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Our SMA Angels Guestbook





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i am 13 years old and i have some parts of type 2 and dome parts of type 3 SMA.

Added: August 27, 2011
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My beautiful healthy Jada born Oct.13th 2008 was diagnosed with sma June 19th and lost her life July 22nd, 2009 at 9mths old. She is truly an angel.

Added: July 25, 2011
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This past May we lost our beautiful Grandson Kamdyn to SMA1. He was 3 months old. We found out his diagnosis only weeks before he passed; befor then we had never heard of this horible disorder. Am praying that a cure is found soon.

Added: July 8, 2011
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I love this angels page. My daughter had type 1 sma. She was 16 months old when she passed away on thanksgiving 2009. I would like for my daughter to be on this page.

Added: September 14, 2010
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we just lost our son kayden tuller to sma 1 he was 2 1/2,thanks to a loving and devoted mommie we were able too have him this long he was tube free and died in his sleep with us,i still look for him sum times we miss him so much,but i know whats best for us is to have him here with us but whats best for him is to be sma free,and becouse he could not walk in this life he will run in the next,please pray for our son and all of these angels

Added: September 13, 2010
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On the last day of May, my nephew with SMA will be 21 years old and a Sophmore in College. He is going strong! His onset was at 6 months old and was never able to stand. I also read an article about "Ellie" receiving stem cell injections who is now able to take steps where she previously couldn't even lift her legs. SMA research has come along way and I just wanted to add a story of hope for you all who have just started this journey and to see that there is a hopeful future. It may not be the easiest journey but you will touch lives by the way you embrace this challenge. You are the inspirations and don't ever give up!

Added: May 21, 2010
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my daughter olivia ann ralston haves sma type 2

Added: May 13, 2010
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my name is Jessica lee Gonzalez and im from Brownsville Texas. i have a baby boy who is 20 months old and has SMA type 1. he has been through so much and i just wanted to let everybody out there know that parents who have SMA babies go through a lot and being a parent for these kids requires a lot of physical emotional and spiritual strenght! it has not been easy for me at all especially being 18 yrs old (i just turned 18 today). so if you know someone with SMA baby give them as much love and support as you can cause im definitely sure they need it and greatly appreciate it! thankz!

Added: March 15, 2010
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When there is hope, there is no time to waste.

Added: February 19, 2010
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Private post. Click to view.



Added: February 17, 2010
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