CommentsHey there Christian's Mommy and Daddy, I couldn't resist sending you a message to tell you I love your website. You have a beautiful little boy. This is an awesome website. Cant wait to hear more about Christian and your family. Drop by my best bud's website when you have a chance, www.our-sma-angels.com/Taylor. She had SMA too and I was her nurse, her second mom and her best bud. Have a great holiday season. Taylor's best bud, Peg ---------------To Christian, Have a fun Christmas! Hugs, Peg
CommentsHi Christian: YOU ARE SO BIG!!!!!!!!!!!!!! I can't believe how big and cute you are. Tell your mommy she's beautiful! I hope you have a great christmas! Love your friend, MJ
Commentsas always, we will continue to pray for christian and your entire family. we enjoyed your website. please let us know if we can do anything. we love you all.
CommentsMay God give you all the strength to go through the tough time you & your family is going.You will always be in our prayers. I also have a nine months old beautiful daughter who is suffering from SMA & is currently fighting a Pneumonia in a hospital. Luv Shailesh
CommentsHi, I just wanted to say thank-you for sharing your family's story. Your son is georgeous! I have a nephew who has sma type 1 that just turned 1 year old on January 11 2003. Anyway I have been trying to read all of the stories of these courageous children and wanted to say thanks for sharing. Also I am not sure if you are aware but there is a sma support chat @ sma@smasupport.com that gives a lot of advice and just people chatting. Sorry for such a long entry. GOD BLESS you and your family.
CommentsDear Christian, Your website is just awesome!!! I have watched you grow in pictures and in stories, from your grandmother Marilyn, as she is my husband's, Gill best friend. We live in Texas, and our church started praying for you when your Grandmother told us something was wrong and that you were going in for tests. We will continue to pray for you and your family, for a cure, and for the strength each day to carry you through. By the way, you become more handsome every day. With Love, Sue Lineberry
CommentsHi Christian: I can't wait to see a new picture of you. You just get cuter and cuter by the day. I hope you are enjoying the mail. Take care and tell your mom and dad hi!! Love, Your SMA buddy, MJ
CommentsHI Christan: Sorry to hear you aren't feeling so hot! I'm here hoping you start getting better ASAP! :-D Love and big ((((HUGS)))), MJ
CommentsHey Jay, I just want to drop a note to tell you that I am sorry about Christian. Well my web site is http://groups.msn.com/ChristinaslittleAcres Well I hope to hear from you soon
CommentsHi Christian,Though we've yet to meet in person by your picture I can surely see your quite a good looking fellow.In my life I have lived to see many wonderous and seemingly miraculas discoveries and inventions.Your future looks quite bright to me."The best is always yet to come", as the saying goes and you are proof of that Big Guy.Give Mom and Dad my love.Your great uncle Greg
CommentsHow is my little buddy doing? I heard you were feeling better. How is your chair? Are you driving in circles and spinning round and round for fun??? Hope you are having a good time. Can't wait for spring to come. Take care. LOVE YOU!!!! www.caringbridge.org/ny/mjpurk
CommentsHi Christian, Hope you are doing well and having a great day! My dog, Wyatt, sends you big slobbery doggie kisses. Love your buddy, MJ - http://caringbridge.org/ny/mjpurk/
CommentsHi buddy! How was your day? Hope you it was great! Keep smileing and know Wyatt and I love you! Huggles and Kissems, MJ - http://www.our-sma-angels.com/Margaret/
CommentsHAPPY SPRING!!! How is your weather? It's been so nice here and Wyatt gets to go for a walk almost everyday. Hope you can go outside soon and enjoy the warm weather! Have an awesome day! Love, MJ - www.caringbridge.org/ny/mjpurk
CommentsHello Christian & Family! I found your beautiful website and had to leave a message to let you know you will be in my prayers. You are so adorable. If Mommy would like you to have a personalized online Virtual Quilt, have her come visit my volunteer group at http://www.quiltsoflove.com and we'd be honored to make one for you. She can visit and see the other on-line quilts we've made for other special children and request one for you from there. ~Hugs~ Jean
CommentsHi Christian! You are such a handsome boy and we love your site!! Tell your Mommy she did a great job. Lots of hugs and kisses,,, www.our-sma-angels.com/Skylar
CommentsHey there! Hope you had a great week! I'm doing alright. I'm so happy Spring has 'sprung'. Unfortunately, it's been kinda chilly here, so Wyatt and I haven't been on many walks. But that's ok because, Wyatt enjoys digging in the back yard. He digs and digs to find his favorite toy...ROCKS! If you want to, you can e-mail Wyatt and he'll write you back. He LOVES e-mail so much! His e-mail address is NewBrnCar4wyatt@aol.com . Please feel free to e-mail him anytime! Have a great week and remember, Wyatt loves you and so do I! Love, MJ - http://www.picturetrail.com/gallery/view?username=bshanson68
CommentsHello Christian, You so cute and brave. You are in my prayers. Jenna
CommentsI wanted to stop in and give you a big QOL welcome - so glad you have joined our little family - your virtual quilt is just awesome! hugs Angel Toto of Quilts of Love
CommentsHi Christian Mommy and Daddy, I wanted you to know how much I enjoyed making your virtual quilt. Hope you like it. You are such a handsome little man, and so brave. Mommy and Daddy are so blessed. Be strong and keep God close to your hearts and remember we will be praying for you and your family. Welcome to the Quilts of Love Family. Hugs, Jane
CommentsHay Christian, Angel Moo here just stopping in to welcome you to our Quilts of Love Fmaily...So happy to have u join us....You sure are a cutie!!....Hope your having a good day... Leaving you with Lots of Love n Snuggles!!
CommentsChristian, I cannot believe how HUGE you have gotten since the last time I saw you!!! I love all the new pictures, you are growing up so fast. We are all praying for you and we know that God will always be with you and care for you. Congratulations on meeting your new uncle! I will talk to you later. Love Always, Kelly and Molly
Commentsjay,ashley,and christian, hope everyone is well. christian is absolutely adorable. he is getting so big. i hope everything goes good for you guys. you are doing a wonderful job of parenting and i wish you the best with everything. i love you guys very much and you are in mine and jason's prayers. hope to see or hear from you guys soon. love always, jason and lynne
CommentsI love all of the new pictures! Love you!
CommentsHello friend! Hope you are doing well and having a great week. I've had a great week! The weather has been very nice here and Wyatt and I have really enjoyed it! What have you been up to? I hope you are feeling well and having a great day! Love your buddy, MJ - http://caringbridge.org/ny/mjpurk/
CommentsJust stopping in to wish you a great summer! love ^A^ Toto
CommentsHi Christian - I hope you are doing well and want to wish you the best! I am praying for you! love! take care & God bless
CommentsHey buddy! How have you been? Hopefully great! If not, feel better right away, okay? I have to go to hospital again soon. :-( So, if you don't hear from me, don't worry, I'll be back really soon!!!! Remember I love you and stay well! Huggles (haha a new word) MJ - www.caringbridge.com/ny/mjpurk
CommentsHey there Big guy!! We will be seeing you soon!! We can't wait, Hope you guys are doing well. Love You always, Kelly and Molly
CommentsHi Chistian! We saw you ca,me t visi us.. so we wanted to do the same. You are just so darn cute!!! And what a beautiful family you have. I know you have a birthay coming up, you are a few days after Sky. I hope you have a great day and we will visit you soon.
CommentsI just wanted you to know that my prayers continue for sweet Christian. love Angel Sky from Quilts of love http://quiltsoflove.com
CommentsHi there! How are ya? Hopefully you are feeling GREAT today! Wyatt says he hopes you are having good weather! Stay strong and well! I love your new pictures. You are getting to be so big and handsome! Love your buddy, MJ - http://www.our-sma-angels.com/Margaret/ www.caringbridge.org/ny/mjpurk NY Hugs and Hope www.hugsandhope.com
CommentsI was at Church a few weeks ago and first heard your testimony and was at the concert last night.I have been so touched by Christian and your testimony.I will keep all of you right at the top of my prayer list.God Bless all of you.
CommentsYou are an incredible testimony to God, working in your lives!!!!!! I heard about your site from a Fla.friend of mine and I thank God that she led me here. I know the feeling all to well, of losing a child and I am praying for Christian, for total healing and a long and happy and healthy life.I pray always for God's will in anything and everything, as I can see you also do. God Bless You all, you are a most beautiful and God loving family.
CommentsDear Jonathon, Ashley, and, of course, Christian, I LOVE your beautiful website! I am a member of the choir at IRCUMC, and I was at the concert Sunday night. What an incredible evening it was!!! Jesus was definitely there, and I know many people's hearts were touched by your story, by the music, and by your Blessing from God, Christian! May God be with you all, and may Christian continue to amaze the doctors by growing stonger day by day. We love you, and are proud to be your Church Family!
CommentsDear Jonathon, Ashley, and, of course, Christian, I LOVE your beautiful website! I am a member of the choir at IRCUMC, and I was at the concert Sunday night. What an incredible evening it was!!! Jesus was definitely there, and I know many people's hearts were touched by your story, by the music, and by your Blessing from God, Christian! May God be with you all, and may Christian continue to amaze the doctors by growing stonger day by day. We love you, and are proud to be your Church Family!
CommentsHAPPY 1 DAY LATE 2ND BIRTHDAY CHRISTIAN!! HOPE YOU HAD A GREAT DAY. SKYS BDAY WAS THE 3RD AND WE PARTIED HARD..HOPE YOU DID THE SAME. LOTS OF (((HUGS)))
CommentsHello to you Christian and your whole family!! My name is Jennifer and I have the same thing as you. I was originally diagnosed as a borderline type I / II but I'm more of a type II. I see your pictures and I think we are very similar. We are all traveling to conference in Washington DC. Maybe we'll run into you. I hope that you are having fun with your power wheelchair. I saw the picture of you on your website sitting in the loaner chair. That's what I have now. I am really trying hard to get the turning thing down. We go to Childrens Hospital in Boston on June 17th to order "my own" power wheelchair. Well, you take care of yourself and know that I am thinking of you "everyday"!! If you want to, you can visit my website at www.our-sma-angels.com/jennifersworld Love, Jennifer Gaudreau!
CommentsHI: JUST A NOTE TO SAY THAT I LOVED THE NEW PICTURES AND JUST A NOTE TO SAY HELLO AND I HOPE EVERYTHING IS GOING GOOD. TAKE CARE AND I WILL E-MAIL YOU SOON, LOT'S OF LOVE & XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXO AUNT BETTY AND COUSIN BROOKE
CommentsHi Christian and family! This is Angel Koala! I"m a new quilting angel and just wanted to say Hi and let you know you're in our thoughts and prayers! Please share a gentle angelhug from me! Angelhugz, Angel Koala aka Elaine
CommentsHey Christian: You are looking very handsome these days. It was great to meet you, since we missed each other last year!!! Hope you had a safe trip home. I love you buddy. I will talk to you after I get out of the hospital. TTYL Love MJ http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.org/ny/mjpurk http://www.hugsandhope.com (Dec. 2001)
CommentsHi Christian! I'm just stopping by to check on you and wish you a VERY Happy 4th of July! Love & Prayers, Jean Quilts of Love
CommentsHi Christian! I'm Angel~Sheri from the Quilting Angels. I just wanted to stop by and say hi. I love your website, and you are such a cutie!!! I hope you have a great summer playing with Mommy and Daddy! Take care buddy!!! Lots of love!!!
CommentsHi Christian's parents, I just wanted to comment on how adorable your son is and how much he has grown since that first picture I saw.I am 15 and I have a 5 year old cousin with SMA type 2.He is the lite of my life and my best friend in the whole year, not too long ago, actually about a month ago he became a big brother to a little girl who I am proud to sya is SMA FREE.You are in my prayers and keep fighting.God only gives us what we can handle!
CommentsJust letting you know that all of us at Quilts Of Love are thinking of you,
CommentsThank you for sharing this, it is beautiful. Your family are in my prayers everyday. Christian is a beautiful child.
CommentsHi Christian: How are you doing? Hope you had a great summer. Sorry I haven't visited you in awhile. I was on vacation and I finally got my computer back (they had to fix it). I am back in school and working hard...I was home most of the week cuz I was sick. Hope you are doing ok. TTYL Love, MJ www.caringbridge.org/ny/mjpurk
CommentsAngel Island Princess here from Quilts Of Love stopping by to give you some warm Angel Hugs of love and support. Smiles, Island Princess www.quiltsoflove.com
CommentsHello, How are you today? How is your weekend going? I am home sick and Wyatt is keeping me company, snuggling in bed with me. If you check out my caringbridge website, you can see a picture of Wyatt and I snuggling in bed. Have a good day. Love, MJ www.caringbridge.org/ny/mjpurk http://www.our-sma-angels.com/Margaret/
CommentsHey! How are you doing? I'm still sick, UGH! Wyatt is very cuddly lately and loves to snuggle with me. I wish Wyatt could come and snuggle with you right now! Hope you are having a great day! Love MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/ Hey Christian: Someone sent me the article in the paper about you. You look great. So, a question, is Uncle Ty, really your uncle?????? If so, make him wear an SMA shirt to work!!!!!!
CommentsHello Christian, Ash and Jay, Carder, Catie and I were looking at your website and love the pictures. I pulled up the picture of "Uncle Ty" and Christian and Carder and Catie knew EXACTLY who was holding that good-looking child! (It's our favorite show.) We hope the autographed picture gets a very high bid at the golf tournament because we are sure the SMA Foundation can use it for researching a cure. Take care and God Bless your family. Love, the Shackelford's
CommentsHi! How've you been? I'm finally am feeling better! I started some new medicines that really help! Wyatt is really sad today. My dad vacuumed the couch so Wyatt can't sit or lay on it. Oh well, guess he'll just have to snuggle with me! Hope you are doing and feeling GREAT! Love and hugs, MJ http://www.caringbridge.com/ny/mjpurk http://www.our-sma-angels.com/Margaret/
CommentsAngel Carolyn here from your Quilts of Love family wishing you a fun and safe Halloween..Hugs
CommentsHi! How are you? I still have a cold...:( Wyatt has been very good and cuddly! He actually has a new website! If you want check it out go to, www.freeweb.com/mj88 . He'll have a guest book soon so check back and let him know you have visited! Hugs to you, MJ & Wyatt www.caringbridge.org/ny/mjpurk www.our-sma-angels.com/Margaret
CommentsChristian you are about the cutest little thing I think I've ever seen! Your mommy and daddy have to be so proud of you and show you off every chance they get. I hope you have a wonderful Halloween - mommy we would love to see some pictures of him all dressed up. Will keep you in my prayers always.
CommentsHello Christian, You so cute and brave. You are in my prayers. Pajos Aliong
CommentsI am starting my rounds early as I have many QOL children to visit, I just wanted to make sure you know we are all thinking of you and wishing you the best Christmas ever.
CommentsDearest Christian I gently wrap warm thoughts of you in my christmas prayers For Heaven to smile on you For Angels to watch over you and the love of Jesus to fill your heart Have A Merry Christmas God Bless You And Your Family This Holiday www.caringbridge.com/page/isabellaledesma
CommentsStopping by to wish Christian and the entire family a very Merry Christmas from all of us at Quilts of Love.
CommentsHi there! Hope you had a great Christmas. I sure did. Santa even came and visited me and Mommy! Remember to ~~pray for the cure in 2004~~!! Big (((hugs))) www.our-sma-angels.com/Skylar
CommentsSweetie I just wanted to drop over and leave you some Hugs and Wishes for a wonderful New Year 2004 Hope you are doing well...You're never far from the Hearts of the Quilts of Love Angels... Hugs Carolyn
CommentsHi! Sorry I haven't written in awhile, I've been sick and not feeling up to writing. It is so cold here. It snowed and snowed here today! Wyatt loved playing in the snow. He took his favorite toy (his tennis ball) out with him. He played and played for hours! Anyway, I hope you are doing well and it isn't too cold by you. Big hugs from me & Wyatt! Love MJ - http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.com/ny/mjpurk "A life spent making mistakes is not only more honorable, but more useful than a life spent doing nothing." -George Bernard Shaw
CommentsYou got a wonderful site. Nice job done. Anyone and you can feel free to add my site which is the url on the bottom on your site everyone thanks. Sign my guestbook http://board1.proboards16.com/index.cgi?board=Christianfellowship&action=display&num=1070212876 My Christian site: http://board1.proboards16.com/index.cgi
CommentsI am stopping by to leave love, prayers and hugs, you are special to me! love from Angel Toto at Quilts of Love
CommentsHi, I was looking at pictures of Ty, and I came across this website. Your little boy is such a cutie pie. It was interesting and sad at the same time to read about Christian's story. He is truly blessed! I am 16 years old, and I was born premature, I know that's not the same really but, I just wanted to tell you that. I was born May 6,1987 and was supposed to be born September 22,1987, I weighed 1lb. 5 oz. Take Care and God Bless!
CommentsHi Sweetie ! Just stopped by to say Hi and let you know you are in all the angels thoughts prayers and hearts.. At Quilts Of Love WE LOVE YOU ! Blessings to you and your family Angel Chris QOL Angels http://www.quiltsoflove.com
CommentsJust wanted to drop by from Quilts of Love and say we are thinking of you and praying for you..Hugs Carolyn ~Quilts of Love~
CommentsHi! Happy Leap year!! Its hard to believe its almost March. I've still been home sick, no school for me. :( I have been doing homework but not much (shame on me). Wyatt sends you big slobbery dog kisses from NY. Hope you're doing well! Love, MJ http://www.our-sma-angels.com/Margaret/ http://www.caringbridge.com/ny/mjpurk/ MJ "Just living isn't enough," said the butterfly, "One must have freedom, sunshine and a little flower." -Hans Christian Anderson
CommentsHello Sweet Little Man... Angel Island Princess here checking up on how you are doing and to leave you lots of Easter Hugs. Happy Easter sweetie. Warm hugs, Island Princess
CommentsI'm only 12 years old in grade seven and before I read about this amazing boy I did not know was sma was but now that I know I cannot believe that the parents of of this wonderful child can cope with this but you all must be wonderful people and Christian must be the best child you could have and I will pray for Christian night after night.His story was wonderful and the pictures were so cute. I hope to god that he will be ok and from the story he sounds perfect and I give you my best wishes! Yours Truly: Kayla 12 years old
CommentsDear:Christian i am very glad you found someone that will be able to help you with (SMA) LOVE YOU X0X0 LOVE KATIE
Commentshey christian i'm so sorry to hear about your story i was looking up ty pennington but you look so cute just like he does. i hope your gonna be better soon. your always gonna be in my prays okay. i love your pictures especially the angel one cuz once your an angel you'll be looking out on everyone that signed this guest book.
CommentsHi, my name is Justin, from Tampa, FL. I was just browsing the web and found your site. I must say I love it! Great site! Also, if you have the time, be sure to check out my website called The Patriot Journal. It's a news site with stories you wont hear in the mainstream media. I also have a few editorials. :) God Bless, -Justin
CommentsYou both have a beautiful boy! My Cousin's baby had SMA and she passed away within couple months ago. Im trying to get more information on SMA.
CommentsI am from Quilts of Love and just wanted to stop by and say hi and to let you know my prayers are with you!
CommentsHi Ashley and Christian, I just wanted to let u know I clicked on ur website from the THS alumni website. I actually went to high school with u, Ashley, but I was a grade ahead of u, u might remember me, I hung out with Rebecca Lang. Anyways-ur family is in my thoughts and prayers, I know u enjoy every minute with him, and I hope u all are well, Stay strong and God Bless. By the way, I have a 3 year old too, she was born in Feb of 2001!
CommentsHAPPY BIRTHDAY CHRISTIAN!!! have a great day and many many more healthy happy celebrations!! thoughts and prayers, angelique parker www.caringbridge.org/oh/harleiparker
Commentsoh my gosh! i cant believe i actually found this site! this is laura...ty's fiance...i so cant wait to meet you guys when you come to our wedding..we're only inviting a few people but ty said he really wanted you guys there. well...dont forget to call us! cant wait to see you and meet you! love you tons and tons, Laura
Commentshttp://www.quiltsoflove.com/cards/hugs/gm_hugsNlove1.jpg Sending lots of love and hugs from your entire QOL family.. Love, Angel Kim www.caringbridge.org/fl/kodysstory
CommentsChristian you are a beautiful child. I will pray for you. Miracles can and do happen. You and your Mommy and Daddy will be in my thoughts and prayers. God bless you.
CommentsHi Christian!! You are such a beautiful little boy. I am praying for you and your family. Jesus loves you sooo much, Christian! xoxo, wit
CommentsHello Sweet Christian and Family, I was thinking of you today and wanted to dropo by to leave my love and hugs ~ Jean Quilts of Love
CommentsHi Christian how are you and your mom and dad doing? I think of you and pray for all of you everyday. You are so special.
Commentshi christian! i've been keeping up with your website and praying for you! jesus love you, christian :) love from me
CommentsI was just researching sma, and I came across your site. Christian, you are a very cute little boy! =) I just wanted you to know that although I do not know you or your family, I will pray for you and your family each day. As for christian's parents, you are very strong and brave, and that is amazing. My prayers are with you all. -Krista
CommentsI'm thinking about you lots Christian. Hopefully I can see you soon!! Keep having fun and being a great kid!
CommentsHi Christian,a day doesn't go by where I don't think and pray for you and your mommy and daddy. You are such a brave and special little boy. God bless you and your family. I'll keep praying for you.
Commentshang in their little one there is love following throw they air there will not be a day that no one will pray every one love there brother in christ. Her is a a prayer out of the bible on king James Behold, I will bring christian health and cure, and I will cure christian and will reveal unto christian the abundance of peace and truth. Jeremiah 33:20 v.6 pleace read it if you have'nt. Have Faith In God. For verily I say unto you, That whosoever shall say unto you this mountain, be thou removed, and be thou cast to the sea; and shall not doubt in his heart, but shall believe that those things which he saith shall come pass; he shall have whatsoever he saith. Therefore I say unto you, What thing soever ye desire, when ye pray, believe that ye receive them ,and ye shall have them. And when ye stand praying forgive, if ye have aught against any: that your Father also which is in heaven may forgive you your trespasses. But if ye do not forgive, neither will your father which is in heaven firgive you trespasses. St.Mark 11:19 v.22-26 God Bless Your Loving Family is in our lord hads angels are around him and it's ok to worry I know it hurt but I will be praying for him in my holy spirit I Love You God Bless.
CommentsHi Christian,I hope you and your mommy and daddy are doing well. I'm praying for all of you. God bless you and your family. Christian you are very special and very loved.
CommentsGOD BLESS YOU AND KEEP YOU SAFE
CommentsChristian, Hey buddy! I hope your doing ok and everything is going well! I am always thinking about you and you are in my prayers!! Hope you have a great and fun week.
CommentsHey Christian & Family, I hope you get better and you're soooooo cute and Ty Pennington's your Uncle? Lucky Boy!
CommentsDropping by from Quilts of Love to say I'm thinking and praying for Christian... Love and Hugs Carolyn
Commentshey i just wanted to say ur site is really cool and i think that it is cool that ty is ur uncle i see him on t.v all the time he is my favorite well take care alyssa p.s love ur site
CommentsChristian's site is wonderful. He is a very handsome boy.
CommentsHey Christian! Well it's almost time for Christmas... I bet your excited. I hope everything is going ok and I hope you have a wonderful christmas holiday and a very happy new year. God Bless you!
CommentsHi!!!! Sorry I haven't signed your guest book in awhile. I hope you are doing ok and are enjoying the winter so far. I have a new website! It is <a href="http://www.mjthesmaqueen.com/"> MJ - The SMA Queen</a>....If you want to check it out. If you don't see your website on my friends page (and would like to) e-mail me, and I will put you up ASAP. I hope you have a <img src="http://www.mjthesmaqueen.com/valmiscani.gif">! and remember, <img src="http://www.mjthesmaqueen.com/valani3.gif"> MJ
CommentsI wish you much love in your life.
CommentsHey Christian! Well Christmas has come and gone, I hope it was great for you!! Mine was pretty good. It's so cold outside, it is kind of nice but I wish it would warm up a little bit! Hope your doing well! I'm always thinking about you!
CommentsHi !!!! <img src="http://www.mjthesmaqueen.com/image006.gif"> Mickey and I wanted to say HAPPY FEBRUARY!!!! I hope you are doing well today. Big hugs to you and your family! Love, <img src="http://www.mjthesmaqueen.com/MJButterfly.gif"> http://www.caringbridge.com/ny/mjpurk - My Journal http://www.our-sma-angels.com/Margaret/ - My Original Website http://www.mjthesmaqueen.com/ - My New Website
CommentsYou have such a beautiful baby boy !! Keep your chin up and just enjoy every minute of everyday with him . You are in our thoughts and prayers as all our SMA friends .
CommentsWhat a cutie !! You are truly blessed ! May each day with little Christian be yet another miracle for you all . Keep having Hope and one day we will have our cure ..
Comments<img src="http://www.mjthesmaqueen.com/polarbear_val.gif"> I hope you have a very happy Valentine's Day! Love, MJ
CommentsHey , we love all the pretty photos . You for sure have a precious little boy .
CommentsHi: I know that I am early, but I wanted to wish you and your family a <img src="http://pic17.picturetrail.com/VOL815/2822478/6549091/88274216.jpg"> & <img src="http://pic17.picturetrail.com/VOL815/2822478/6549091/88272883.jpg"> I hope you enjoy your Spring!! Love, <a href="http://www.mjthesmaqueen.com/"> MJ </a>
CommentsHi my friend!! Did you know that <img src="http://www.mjthesmaqueen.com/snags/ItsSpring-jumpingFrog.gif">??? I hope that you had a very happy Easter! I got to go to Ohio and spend time with my family and friends. I put pictures up on my website so <a href="http://www3.caringbridge.org/ny/mjpurk/photo.htm"> check it out </a>, if you want to. I'm so glad that <img src="http://www.mjthesmaqueen.com/snags/srungturtle.gif"> Love and warm Spring hugs, <a href="http://www3.caringbridge.org/ny/mjpurk/"> MJ </a>
CommentsHi. You're so adorable in the photos :) I stumbled upon the site and had to leave a comment. Your story is so moving.
Commentsi love this site and christian is the cutiest thing thank god that he has lovin parents! GOD BLESS christian and all his family
CommentsGreat pics.I noticed Ty is your brother (not sure who,Christians mom or dad).Thats neat.Ive worked with him numerous times when volunteering for Extreme Makeover in Garden Grove,Costa Mesa,Long Beach,Encinitas,etc.They were either in a family or friends neighborhood.Any how just wanted to send a little not.Nice pics and nice looking family. -Rachel
CommentsHi Christian, I just wanted to let you know that you light up my life! You fill my heart with so much joy and I'm thankful everyday that God blessed me to be your mommy! I love you. PS I love that you love your fish!
CommentsHey buddy! hope everything is going good with you! I have been thinking about you lately and wanted to say hey! i went to kobe's the other night and remembered meeting you there! I am really glad we met and I hope you have a great summer! Love ya!
CommentsHi again. I just came back to say i've been thinking of you and to see how you are. Love Hannah
CommentsYour web site is beatuful,cool,cute. I love your web site I will come again!
CommentsHappy Birthday Christian.You are an amazing big boy. I'm always thinking about you and praying for you and your family. Love Ya.
CommentsHi agian, HAPPY BIRTHDAY FOR june 7th, i know its a little late. :-)
CommentsHi Christian, How are you and mommy and daddy? You are a very special big boy. I think about you and pray for you and your mommy and daddy everyday. Love Ya, Linda
CommentsHi Christian, You are a beautiful sweet child. You and your family are always in my thoughts and prayers. Love Ya Linda
CommentsHi Friends: I'm SO sorry that it has been so long since I have visited you! I had a very busy summer ,including visits to Ohio, New Jersey, Connecticut, and Virginia Beach. How was your summer? I hope you are feeling well and if you are not, GET BETTER SOON! I will be back soon and will try to sign at least once a month! My banana, Annie Bannie, wanted to say hello to you! <img src="http://i5.photobucket.com/albums/y185/bshanson68/ani-bani.gif"> Big hugs, <A HREF=http://www.caringbridge.org/ny/mjpurk target="blank">MJ</A>
Commentswhat a lovely homepage you got, sweet child. love the music! have a nice day/ best regards from emily in sweden... =)
CommentsHi Christian, How are you and your mommy and daddy doing? I was reading a story about another amazing boy like you. He is 5 years old and lives near Boston. He reminded me of you. You are so special. You and your family are always in my thoughts and prayers. Love Ya, Linda
CommentsHi Christian, I'm back to say Hi. You and your family are never far from my thoughts and prayers. You are such an amazing and special big boy. You are so loved. Take care, Love Ya, Linda
Commentsi would first like to say that i think your son is so beautiful and cute. i would also like to say that i wish you luck woth your son's disease. i have never actually heard of this disease until now and am now well aware. so i wish you luck. best wishes, melissa
CommentsHi Christian -- I really enjoyed your site. Tell your mommy and daddy to give you a big hug from Charlie and all of al (Kim, John & Lily too). www.oursmaangels.com/charlie
CommentsI was told about your website by my neice. Her 3yr. old son was diagnosed with SMA l year ago at age 2. We love your web site! What a beautiful child. Our little Cole is also beautiful and very affectionate. They really are angels. I love spending time with Cole. Thank your Uncle Ty, for giving SMA all of the exposure on his show. He is an awsome man and has so much love in his eyes. He will put SMA in a lot of people's minds and hearts! Like my little nephew Cole says, Good Job Buddy!! We live in Grand Forks, North Dakota and are planning some fund raisers for this next year. Last year was the first year a major fund raiser was held and it was very successful. We love your family and will be praying for all of you. XXOO
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CommentsHello! I thought I would share this beautiful website with you and your family. <a href="http://www.wisehearts.com/CmsMF.htm">Merry Christmas to My Friend!</a> Wishing you and yours a wonderful week! <img src="http://www.mjthesmaqueen.com/schlittencujo.gif"> MJ http://www.caringbridge.com/ny/mjpurk
CommentsHi Christian and Christian's parents you and your family will be in my prayers God Can Heal I'm going to pray that you will get your healing ok but the story about how I found this site was i was looking up ty pennington pics and i found a pic of you and ty is ty realy your uncle you lucky boy and i bet you think this is from an adult well know it's really from a 12 year old. l8r your pall,brittany
CommentsHello again, just want to wish you a merry christmas for 10 days! thinking of you alot Hannah <3
CommentsHi again Christian, Your parents are so lucky to have a special big boy like you. You and your mommy and daddy are always in my thoughts and prayers. You are an amazing child. So many people love you. I hope you have a fun holiday season. Take care of mommy and daddy OK? Talk to again soon, Love Ya, Linda
CommentsHappy Holidays to you! <u>C</u>andles are a gift of light, <u>A</u> tiny sun, a bit of star. <u>N</u>o other dancer in the night <u>D</u>ances with such sheer delight, <u>L</u>ittle souls serene and bright, <u>E</u>ach a glimpse of what we are <u>S</u>hining innocent and pure. ~Author Unknown~ Since I didn't have enough cards to send one to each of you, check out <a href="http://www.mjthesmaqueen.com/indexgreeting">Your Holiday Card from MJ</a> <img src="http://www.mjthesmaqueen.com/MerryChristmasHappyNewYear-2.gif"> Hugs, MJ http://www.mjthesmaqueen.com/
CommentsHi Christian, I would like to wish you a Happy Holiday. You are so special. You are always in my thoughts and prayers. Tell mommy and daddy I pray for them too. Your family is so special. Talk to you later. Take care. Love ya, Linda
Commentshey christian u are sooo cute! is ur uncle realy ty pennington if he is telll him i said hi and he is so col and nice and hott!
CommentsHi we engoyed looking at your web site. We hurry home from church on Sunday nights to see "Extreme makeover home edition". We're fan's of your Uncle Ty.Some one from the show called my Uncle Brad about using his invention on the show, but they never called him back.We sing the song on the site at our church, and it is my other Uncle favorite song. Do you go to church anywhere? I go to Cornerstone Baptist Church,Lititz PA 17543 have a good day!!
CommentsHi Christian, How are you and mommy and daddy? You and your family are always in my thoughts and prayers. You are so special and so loved. Take care. Love Ya, Linda
CommentsHey christian, Sorry its been so long since I have written but I have gotten so busy with college starting bu I have been thinking about you. I was looking at the picture we took at kobes and i saw your pictures on your site. you just keep growing so handsome!! well I hope you are doing well!! god bless you!!
CommentsHey christian, Sorry its been so long since I have written but I have gotten so busy with college starting bu I have been thinking about you. I was looking at the picture we took at kobes and i saw your pictures on your site. you just keep growing so handsome!! well I hope you are doing well!! god bless you!!
CommentsHi Christian. How are you doing? You are a very special big boy. You and your mommy and daddy are always in my thoughts and prayers. Take care and have fun, Love ya, Linda
CommentsMay God bless you! And may your angels watch over you!
CommentsHi Christian, How are you? How is Mommy and Daddy? I think about your family all the time and pray for all of you. Remember you are never alone. You are surrounded by people that love you so much. You are special. Take care and if I don't get the chance write back before Wednesday, Have a happy birthday. Love Ya, Linda
CommentsI was lead to your site by a picture of Ty Pennington holding your son. I am in love with Ty, as all girls and women are, but now I see your little man is so handsome, too! God bless you and your family. I will pray for your son that he continues to be healthy & happy. He is an angel and special. He was heaven sent because little boys like that are here to bring hope to others and their stories are meant to be used as tools from God. I have a little boy who is 20 months old, named Chase Morgan, so my heart goes out to you. God never gives us more than we can handle. I am a single mama and God is the only thing that keeps me strong and the blessings are abundant. Life is never how I expected it and know it is because of God's plan, for Chase and me. God has a plan for Christian, that is very evident! Best wishes, Izzy & Chase 825 Watt Way E201 Bend OR 97701
CommentsHi Christian, HAPPY BIRTHDAY. I had to come back and wish you a special day. You and your family are always in my thoughts and prayers. You are a special big boy. We all love you so much. You have a special spot in my heart. I will always care about you and pray for you. Have fun and take care of mommy and daddy. Love Ya, Linda
CommentsHi Christian, I've noticed all the spam on your site. Are you OK? You and your family are always in my thoughts and prayers. You will never be forgotten Christian. You will always be alive in the hearts of your friends and family. You have touched too many people to ever be forgotten. You are a very special little angel. Love lasts forever. You will forever be loved. Mom and dad, God chose you to have this precious little boy. I can't imagine what you are going through but I will continue to keep you in my thoughs and prayers. Whenever you feel like you can't go on remember you are not alone. I will be back to check on you and support you. God bless you. Love ya, Linda
CommentsHi Christian, How are you? You and your family are always in my thoughts and prayers. I just wanted to stop by and say Hi and tell you that you are a very special young man. You are so loved. You are in all our hearts and we love you. Take care of mommy and daddy and yourself. Love ya, Linda
CommentsDearest Christian, Fly free and run with all of the other angels who were at Heaven's Gates, waiting for you with open arms. You are a much loved little boy. - - - - - Ashley, I am so very, very sorry. I know you tried so very hard. We send our love and God's Blessings, XOXO Suzanne & Erinne Williams, Canton, Michigan
CommentsWe are so sorry to hear the news about Christian. Our hearts and prayers are with you all. Love and blessings - The Sykora Family www.our-sma-angels.com/charlie
CommentsI cannot believe your little guy has passed away. I am sincerely sorry for your loss. I am Grandma to SMA type II, age eleven, Ryan Berhar. We have had some close calls, but we are blessed to have Ryan still with us. I am praying for your family. The grief and pain must be unspeakable. I'm sure you will find the perfect songs and verses to celebrate his "home-coming" to heaven! God Bless You, Krystal Bend, Oregon
CommentsWe are so sorry to hear of Christian's passing - what a beautiful angel he is now. Fly free & pain free sweet boy! Michelle, James, & Malorie Fox - Ada, Michigan - www.maloriefox.com
CommentsI just got word of Christian's passing from Michelle Fox, another SMA mom. My name is Holly Schafer and I am also an SMA mom, my daughter Claire earned her wings on April 29, 1999. My heart goes out to you and your family at this terrible time. Please know my prayers are with all of you at this time that you will find the strength to get through this. I know the strength for me came from all the people that surrounded us,family, friends and those people unknown to us that were touched by Claire's story. So I write to tell you that Christian story touches my heart and I will keep you in my prayers. Love, Holly Schafer
CommentsWe heard of sweet Christians passing and we wanted to offer our deepest sympathies. We have only met online and via e-mail but your family will be in our thoughts and prayers. Kristal Mom to Brett (SMA II) Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm
CommentsJay, I remember you as a little boy and my heart goes out to you and your wife. I can't imagine losing a child as you have. You must look to your faith and know that Christian is truly an angel in Heaven now and will always be with you, no matter where you are and how old you get. May the Lord be with you during this difficult time.
CommentsOur thoughts and prayers are with you all at this time. The angels are rejoicing right about now. Christian is making them sing "Hallelujah" because he is running and playing as never before. You will be in our prayers. May our Lord and Savior give you a peace that passeth understanding.
CommentsAshley, Please know you are in my prayers.
CommentsHello Marilyn, This is Vivian from the 3-1-1 Call Center and I want to let you know that you are in my prayers, both you and your family. Words cannot express the imagination of what you are going through, but always remember that God is in control of everything and he will take extremely good care of his angel Christian and you all as well. I just wanted to give you my love and to let you know that if you need someone to talk to or to pray with my number is 321-303-3111, you can call me anytime day or night because I am a prayer warrior and God is always on the move. "God said in his word that when to or more come together in his holy name, there he will appear in the midst". May God Bless you and your family and my heartfelt sympathy are with you. Love, Vivian and family
CommentsLoved to hear you laugh.
CommentsYour web site is beautiful and a real inspiration to all. Know you are in my prayers and thoughts as you walk through these trying days ahead. God has indeed blessed your family with strong faith and a love beyond this earth.
CommentsChristian was a student in our school and my students were interested in reading his story on this beautiful site. Some knew Christian and are very saddened at his passing. We all wanted to wish you much peace as you celebrate his life and comfort in knowing he is running and playing with the other angels.
CommentsDear Paige & Ashley, What a beautiful tribute to Christian. He was such a precious child. Thank you for sharing him with everyone. His life, though short has made a positive impact on many people. Your faith is a witness to others and I know will be what gets you through this hard time. Know that my thoughts & prayers are with you. Christine
CommentsDear Ashley, Paige and Gary, This website is a glorious story of a wondrous young man (whom we will never forget) who is now walking with his Jesus! Praise God! All our love, John and Karen McRae (alias the Sonny's BBQ buddies!)
CommentsYou are safe now in our Lord's arms.
CommentsYour son was a beautiful child. I will keep you always in my prayers. GOD is our strength and help in the darkest storms he alone is your anchor.His grace will substain you and he sees even your silent tears and understands. Marilyn Jeter
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CommentsI'm so sorry to hear about your precious angel Christian. I have not been by for awhile and I knew today is his birthday. My heart breaks for you. I can't imagine your pain. You are in my prayers. Christian touched so many lives. He was loved so much by his family and friends and also by strangers that stumbled onto his site and read about the wonderful child he was and still is. He will live in our memories. He will never be forgotten. Love lasts forever. God will watch over you and help you through this difficult time. I will keep you in my thoughts and prayers. Take care, Love ya, Linda
CommentsI don't know you, and I didn't know Christian, but I DO know you were blessed to have eachother. His physical presence is gone, but he will always be in your heart and you in his. May God wrap his loving arms around you. Know that even strangers like me care about you and about Christian. May his sweet soul live on through you.
CommentsHello I just heard of your loss.. Sending lots of love prayers and hugs from your Quilts Of Love Family Many Blessings Chris Quilts Of Love http://quiltsoflove.com
CommentsI got a post on MySpace about a movie to watch. I don't generally watch them, but for some reason I did today. Even after seeing that it was over seven minutes in length. I have struggled with the whole God image for a long time. I have a great God concept, I can tell you who everyone else and the Bible says he is, yet I struggle believing it. This video and the story or Christian is really encouraging, and helps to build other's faith! Thank you!
CommentsI just wanted to say that Christian is a very beautiful boy. My son, Justin, also has SMA type 1. He is know 7 1/2 years old. I see alot of similarities between these two angels. It appears that Christian's time spent on Earth was filled with love and happiness. If your child was smiling, you were doing everything right. These children are truley a gift from God. I'm sitting in Iraq waiting to return back to my child. When I say my prayers tonight, I will pray for God to give strength to your family and I will thank him for allowing us to be touched by his angels.
CommentsMy Sweet Christian- I miss you so much. I can't wait to get to where you are and be able to see the Splendor's that you see. For now, I am stuck here and it seems unfair because my heart is so heavy. You brightened up my world with your inquisitive nature, your loving, honest heart and all of your smiles. I know that the same God is with us. I'll love you forever Christian!
CommentsMy Sweet Christian- I miss you so much. I can't wait to get to where you are and be able to see the Splendor's that you see. For now, I am stuck here and it seems unfair because my heart is so heavy. You brightened up my world with your inquisitive nature, your loving, honest heart and all of your smiles. I know that the same God is with us. I'll love you forever Christian!
CommentsI love and miss you so much Christian! We had some fun times together! The hole inside my hart is yet to be heald by the holy hand of yours. You really touched a lot of people. Bazel misses you too. I cant wait to see you again. Love Jade PS.Did you get the baloons that Molly and I sent you?
CommentsSome was sad, some was funny, & some was happy.
Commentshello there very precious outstanding great stuff god bless you and keep you in his love and tender care liane 07932491824 xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
CommentsHey Buddy, Today is Valentine's Day. I remember how precious you were as you looked through your cards from classmates, what a special day, full of ooh's and aah's. I miss hearing you say "I love you Grammy." What a blessing you were and still are in my life. Waiting to dance around with you...you can carry me then:) Love, Grammy
CommentsWhat a beautiful boy you are. Blessings to you and your Mom and family. In Christ's Love. Ciao, Debbie
CommentsYour family will always be in my thoughts and prayers. God Bless you. Take care, Love ya.
CommentsI miss you Christian! I keep feeling so homesick because I just long for things to be as they were and to have you here. You filled up my life and I just miss you, miss you, miss you.
CommentsMr. Christian Ward, today it has been one whole year here on earth since the day you went to be with Jesus. Just like with my precious princess, I still cannot believe you have flown home. My eyes welled up with tears just now looking at all of your beautiful photos. Your mommy is right, God sure does know how to make things beautiful. I know you are wrapping your angel wings around mommy today and telling her not to be too sad. I hope you have given her some extra special signs today too. I know the feeling of being so very "homesick" for your heart, because it is with your precious angel in heaven. But it always warms my heart a bit when my angel princess reminds me that she is always with me. I hope you and Kalair are fast friends by now. I think about your mommy so much, but I am terrible about writing. I am just having such a hard time myself with missing my baby, I don't think I am at a point where I am able to bring comfort to others yet. I am also kept very busy with Kalair's little brother, Arturo. He has SMA type two like you did, actually he reminds me a lot of you. So I know your mommy understands how we spend our days, in and out of wheelchairs and standing frames, making sure he drinks all of his amino formula, etc. Having a child with type two and one who is all boy is so much different from life with my fragile princess, but it is also very fun! I just miss my Kalair SOOO much!!! In ten days it will be the anniversary of the day my girl joined you in heaven. I am so happy for both of you and all the amazing things you can see and do now. It would selfish of me to pray you both back here so I will pray instead for strength from the Lord for your mommy and me so we can get through our days here on earth doing God's will until we can some day come hold you again in heaven. When that day comes, look out! Because I know your mommy will never want to put you down. :0) Until then, give Jesus some big, squeezy hugs and lots of kisses for me, and keep showering your wonderful mommy with lots of love too. Happy Angelversary, Christian! You could NEVER be forgotten... Sincerely, Liz Dutzy, mom to ^Kalair^ and Arturo www.ourSMAangels.com/Kalair www.ourSMAangels.com/Arturo
CommentsI love you, Christian. Gramps
CommentsHi Tete! I miss Christian so much. And I will try my best to be like him and I love him with all of my hart! I miss you too! Have you thought of another name for his little sis? I like what you suggjested; Vivvieonna and we could call her Vivvy! I think Christian would like it if you named her Dory but I think he would still be satisfied if you named her what you liked. I wonder if he will tell anyone what she will look like.
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