|
Written Lovingly By My Daddy,
Dave
Almost a year ago I lost my little man
Coby to SMA. I wrote and gave his eulogy at his funeral. It is not
perfect but I wrote it from the heart. I know this may not be the
best place for this but, I love sharing my son with everyone. Before
I read it I made one rule for everyone there. No Crying. I was the
first one to break it but others followed.
Here it goes:
Coby Quinn Kulis
First of all Lori and I want to thank everyone for all the prayers
and support during Coby's journey. Some days the prayers carried the
two of us thru the day.
Coby Quinn Kulis aka little man, super man, cob, Coby Quinn, mini
me, cobsey
Our little boy came into this world on September 22 @ 7:25am
weighing in at 8lbs 12oz. The moment we saw him our eyes filled with
tears. We knew that this little bundle of joy was our son. The
second night at 2am I picked up Coby because he was crying and Lori
started crying herself and said "I can't believe how much he looks
like you". I will never forget the day it was time to take him home.
It was in the 70's and I was sweating because I was so nervous to be
driving with my Coby. I was also nervous because I think I realized
that this little bundle of joy was ours to raise and to care for. No
matter what we had going on Coby was our number one priority.
Since day 1 Coby had a soft cry. Everyone said how lucky we were
because of this. If we had only knew then what we know now. Coby’s
little face could light up any room no matter how dark it was. His
smile was ear to ear. If one of us was ever having a bad day all we
had to do was pick him up and cuddle with him and everything was
fine. Coby's blue eyes could tell a story all by themselves. The
sparkle in them could light up the night like the stars in the sky.
We all know that Coby was never given the chance to have a full
happy and normal life. But we did make the most of the time we had.
Coby loved going for walks with mommy (those walks were both inside
and outside every day at 4pm Coby would be ready for his walk) car
rides and watching his tv. No matter how Coby was doing at anytime
if Caillou was on the tv he was happy. Coby was also a big fan of
music. When he was Younger if he was crying and nothing would work I
would turn on DMB on demand and play Ants Marching and he would
settle down. ( I am still not sure if it was all the colors flashing
on the tv or just from me playing it all the time when Coby was in
mommies belly). He also enjoyed listening to People our Crazy from
Billy Currington. Those two songs could calm him down no matter
what. With that being said my guess is Coby would have been a
musician. We all know about Coby's sponge bob square pants balloon.
Coby would hold this for hours at a time. If Coby was fussy and all
else failed it was sponge bob time and it work. As you could all see
from the pictures online, mommy would lay for hours with sponge bob
in her face. Coby also enjoyed his vibrating bed (giving to him from
early intervention/auntie Kathy) he also enjoyed going to swim
therapy (elaborate about snow storm last time we took him). One of
Coby's favorite places to lay when he was younger was his changing
table (he would always laugh and smile while he was waiting to get
changed).Coby's favorite color was yellow. Coby's favorite drink was
his pedialyte. Coby had his own rules from day 1 stay up until 10
and sleep until 10 the next day. We tried putting him to bed once at
830 to say the least it did not work. Coby won again. Coby was just
like me a mommy’s boy. Early on if Lori left the room Coby would
cry. In order for me to hold him I would either have to walk around
the house or rock in a hard wooden rocking chair. Our first walk
around the house was for 1hr and 30 minutes again Coby wins. It was
not until about he was 4 months old and I was home from work to
spend some time with him that I was able to sit down and hold him.
Coby's strength/courage has touched so many people. Old friends, new
friends, complete strangers, friends and family who have been by our
side since day one. Reading all the wonderful posts on facebook
about how Coby has touch so many lives is truly amazing in itself.
People who have never met him saying that they have come to love
him. That was Coby. You did not have to have ever meet him all you
had to do was see a picture of him and hear his story and you would
fall in love with him. People who have children making sure they
cherish every moment they have with them. Holding them tight, making
sure they tell them how much they love them every day. People
praying every night for a miracle. We are grateful for all the
prayers because every day we had with Coby was a miracle. No matter
how his day was going he would always smile at some point just to
tell mommy and daddy he loved them. Coby as you all know was our
little superman. Coby accomplished more in five months than some
have accomplished in there live times. You are and will always be a
super hero to many people including mommy and daddy. You have showed
us how to be a fighter. How not to give up when times were tough.
How to live a full life in such a short period of time. How to show
true love.
With the help of some friends and my obsession with DMB we found two
songs that really relate to Coby. Godspeed by the Dixie chicks and
my baby blue from DMB. A couple of lines from Godspeed that will
forever link this song to Coby.
God speed little man. Sweet dreams little man
Oh my love will fly to you each night on angels wings
Godspeed sweet dreams
Superman in pajamas on the couch
God bless mommy and match box cars
God bless daddy and thanks for the stars
God hears amen wherever we are
And I love you
And a couple of lines from my baby blue.
Confess, I'm quite not ready to be left
Still I know I gave my level best
You give, you give to this I can attest
You made me, you made me
You and me forever, baby
You rest your head, your strength once saving
And when you, wake you will fly away
Holding tight to the legs of all your angels
Goodbye my love into your blue, blue eyes
In your blue, blue world
You and me forever
The one piece of mind that Lori and I have now is that Coby has his
Grammy and nana to take care of him in heaven. To love and hold him.
If he falls they will pick him up. If he fails they will encourage
him to try again. We know they will raise him to be a wonderful
little man. We also know he will have a best friend in Violet who
also lost her battle to SMA. They will play together, they will
learn to talk together, they will learn to walk together. They will
look down on their mom's and dad's and make sure we are ok.
You will be truly missed but never forgotten. You will always be in
mommy’s and daddy’s hearts and thoughts. Today a piece of me is
gone. It is with my little man. Someday we will meet again and share
stories of your life in heaven with Grammy and nana. And hopefully
we will be able to tell you your name is linked to a cure for this
horrible disease. We love you with all of our hearts. Godspeed
little man. |
