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to Billy's Guestbook!!
CommentsHi Billy! It's only a few weeks til Thanks Giving! We can't wait to spend it with you and Mommy and Daddy! We miss you all so much! We think of you guys all the time! You are never far from our hearts! We have a lot of story reading to catch up on! LOVE YOU ALL! Grama and Grampa (One day these spammers will learn no-one pays any attention to their junk... >:D...)
CommentsHello Billy and Family I am a interactive technology student with the Open University in the UK. I am just about to finish my honours degree in Computing and IT. I have just been on the SmartNav web site and I got your link from there. This is because I am doing an assignment on assistive technologies. I thought it would be polite to say 'hi' and I think that you and your family are a real inspiration and I am really impressed. Keep up with the good work. You are a great teacher Billy! Kind regards from the UK Gail Bemrose Manchester North West United Kingdom Name:
CommentsHad a silly Billy thought today! Just dropped in to say HI! Billy, all of my brothers and nephews are Billys too. Silly Billy! That is what I call them. So please give Mommy and Dad a big HUG! That will be the best present you can ever give them. Tell them you love them the bestest of all.
CommentsBilly; Your grandma Spiegel is my Internet friend. She has been sending me pictures of you since you were tiny. My, how you have grown and what a nice looking young man you are.
CommentsHi sweetie, Today is your 6th birthday--it's unreal and where did the time fly by to? The achievements you have made in the past years are miraculous and there are many more milestones to conquer in the future..We love you pumpkin...hopefully we can get down to see you,your Mommy & Daddy..keep on keeping on--
CommentsH A P P Y B I R T H D A Y B I L L Y !!!! We love you so much Billy! Happy 6th Birthday to you! Grama and Grampa are so very happy to be able to spend this special day with you and Mommy and Daddy! Big hugs and kisses to you! We've had a wonderful day with you! We should stay here, because we heard it was only 8 degree's in New York!! O noes! Brrrrr! Love you big guy! GmaP and GpaC
CommentsMERRY! MERRY! CHRISTMAS! BILLY! LISA! BILL! The magical day has arrived! With all the lights and gifts and love in the air, who could help but smile! We love you Billy and know our lives are better because you! And this is the best gift of all! Have a wonderful day and enjoy all the presents and fun! WE'RE LOVING YOU! Grama and Grampa * *** ***** ******* (ps. pay no attention to that "Great Aunt Beck" ! She's silly and a name caller! But she loves you!)
CommentsHey Billy!!!! Merry Christmas to you and your Mommy and Daddy ! I'm here at your Grama's and let me tell you .... she's a crazy one !!!!!! The music on your website must have drove her over the edge !!! She went berzerk and grabbed the computer away from me ! That music is TOO LOUD !!!!! But I got it back to write a note to you . We're thinking of you up here in chilly New York and wishing we could be there with you there... right now !!!! Merry Merry Christmas to you !!!!! Love and Kisses From Your Great Aunt Beck and your rotten Grama !!! he he he he he he he !!!!
CommentsHi Billy! Lisa! and Bill! Christmas is getting close! I agree with Grama Spiegel! I'm sure you've been the best boy and Santa will surprise you with so many presents it will take you two days to open them all! I've been trying to put a christmas tree up, but the lights are crooked and so is the tree! It will take me some time I guess! It's still in the 40's up here, so I guess we'll have a green Christmas, like you! I'm sending love, hugs and kisses through the air to you! We love you all so much and miss you! Grama and Grampa too!!
CommentsHI sweetie, Gramma loves you so much and I want to wish you the best Christmas ever. I am sure you have been a good boy so Santa should come with his bag packed full..X's & O's to our handsome boy.Love and many smooches from Grandpa & Gramma Spiegel
CommentsHi Billy! And Lisa! And Bill!, Well some time has gone by and fall has set in pretty good up here. Strangely, it's been in the 60's here this week! I miss you so much, I think about you all the time. My heart and arms ache for you. I often wake up at night thinking of all of you. How's school going this year? You're so smart you are probably telling Miss K what to teach you! I love you little boy! Yes! Grampa does too! :) Stay strong little family, Love you all, Grama and Grampa
CommentsHi Billy! Lisa! Bill! And all your cats and Ellie dog! We've been thinking about you! Are you getting ready for Halloween? It's pumpkin time again already! Up here it's been raining for days! Good thing it isn't cold enough to turn to snow! O my, we'd have feet of it! Just wanted to drop in and let you know how often we think of you all, and how very much we love you and wish we could be with you every day. Sending hugs and kisses and my whole heart...Love, Grama and Grampa
CommentsHi Billy and family! Love your site, I would love to talk about how to make a switch "doo-dah" for our Princess Courtney as well as the other switch toys. Linda Rosas, proud Grandma to Princess Courtney Brooke(Special Made Angel,t-1) and her little sister Kendall Taylor (SMA free). www.our-sma-angels.com/CourtneyBrooke/
CommentsMy little guy! I just love the new site makeover! What a great job! I'm missing you so much, in so many ways! How's that Miss Kate teacher doing this year? I know how much you like her! The trees are changing up here, and they are talking about snow! Yikes! I'm thinking of you all the time, and missing you so much. I'm so glad you visit me in my dreams... Grama LOVES this boy! Yes, Grampa too! We always hold you close to our hearts...All of you..
CommentsHi Billy, How are you? I hope you, your parents and pets are doing well. I'm Barbara and I'm writing you from Italy. I found your site by mistake and I couldn't resist and view all your photos... you are really a sweet cute little boy. I wish I wasn't so far away from you, I would have loved to meet you. I have no words to say, I think you are very lucky to have such wonderful parents, they really really love you. I would love to hear from you and to know that you are doing well. If you like something from Italy I'll be very happy to send it to you. Just make a wish... (of course I can not afford a real Ferrari) =P Lot of love, your new friend Barbara =)
CommentsHi Billy! I love your new website makeover! it's nice! How are you and your family? we're doing great. Kyle is about to have his second birthday! We can't wait! Kyle waves HI!
CommentsGood to see you Billie and keep up the good work i can see it is keeping you looking like a handsome young man........Love you......Cousin Marty
CommentsHi Lisa, What a great site! I try to check in once in a while to see how Billy is doing. My son Isaac has type I and was also born in March of 2001. I saw the picture of the contraption you made so Billy could click better with his Micro lite switch. We use that switch too and I'm curious as to what the holder is made of. Thanks for your help. Deb
CommentsBeautiful job on the site but then it has to be for a most beautiful, happy,joyful little boy.. May God be by his side while we pray for a cure..AND get it.. Love you little munchkin..
CommentsHi Billy, It's a very nice site you have, I love the pictures, you're very handsome! Lots of prayers, hugs an kisses to you and your family. I am from Belgium. My grandson Kelsey*, he passed away november 29th last year (sma type 1). He was 14 months "young". Today, 16 september he would become 2 years old. there is going to be a party, here on earth, but also in heaven! Kelsey*'s uncle made a great birthday page! You can throw all kinds of presents to the clouds... all of "Bumba". Bumba is a little clown, very famous in belgium!! and Kelsey* is his biggest fan! Maybe you would like to come and visit the birthday page? and perhaps throw a little present to the clouds? Kelsey*'d love that... and his family too!!!!! Take www.kelsey.be and click on the number 2 and after you filled all in you can admire all the thrown presents on the play-cloud. There is an english version you know. I'm pretty sure that my son will play together with all the other little angels up there! I hope kelsey* will be in your thoughts today on 16th september... we still miss our little (grand) son so much... but we're so glad we can do this for him!! THANKS!!!! Love and many hugs to everyone! xxx Yvette, grandma to Kelseyke* www.kelsey.be
CommentsNow if this isn't a site geared for my boy then I don't know what is! I love it and it shows so much of his personality! Thank you so much Kim, it's AWESOME!! Billy is going to flip out when he sees it! We love you guys and can't wait to see all ya'll...did I say that right Amy? :)
CommentsVERY COOL Billy! We LOVE your site, it looks awesome! Lily's very first movie was Cars so she really liked the cars theme....we love you and can't wait to see you this fall with your girlfriend Skyler.....hugs to you and your momma and daddy!
CommentsHey, Billy!!!! How ARE you???!! We can't WAIT to see you...and keep praying that everything will work out A-Okay, so that we can make the trip to visit you in October!! Skyler is SO excited!! Welp...just wanted to check in and say "hi" and that I hope that you and your Mom & Dad are happy with the site. Please let them know if there is anything you want me to change...I KNOW you will, big boy ;) Lots of love and kisses, Kim
CommentsHey, BIG GUY! I can't WAIT to see you in a few weeks!! Casey and I have been looking at your website today, and Casey keeps telling me how SMART you are...and I keep telling her that I KNOW that already! You make me smile, Billy...each and every time Mommy tells me one of your stories...and every time I look at your picture :) Mommy loves you for so many reasons...but she says that she loves you MOST of all, because you make me smile, you make me happy...and that makes her heart happy to know that :) Okay, so I'll go now...but I will see you in a few weeks and we can have so much fun, playing together, in person!! Lots of love and smooches, Skylie
CommentsHi Billy! Grama LOVES this boy! Yes, Grampa does too! I've been looking over your site here again, and see many friends stopped in and signed your guest book! Isn't that fun? Here it is August already! Soon you'll be 5 1/2years old! You are a big boy now! What a party you'll be having in September down there!! I know it'll be a perfect visit!! Up here in New York, it's been raining a lot and the rivers are full! So are the waterfalls! Hope that doesn't mean we'll have a lot of snow this year! I'll send you lots of snowballs if we do!! Love you little guy!! Grama and Grampa
CommentsHI billy! I enjoyed your site and I think is going to get a computer gadget too! What fun it looks like you have on it!
CommentsHey to my buddy Billy! I can't wait to see you again next month and I know you will be occupied with your girlfriend Skyler BUT remember ME your friend LILY! We (mommy and I) love you guys! Hope you are surviving the heat and humidity, I hate it because I like going outside to play but it is to hot and I end up being miserable, hope it is nice and cool when we come to visit you next month! Hugs and kisses! Love, Lily Katie
CommentsYou have a very beautiful little boy, very strong and smart.
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CommentsI just wanted to tell Billy what a wonderful and beautiful boy he is. I also wanted to tell his mommy and daddy what wonderful people they are!
CommentsYOU HAVE A REAL SWEET HEART ON YOUR HANDS ENJOY HIM AS LONG AS THE GOOD LORD ALLOWS MY PRAYERS ARE WITH U
CommentsGreat going Billy,you are doing just fine.Keep up the good work, and when Dad turns his back give him a good kick right where he sits. ;-) I hope to see you one day soon.
CommentsHey Pumpkin! It's about time mommy left you a note on here. Just want to tell you how much I love you! You make your mommy and daddy smile everyday buddy! You are the smartest, sweetest, silliest guy I know and there is nothing in this world we wouldn't do for you. You are going to be 5 in just one more week, can you believe it? It seems like only yesterday we were holding a tiny little angel in our arms...you're growing up so fast big boy. I love you!!
CommentsHi! Can you believe it's almost Valentine's Day? I can't! I hope you and your family have a wonderful week.
CommentsWe just stopped by to see Billy's web-site!! Elizabeth loves disney too!! Hope you are feeling great Billy. Grandma visited Elizabeth's web-site!! God Bless you little guy!! Hugs, Jeanna and Elizabeth
CommentsHope your Valentine's Day is full of fun! Love, MJ
CommentsHi Billy! Grama LOVES this Boy! Just wanted you to know I'm always thinking of you, and it won't be long now before you have your 5th birthday! Grama, and Grampa too, will be down to stay with you and celebrate your special day! I can hardly wait! Love you little guy! And always holding you in my heart! See ya soon! Love, Grama and Grampa
CommentsHello There! I'm sorry I haven't stopped by in awhile. I've been busy with homework. What have you been up to? I hope you are doing well and have a great week.
CommentsHello! I thought I would share this beautiful website with you and your family. Merry Christmas to My Friend! Wishing you and yours a wonderful week!
CommentsHello again, I wanted to wish you and your family (a bit early) very happy and healthy holiday season. I'll be back again very soon! Happy, warm hugs coming your way!
CommentsHi! Just wanted to wish you an your family a very happy Thanksgiving! Have a great day and I hope you enjoy yourself with your family! If you send me a picture of you and your family or just you, I will add it to my page next week!
CommentsHi! How are you? I can't believe it is already November! It has been nice and warm here so I am not ready for Thanksgiving. Hope you are able to enjoy the upcoming holidays! Have a great week!
CommentsLoved your site, great photos . I really liked what Mommy did with Billy's hair before hair cut!! LOl. So cute trick or treating!! Wish you would have come to my door. My prayers are with you all. Kathy Miller
CommentsKeep up the good work Billy
CommentsmY SON ALSO HAVE SMA 1-2 AND YOU REMAIND ME A LOT OF HIM.BOYS,YOU ARE THE BEST.BILLY I WISH YOU A LOT OF JOY,HAPPINES AND LOVE.SAY HELLO TO YOUR PARENTS AND TELL THEM THAT THEY ARE GREAT AND LOVING PARENTS. AJAS&DIANA
CommentsHELLO THERE BILLY!!! Just a quick hello to wish you well and Say that even though you havent met Zach and you havent seen me in a long time, WE LOVE YOU AND PRAY FOR YOU!!!! Say hi to Mommy and Daddy for us
CommentsI just stumbled on this quite by accident, but I couldn't leave without telling you how touched I was by the obvious fact that you are celebrating every moment you have with little Billy. His beautiful brown eyes reflect your love for him. And I want you to know that I am convinced that God will Bless your family richley for your faithfulness and care over this precious gift He gave you! Carry on!!!
CommentsHi,Billy, I have been checking out your pictures and videos on your website to keep up with you and your family. Wow! You sure did a great job on that puzzle! Hope that you have a great Halloween and a Happy Thanksgiving. Bye, Miss Barbara (Anest)
CommentsHi Billy!!! i love you and miss you! love, Aunt Mandy
CommentsDear Bill and Lisa, I choked back the tears as I read the story and as I write this note I have lost the fight. Having two boys myself I know the unconditional love one feels for their children. My older boy had a minor proceedure done when he was two and I thought my world was caving in on me. He had cronic ear infections and was in chronic pain, it was soo difficult to watch him suffer with such pain we finally changed doctors and the new doctor immediately recommended surgically implanting tubes in both ears. Little Billy has two amazing parents, I'm truly touched and I especially liked the image of Billy wearing sunglasses. I live in New Jersy and if we can be of any assistance if your pursuits bring you back to the Garden State don't hesitate to ask. Sincerely, John AKA Bugs-ze
CommentsI just wanted to say thanks for letting your Dad know I was here the other day. He e-mailed me and then called me. It was great to hear from him. I know he is proud of you and your mom. I'm looking forward to the day I can get to meet you. You take care and say Hi to your Mom and Dad for me. Keith Bateman
CommentsLooking at your site again Billy! Grama LOVES this boy! I can't help but wonder what makes the people tick that hack into these sites and deposit their junk. There are better ways to spend time.... :( Northern Lights were shining in New York the other night Billy! Have Mommy and Daddy found land turtles in the yard lately?? They are so neat!! Love you little boy! Grama
Commentsi know your grandma
CommentsHi Billy! (and of course Mommy and Daddy!)Everything is going so well for the "Benefit for Billy" here in Fulton, New York! We're selling raffle tickets and putting posters all over the place! My little garage sale is going so well, with all the money going to the purchase of raffle tickets for you little guy! God Bless the wonderful women of the Fulton VFW and ELKS clubs for working so hard putting everything together for a precious little boy who has touched their hearts! A very special thanks to Lucille and Roxanne! Love you guys! The date is set for September 10th, behind MiMi's, for anyone in the area that day! Love to all of you, and especially you little Billy! Grama LOVES this boy!! Grama
CommentsHello , I just heard about all you are going through. Tell your dad to get in touch. I 'll help out if there is anything I can do. I haven't heard from him in years. Keith
CommentsThank you for sharing so much. "A picture is worth a thousand words!" Billy, thank you for your smile and for working hard to connect with the rest of us. Love, Susan Sauer from Chicago area, visiting in N.C. : )
CommentsWaiting out the severe weather Lisa, Bill, and Billy so I thought I would visit the website! Looks good! We haven't talked in so long so be on the lookout for my phone call :). Love you guys!!!!
CommentsWhat a fantastic video clip of your son on the computer! Way to go Billy! I am very impressed...he looks quite pleased with himself as well. All the best to you and your family. Jill
CommentsAlways loving you, always thinking of you, Always in our hearts and prayers! Our little teacher! God bless you all! GmaP and GpaC.
CommentsI hope everything is going well .Keep up the good work. Just wanted to sign your book and let you know I stopped by.Thanks for sharing your info.My son will be 2 in May and his name is Kaige Soon I will have a site up and running for him. I hope all is well Heather
CommentsLoved looking through your site today Billy. We send loads of hugs. Love your friends, Charlie, Kim & Lily Sykora www.oursmaangels.com/charlie
CommentsHi my little pumpkin, Just stopped by to see if there were any additions to your site.. I heard some good news tonight about you- You are sleeping all night now and thats great, Daddy & Mommy can get more sleep and you can use the rest you need so you can keep fighting. Keep it going sweety pie, Love you much- online smooches and hugs, Granny Spiegel
CommentsI was searching the internet for a site to purchase the tash microlight switch and went into this site. I love your website and all the info. Billy you are super cute. I lost my Ryan about 2 years ago and it's been very difficult to do his site but seeing how important and good it is to see the information, well inspires me. Thanks for sharing your life. Bless you always!
CommentsGRAMA LOVES THIS BOY!!!
CommentsLISA, BILL AND BILLY, THE VIDEO CLIPS ARE GREAT!! BILLY, YOU ARE SUCH A SMART LITTLE BOY! IF YOU HAVE THE TOOLS, THE SKY IS THE LIMIT! WE LOVE THE PICTURES OF OUR PRECIOUS LITTLE BOY! BETWEEN YOUR "SMART NAV" AND "DYNAVOX" YOU'LL BE TELLING US ALL THE STUFF WE THOUGHT WE KNEW! WE LOVE YOU ALL SO MUCH,OUR HEARTS OVERFLOW! GRAMA AND GRAMPA
CommentsHey there Billy! I can't believe how big you are. I haven't seen you since you were a little thing, when Doug and I visited you in the hospital! Hope you had a wonderful birthday. Take care of your mom and dad they are two special people!!!!!
CommentsYou're a special little boy Billy and are one of God's little angels! You and your Mommy & Daddy are in our prayers often. Love, Gary Stacey & C.J.
CommentsHi Cutie, I'm a computer friend of your Grandma. I have a grand daughter who will be 4 in May. I think your are a wonderful person with so much to teach us. Your black and white friends are beautiful.
CommentsI'm a computer friend of you Grandma's. She always keeps me posted on how you are doing. I have a grand daugher who will be 4 in May. I think you and your black and white buddies are beautiful..you of course are handsome. Enjoy those games.
CommentsHi Cuz Billy, you may not remember me but i took 2 of your cats home. Glad to see you are doing so well. You keep up the good work and will see you soon...................Marty - Carolyn
CommentsHi Billy; My name is Colleen and I am an Internet friend of your grandma Dorothy. I have watched you grow, through pictures, since you were just a tiny little baby and now you are such a handsome young boy. You are always in my thoughts and prayers. God Bless you. Colleen
Commentsbilly is my cousin. His grandmother dorthy & I met on the intenet and I have visited with Billy at his home. Billy is a handsome young man and I am proud to have him as a cousin.
CommentsHello my darling grandson. I may be gloating but what a handsome smart boy you are. Gram & Gramps are proud of you. Keep up the good fight..Love you forever..congratulations on your 4th birthday. Keep them counting up..
CommentsHi my friend!! Did you know that I hope that you had a very happy Easter! I got to go to Ohio and spend time with my family and friends. I put pictures up on my website so |
