This is a place-holding site for
Emily Hope Lee

Please visit our website: http://the-lee-family.us

Emily was born on July 15, 2005.  Shortly after birth she was diagnosed with a terminal neuromuscular genetic disorder called Spinal Muscular Atrophy (SMA), Type I, or Werdnig-Hoffman Disease. (http://www.fsma.org/sma_facts.shtml) 

SMA

• #1 genetic killer of children under the age of two
• One in every 6,000 babies is born with SMA
• Of children diagnosed before age two, 50 percent will die before their second birthday
• SMA can strike anyone of any age, race or gender
• One in every 40 people carries the gene that causes SMA. The child of two carriers has a one in four chance of developing SMA

Please visit our family website for updates on Emily's condition.  Updates, Prayer Requests, Pictures, and information are a few of the things that you will find there.  Please visit again soon! 

Emily's older sister's site is: http://the-lee-family.us/index.php?linneagrace

The Lee Family site is http://the-lee-family.us

Supported by SMA Support