How you can help Madison and other
children with Spinal Muscular Atrophy...
Madison Rose Reed,
Dublin, Ohio, was born with a relatively unknown genetic neuromuscular
disease called Spinal Muscular Atrophy (SMA). SMA is a group of
inherited diseases that destroy the nerve cells called motor neurons
controlling voluntary movements such as crawling, walking, head and neck
control and swallowing.
Here are a couple of
startling facts about SMA. One in 40 people is a carrier of the SMA
gene. There is a 1-in-4 chance of passing this gene along, thus
having an affected child. One in 6,000 live births is
affected. SMA is the leading genetic killer of children under the
age of two.
Madison was diagnosed
with the most severe and life-threatening form of this disease, Type 1,
also known as Werdnig-Hoffman Disease.
We have joined forces
with the Ohio State University to support research for SMA and to develop
a clinic at OSU dedicated to SMA. It is our belief that the best
hope for our children lies in the commitment of funds toward this clinic
and in the research to find a cure. Already, OSU has led the way in
blood testing to diagnose SMA. In addition, OSU is raising mice that
carry the SMA gene. Within these mice lies the potential cure for
this dreadful disease.
We will keep you
informed of other events we plan to conduct to support the OSU clinic and
research. Thank you for your generous contribution and help to find
Make a tax-deductible donation to:
Miracle for Madison Fund for SMA
Research at OSU
Ohio State Medical Center Development
Attention: Vickie Van Allen
1375 Perry St., 5th floor, Columbus, OH 43201
Supported by SMA