We adored our little man and miss him very much. It was very difficult to let him go, but our memories are strong and will remain with us. God Bless you all and give your little angel a kiss for me. Kerry and Ellen, hope you are enjoying your trip. It's a beautiful place with good people. Did you guys make it up Whiteside Mountain?
Commentsguess who is writing to my gorgeous girl. i'm so glad you came to visit me yesterday. i always love when you get to come over because we all get to be together.i love you and hope you had a good day. summer is almost here and jake and melissa will be home with you. i know you will miss Mrs. waud. she is a great teacher. love to mom and dad. memaw Name: CommentsMay the Lord bless and keep you, May He make His face shine upon you and be gracious unto you, May He lift His countenance upon you and give you peace. In Jesus' Name. Amen Name: Lisa CommentsI came across your beautiful daughter's story while visiting another child's site. As a mom I am always overwhelmed by stories like yours, but touched at the same time. May Amanda continue to thrive until a cure is finally found and she can one day run and play like a care free child. I will keep her in my thoughts during my pledge for "Jerry's Kids" on Labor Day. 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