CommentsHello! I'm just testing this out. I hope you enjoy David Alexander's web site and sign the guest book!
CommentsI had the pleasure of meeting sweet David very briefly. Unfortunately I didn't get to know him as much as I would like to. Unfortunately, I witnessed part of his mommy's grief when David was taken away by this awful disease. I think this site is beautiful and wonderfully done, and I just wanted to say to Faye and David, Good Job!!! I am proud of you. Looks like you may have gotten the missing Costco Pics returned? I hope? Anyone who has seen this sight and who could even begin to imagine these parents grief, multiply by a million and then maybe those of us who haven't lost a little one might begin to understand what the Swetz family is going through. Do anything you can to help the research of SMA along...
CommentsI wish that all childhood diseases could be erased
CommentsIt's a shame to loose a child to a diseases that can't be stopped. We all need to help stop this killer.
CommentsThank you for sharing your story. As a pediatric physical therapist and professor, I am always trying to help educate others and learn more about childhood genetic diseases.
CommentsWhat a beautiful story for your son. I know the hurt of your loss and I am sure he is with so many of our SMA Angels. My angel was Michelle Justice, and my great granddaughter who I only had 3 weeks of her with me day and night. I talked to her about the things she would not forget the love we had for her. In that short of a time she was with me 24 hours and only left my side 1 night, when my granddaughter came screaming at 5:00 am telling me that my angel had cried from the time she left me side until they put her back in my arms. She was so tired but I laid her down on her side with a bit pllow and padded her and she went to sleep in about 5 mintues. She was buried in that same position. So all of us here on the SMA Angels know how hard it is to keep trying to forget, however, we must never forget what took out babies. I hope you will somehow come to terms with your sons death.
CommentsI believe Spirit saves the toughest lessons for the strongest of us. I can honestly say I have never seen such tremendous pain handled with such grace and dignaty. Continued healing and love to you both. Marcie
CommentsMy words can only discribe the feelings you have let me feel from your heartfelt story: Beautiful, tragic, sorrow, compassion, love and hope. Thank you for sharing your story of David Alexander. I know he is in good hands playing with all the angels.
CommentsDear Faye, I am hoping that this is not a bad time for you, I was wondering if you would let me put your son's story in Our Book that I am putting together? I have had hard time get the stories, but have now gotten around 30 stories. I know it sounds cold to you. But I am putting it together with all the money going to the SMA Research. Now I can and will change the names and places if you wish that is if you will let me use it. You can ask Laura about it. If you say yes, I can just pull up what you have, because the story is prfect as it is. And if you say no, there will be no lost in our being friends. It will just be like I had not ask. IF you say yes I will need your permisson to copy and put in the book. But you say yes or not. I am putting up the stories as you the Mom's have written they, with a little correction. But I do realize that you are still in greif, so I will understand if you say no. This is just our way of getting the word out and let others know what could be the illness that is not something else but is SMA. Tanks, Betty
CommentsI cannot begin to tell you how sorry I am for the loss of your beautiful baby boy. One of my dear high school friends has a child on this site who is suffering from type I SMA and it has been an education (albeit an unwanted one!) for our entire community. I will keep your family in my prayers and will do what I can to fight to stop this horrible killer. I admire your courage and faith. Enjoy your daughter and rest assured that you will see your beautiful angel again in Heaven one day and he will be healthy!
CommentsDavid Alexander's web site is excellent! This is a wonderful way of sharing your "special angel" with people who were not priviledged to know him personally; he has and continues to touch so many lives. This is a great tool to help educate people about this disease. I would like you to know that you and yours will always be in my thoughts and prayers.
CommentsDear Faye, It has taken me a long time to get up the courage to visit this site. When you told me about it I fully intended to check it out right away but couldn't do it. Well, today I finally did. I've had tears from the first picture, but when I read your story, even though I already knew it and had even seen some of what you went through, I could barely see the screen through the tears. As I sit here feeling just a fraction of what you feel daily, I am hearing Marcus giggling at 'Dragontales' and I don't quite know what to say my dear friends. I love you guys. Please always remember that. Thank you for ... well, everything. Love, April
CommentsMay God Bless your family. Tell Jenna happy 2nd birthday! I feel lucky to have met you. Girls are good, Allegra just missed a week of school-flu. but no hospital. We will have to try and get together after virus season. This web site is beautiful!!! I can't believe it. Take care and stay in touch. Laura and girls
Commentsno words fae, very moved.
CommentsYour son is very handsome. I had 13 months and 28 days with my son Logan who also passed away. He just passed away 3 1/2 months ago. I share your pain. And I am so sorry.
Commentsi am so very sorry about your loss. david alexander certainly was a handsome little boy as well as being so very strong.i hope this message will help you in your time of sorrow. he is now without pain and suffering. david alexander is with god.
CommentsYes, my name is David Alexander, and i would, at all cost try to help find a cure, no one needs to endure this type of life...
Commentsvery nice site
CommentsTo you and your entire family! I will not say I feel your pain. I cannot imagine what you and your husband have endured. No one can ever imagine your pain if they have never lost a child. But I do want to sympathize with you. Your website was like nothing i have ever read. Your story showed so much compassion yet it was so tragic,the sorrow the love and hope even after something so terrible as this shows us that God is in control. You've shown so much courage and faith in the decisions you have had to make. No mother or father should have to ever experience what you have been through. Being a mother or 3 girls ages 11,2, and 5 months I could not imagine being without either of them. I know how i felt having delivered my 2 year old at 32 weeks she was 3lbs 9oz 19 in long and not being able to take her home from the hospital with me. Going to visit her every day 3 times a day in the NICU was tearing me apart. I will keep you and your family in my prayers constantly. I know that your website will help others that are in pain through the loss of a child get past some of the pain and agony they will endure because it has truly helped me. I will donate to your cause and pray that a cure is found soon. Yours in Chirst,
CommentsDearest Friends, Thank you so much for coming to David's website. I certainly hope more people are reading this than are signing the guest book. It's hard to believe that Little D has been gone for over 2 1/2 years now. We still miss him so much. I think of him and thank God for him every day. David now has an almost 8 month old baby sister who is SMA free and very healthy. She is a complete joy to us. Another lesson learned I guess: life continues on, don't just sit there. Anyway, thanks for visiting the site. Please sign the guestbook and let us know what you think. We really do appreciate it!
CommentsThanks Fae for exposing your heart and pain. I hope that you'll heal a little each day and that someone may benefit from your story. Love ya! Lisa
CommentsHey guys, I am soo sorry to hear about David dieing!! He is born the same day that my cousin (Britni) is i am soooo sorry!!! From Britni: Hey yaw i know how it is to lose a loved one cause i lost my mom on december 31, 2003!!! and it's especially bad when to day is mothers day. But the worst thing is at school when people use ur mom as an excuse to pick on me. Well we just like to send or sorrow!!!!!
CommentsThere is no way I can express how sorry I am to hear of your beautiful son's short lived, but much loved life. I am sitting hear, in Tacoma, Spanaway, searching for our shared doctor Kevin Taggart's phone number at SHFM and happened upon your story. I am bawling, unable to fight back any tears. I would like to share with you my life changing event, but like you, it would be lengthly, so I will give you the web address and you can view it on your own time, when you have the time. I pray for all of you. I don't know how we mom's and dad's find that strength to make the best possible decisions for our ill children. Breanna is having another surgery this June 9. She is now 11, paralyzed permanetly since the young age of 3 when a negligent driver hit us highway 16, crossing the grass median. I too was severly injured. I love being Dr. Kevin Taggart's patient. I threaten him all the time about leaving Puyallup. See, I am still crying, perhaps I need to go take a nap. God Bless you all and your young family. I myself am 35 and know hospitals and young children are painfully disturbing and heartfelt, especially when it is your own. We stayed at Good Sam for over a month during Breanna's recovery, after staying at Mary Bridge for nearly 3 weeks in ICU. Thanks for your time. Tammy Regan www.brpf.com
CommentsI've read your story of your son David and it almost word for word the same as ours. We lost our baby girl Gabrielle, last year the 26th of Feb, she was 9 months and 1 day old and in her Mum's and Dad's arms when she went to heaven. The funeral was also on the 1st of March 2003. We released 200 balloons on the day. We miss her so very much, she was our first child. We went through and still go through times of intense sadness that she has gone, but the thought that we will be together again one day helps. We now have a son Zachariah, 10 months old (SMA- free)who reminds us daily of his sister. When we found out about Gabrielle's condition we started writing diary's of Gaby's life each day, along with our thoughts and feelings. After reading your story I think I will make a site as well and record her story. We live in New Zealand and there isn't much of a support group here. We got a lot of our information on SMA from the web sites mainly Families of SMA. Stories like David's and Gabrielle's can give alot of information and help to those who care for children with SMA. Thank you for your story of your son.
CommentsI have SMA Type II. My niece died of SMA Type I at 10 months of age. This is a very nice site. Your son was a gift to this world. Brian
CommentsI am trying to have a baby and i am so glad to know if something bad happens I will be able to get through it. Reading your paper gives me hope.
CommentsI am crying as I'm writing this. What a beautiful little boy David was and what a wonderful tribute his parents have made to preserve his memory! My thoughts and prayers are with you, as I know the pain will always be with you.
CommentsIt's so hard to believe that David has now been gone for over 4 years. The wounds are still there but not as fresh. Not a day goes by where I do not think of my little angel. I'm blessed by God to have known him and had him for the time I did. Things are different in my life now. Family is far more important and I am now a stay at home mom with my 5 year old and 2 year old girls. They are the lights of my life along with my wonderful and very supportive husband. Thank you for taking the time to look at our website and hopefully it directs you somewhere to help fight this disease any way possible. Thank you also for taking the time to read and care about David. It keeps his memory alive. God Bless!
CommentsNo one ever reads these but me. Today my arms ache for the son I had so briefly. I wish I could say my life was perfectly fine, that I have moved on, but I can't. I'm so lucky to have my family they are the only thing that keeps me going sometimes. I miss you David. Love Mommy.
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