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Name:
AUNTIE KRISTY
Email:
KLHENRY23@YAHOO.COM
Date:
October 03, 2006
Time:
06:56 PM

Comments

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Name:
ronald totanes
Email:
rontotanes@yahoo.com
Date:
July 07, 2006
Time:
09:25 AM

Comments

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Name:
mommy
Email:
ruthiecorby@aol.com
Date:
July 06, 2006
Time:
05:14 AM

Comments

i love you kaelan and karlie so much! my precious beautiful angels, we're so fortunate to be able to have both of you with us. thank you god for letting us keep them in our lives. we're having a blast, creating wonderful memories and spending valuable time with our warriors. you two never stop teaching and reminding me of what life really means. with all my love always, your mommy


Name:
Granny
Email:
cchhenry@aol.com
Date:
July 05, 2006
Time:
03:06 PM

Comments

Hi guys! I had so much FUN yesterday!! I love it when you visit. Kaelan, sorry you didn't enjoy the swimming....I promise next time you come over I will get out the little pool...maybe you will like that one better than the big pool! I totally forget about it yesterday. We still got some pretty cute pictures though that I will be sending over to Mommy soon. Hugs & Smooches!! x0x0x0x0x0


Name:
Granny
Email:
cchhenry@aol.com
Date:
July 05, 2006
Time:
03:06 PM

Comments

Hi guys! I had so much FUN yesterday!! I love it when you visit. Kaelan, sorry you didn't enjoy the swimming....I promise next time you come over I will get out the little pool...maybe you will like that one better than the big pool! I totally forget about it yesterday. We still got some pretty cute pictures though that I will be sending over to Mommy soon. Hugs & Smooches!! x0x0x0x0x0


Name:
Granny
Email:
cchhenry@aol.com
Date:
June 28, 2006
Time:
11:26 PM

Comments

Hi Kaelan & Karlie - Just stopping in to say hi....I enjoyed visiting with you last night! Kaelan, your Old MacDonald song is the BEST!!!! Karlie was signing right along with you too...although she didn't make any of the animal sounds did she! Your donkey is sooooooooo cute HEE HAW! I can't for Poppa to hear you sing your new song. Karlie -- you are such a sweetie, always smiling and humming...I can't wait to hear your sweet little voice when you start talking just like your big brother. Love you guys bunches and bunches! xoxoxoxo


Name:
Dad
Email:
corbyruthie@aol.com
Date:
June 27, 2006
Time:
07:48 PM

Comments

Hi little man and princess!! I was just really thinking about you guys and all you have acomplished over the years. I just wanted to say that I love you two more then anything in the world and I am soooo very proud of you guys. you two are my hero's and you guys make me a better man every day. thank you for opening my eyes to the real world and making me see what life is all about. I love you two!! love always, your daddy


Name:
Sandy Clark
Email:
clalands@pldi.net
Date:
June 25, 2006
Time:
07:14 PM

Comments

Hi to the Henry Family, just stopped by to tell Kaelan & Karlie & family I am thinking of you Hugs Sandy GMA to Saria Clark SMA 1 6-25-01 to 12-02-02


Name:
Granny
Email:
cchhenry@aol.com
Date:
June 21, 2006
Time:
01:35 AM

Comments

Hi guys -- I just wanted to thank you again for 3 wonderful days!! A mini-vacation for sure...but so so much fun....I hope you all had as good a time as I did. I loved watching your faces during our walks and seeing the ocean for the first time and hanging out by the pool with everyone. I can't wait to see all the pictures Mommy took. Love you guys! xoxoxoxo


Name:
Brandi
Email:
blselles@gaggle.net
Date:
April 11, 2006
Time:
12:01 PM

Comments

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Name:
Granny
Email:
cchhenry@aol.com
Date:
March 17, 2006
Time:
11:21 PM

Comments

Hi guys! Happy St. Patricks Day!! Hope you have a wonderful day! Hugs & Kisses. Karlie -- hope you get over your cold real quick! Be strong honey! Love, Granny xoxoxoxoxoxoxoxoxo


Name:
Granny
Email:
cchhenry@aol.com
Date:
March 06, 2006
Time:
01:59 PM

Comments

Hi Kaelan & Karlie! Just popped by to say hi! You were still snoozing away this morning when I came over to take Kayla & Kain to school. I heard you got your Special Valentines this week-end and really liked them a lot!! I am so glad they made you happy. I have to go out of town for a few days...so you guys be good for Mommy & Daddy and your nurses and stay healthy!! Granny loves you...see you on Thursday! XXOO XXOO P.S. Your Great Aunt Karen & 2nd cousin Tiffany and her daughters are coming to visit us this week! I am excited...Karen is my baby sister and I haven't seen her in over 1 year! They are so anxious to finally meet you!


Name:
LINDA
Email:
ebalupias@yahoo.com
Date:
February 23, 2006
Time:
08:41 PM

Comments

Hi! kailan and karlie! Greetings from the Philippines! Just visited your page. So sad to know that there is a disease such as this. We will be praying for you.. God will take care!


Name:
linda
Email:
eba
Date:
February 23, 2006
Time:
08:38 PM

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Name:
MJ
Email:
TWEETYROL88@aol.com
Date:
February 13, 2006
Time:
08:43 PM

Comments

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Name:
Granny
Email:
cchhenry@aol.com
Date:
February 12, 2006
Time:
11:48 PM

Comments

Hi Guys! I'm going to miss you this week...I have to go out of town on business...Kaelan...I will be saying extra prayers that you stay well this week!! Karlie...you stay well too sweetie! Have a Happy Valentines Day...be good for Mommy & Daddy...I know you always are! Tons of hugs & kisses! Love, Granny


Name:
Granny & Poppa
Email:
cchhenry@aol.com
Date:
February 04, 2006
Time:
09:37 PM

Comments

Hi Guys....Carolyn & Chuck talked about you guys all afternoon...they were so happy to be able to see you again. Kaelan they are going to say lots of extra prayers that you get well really quick! Chuck is quite smitten with Karlie..he thinks she is a doll! We agree wholeheartedly!! Lots of love and hugs & kisses! Xxtra special prayers for our big Dino-Boy! Love, Granny & Poppa


Name:
Granny
Email:
cchhenry@aol.com
Date:
January 31, 2006
Time:
06:20 PM

Comments

Hi guys...I just wanted to stop by and tell you how much I love you all and I miss you! Be good...stay healthy and I will see you this week-end! Hugs & smooches xx00 xx00


Name:
MJ
Email:
TWEETYROL88@aol.com
Date:
January 29, 2006
Time:
05:24 PM

Comments

Hope your Valentine's Day is full of fun! <img src="http://i43.photobucket.com/albums/e394/cbfiles/vday_first.gif"> Love, MJ


Name:
Nicole Shaklee
Email:
shakleen@ci.denver.co.us
Date:
January 24, 2006
Time:
02:58 PM

Comments

You are beautiful children! We heard about you through our aunt who went to school with your granny! Our son has SMA also and we live in Colorado. We hope to meet you at the conference! You are special and it appears that you are surrounded by much love. God bless all of you.


Name:
Julia Ortego
Email:
lovebindsus@bellsouth.net
Date:
January 15, 2006
Time:
04:05 PM

Comments

julia loves your pics and site.. www.caringbridge.org visitor la princessjulia bye bye


Name:
MJ
Email:
TWEETYROL88@aol.com
Date:
January 13, 2006
Time:
12:48 AM

Comments

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Name:
Granny & Poppa
Email:
cchhenry@aol.com
Date:
January 11, 2006
Time:
05:59 PM

Comments

HAPPY 4th BIRTHDAY KAELAN!!!!!!!!!!!!! We love you tons & tons....you're growing so fast honey. Hugs & Kisses, Granny & Poppa


Name:
gma SANDY TO SARIA CLARK
Email:
Date:
January 03, 2006
Time:
08:58 PM

Comments

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Andie Quezada
Email:
msandeegirl1@aol.com
Date:
January 02, 2006
Time:
10:48 PM

Comments

Cool website guys! Hope you all had a merry Christmas. Love always


Name:
Granny & Poppa
Email:
cchhenry@aol.com
Date:
January 01, 2006
Time:
08:13 PM

Comments

HAPPY NEW YEAR!!!! We had such a fun time last night at your News Year Eve Party! Kaelan...you are such a big flirt....we LOVED watching you dancing with Auntie Jessie and it was so funny when you kept telling me & Grandma Lynn that Grandma's can't dance!! Karlie...you were so sweet and happy as always...you even stayed up to ring in the New Year!! Betcha you're tired today! We love you all so much...stay healthy and happy and we'll have a truly wonderful 2006! Love, Granny & Poppa


Name:
Auntie
Email:
crosby4@adelphia.net
Date:
December 31, 2005
Time:
01:12 PM

Comments

Hi Guys its us! We just want to let you know that we are thinking of you and love you all! We had such an AMAZING visit with you! I am glad that the holidays have brought so many people that love you your way for some extra special visits! Well I promise I will get back into the swing of things and put some of the new pictures of all you guys up for everyone to enjoy! HUGS AND KISSES! Hope you all have a wonderful and SAFE new year!


Name:
Almeida Family
Email:
valmeida@hotmail
Date:
December 26, 2005
Time:
11:21 PM

Comments

Hi Ruthie, Kealen & Karlie...I finally got to sit down and view your website..... oh my gosh Ruthie!!! your sister-in-law is so grest to do this for the kids. We all really enjoyed looking at all the great pic of the kids :).... I love seeing Karlie in her pictails she is so cute and Kealen he is always so happy huh... :) Well I just wanted to say thanks again for sending the kids site, again we really enjoyed it. I hope you all had A Merry Christmas!!! Love the Almeida Family, Vicki, Ruben , Daniel, Natalie & Mariah P.S. There will be more comments coming from us :)


Name:
Granny & Poppa
Email:
cchhenry@aol.com
Date:
December 25, 2005
Time:
03:08 PM

Comments

MERRY CHRISTMAS!!! We really enjoyed spending Christmas Eve with you all! Hope Santa brought you everything your heart desires today! Love & kisses, Granny & Poppa


Name:
Granny & Poppa
Email:
cchhenry@aol.com
Date:
December 24, 2005
Time:
04:10 PM

Comments

Hi guys...it's Christmas Eve! We're so excited and can't wait until this afternoon to visit and watch you open your gifts! I took a trip down memory lane today...looking at all your beautiful pictures from when you were tiny babies until today. I'm so proud of you..and so proud of Daddy & Mommy and Kayla & Kain...you're so dear to us...you're our hero's. All our love x0x0x0x0 Merry Christmas 2005!


Name:
Granny & Poppa
Email:
cchhenry@aol.com
Date:
December 24, 2005
Time:
04:10 PM

Comments

Hi guys...it's Christmas Eve! We're so excited and can't wait until this afternoon to visit and watch you open your gifts! I took a trip down memory lane today...looking at all your beautiful pictures from when you were tiny babies until today. I'm so proud of you..and so proud of Daddy & Mommy and Kayla & Kain...you're so dear to us...you're our hero's. All our love x0x0x0x0 Merry Christmas 2005!


Name:
cathy davis
Email:
cjmd1988@sbcglobal.net
Date:
December 24, 2005
Time:
10:22 AM

Comments

just stopped in to wish you all a Very Merry Christmas and a GREAT NEW Year!!! much love aunt cathy xxx OOO


Name:
Cathi Dissinger
Email:
cathidee@cox.net
Date:
December 22, 2005
Time:
01:42 PM

Comments

Hi! I love your website. You are such beautiful angels!! I am a friend of your grandmother's and I live in Orange County. Actually, I haven't met any of you but feel like I know you because your grandmother works with a friend of mine. We are in a small group and we pray for all of you every day. I hope you have a wonderful Christmas. Please know I am always thinking about you...I have three grandchildren too...grandmothers always want to hug and kiss you...if I were closer I would hug you too!! Love, Cathi


Name:
gma SANDY TO SARIA CLARK
Email:
clalands@pldi.net
Date:
December 22, 2005
Time:
03:25 AM

Comments

wow wow is all i can say, you 2 are growing up so fast and getting so big. Sending hugs and eskimo kisses from me and Saria, have a good christmas !! Love you guys, San dy


Name:
Auntie Jen
Email:
lakergrl74@hotmail.com
Date:
December 21, 2005
Time:
12:49 AM

Comments

Hey kids- just stop by to say MERRY CHRISTMAS AND HAPPY NEW YEAR. see ya on christmas day:0)I hope Santa brings you everything on your list. love ya Jen


Name:
MJ
Email:
TWEETYROL88@aol.com
Date:
December 17, 2005
Time:
07:52 PM

Comments

Happy Holidays to you! <u>C</u>andles are a gift of light, <u>A</u> tiny sun, a bit of star. <u>N</u>o other dancer in the night <u>D</u>ances with such sheer delight, <u>L</u>ittle souls serene and bright, <u>E</u>ach a glimpse of what we are <u>S</u>hining innocent and pure. ~Author Unknown~ Since I didn't have enough cards to send one to each of you, check out <a href="http://www.mjthesmaqueen.com/indexgreeting">Your Holiday Card from MJ</a> <img src="http://www.mjthesmaqueen.com/MerryChristmasHappyNewYear-2.gif"> Hugs, MJ http://www.mjthesmaqueen.com


Name:
Janice Troy
Email:
momangelsthr@aim.com
Date:
December 13, 2005
Time:
11:31 PM

Comments

Hi we saw you listed on MJ's friends page. You are very brave just like MJ and my daughter Maddison. Maddison is five and sends her love to you. We are sending you hugs and smiles today. Love, Janice Troy & Maddison www.caringbridge.org/visit/maddisontroy


Name:
MJ
Email:
TWEETYROL88@aol.com
Date:
December 12, 2005
Time:
11:00 AM

Comments

Hello! I thought I would share this beautiful website with you and your family. <a href="http://www.wisehearts.com/CmsMF.htm">Merry Christmas to My Friend!</a> Wishing you and yours a wonderful week! <img src="http://www.mjthesmaqueen.com/schlittencujo.gif"> MJ http://www.caringbridge.com/ny/mjpurk


Name:
gma SANDY TO SARIA CLARK
Email:
clalands@pldi.net
Date:
December 07, 2005
Time:
12:53 AM

Comments

hi kid's just popped in to see your site again and to let you know we are thinking of you 2 precious SMA children; message from above I AM SURE, love to both from SWClark .... she knows how much i think of you 2 and I know she sends special HUGS AND ESKIMO KISSES from Heaven Love GRAM Sandy to Saria


Name:
MJ
Email:
TWEETYROL88@aol.com
Date:
December 03, 2005
Time:
02:28 AM

Comments

Hello again, I wanted to wish you and your family (a bit early) very happy and healthy holiday season. I'll be back again very soon! Happy, warm hugs coming your way! <img src="http://www.mjthesmaqueen.com/SantaBearHappyHolidays6555.gif"> MJ http://www.our-sma-angels.com/Margaret


Name:
Granny
Email:
cchhenry@aol.com
Date:
November 28, 2005
Time:
11:22 PM

Comments

Hi...Granny here....just popping by to check out who's been visiting! We had so much fun on Saturday at your house with all your Aunties & Uncles and cousins there! We are so blessed and thankful for our families! Hugs & kisses my angels!


Name:
William
Email:
wsummers02@hotmail.com
Date:
November 22, 2005
Time:
05:57 PM

Comments

Terrific website you operate. I would like to put one on my pay day site. Take care. <a href="http://www.ontimepaydayloan.com">Pay Day Loans</a> http://www.ontimepaydayloan.com


Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
November 21, 2005
Time:
11:26 AM

Comments

Hi! Just wanted to wish you an your family a very happy Thanksgiving! Have a great day and I hope you enjoy yourself with your family! <img src="http://mjthesmaqueen.com/PILGRI317.gif"> If you send me a picture of you and your family or just you, I will add it to my page next week! <img src="http://mjthesmaqueen.com/trkyb5wscp_e0.gif"> MJ http://www.caringbridge.com/ny/mjpurk


Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
November 12, 2005
Time:
08:06 PM

Comments

Hi! How are you? I can't believe it is already November! It has been nice and warm here so I am not ready for Thanksgiving. Hope you are able to enjoy the upcoming holidays! Have a great week! <img src="http://mjthesmaqueen.com/pilkids.gif"> MJ www.mjthesmaqueen.com


Name:
Rhonda Rios
Email:
bitbit73@yahoo.com
Date:
October 30, 2005
Time:
10:25 PM

Comments

Hey Kids....Halloween is almost here....I wish I could be there to see you both in your costumes, but I am sure there will be lots of pictures!!!...Have fun and I will see you both next weekend! Love, Auntie


Name:
KAYA
Email:
Candykain@aol.com
Date:
October 29, 2005
Time:
12:49 PM

Comments

HI I HAVE SMA THE WORST TYPE I WOULD LIKE KAELAN TO EMAIL ME i am in a wheelchair and been in the hospital and i am 11 years old


Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
October 14, 2005
Time:
04:33 PM

Comments

Happy Halloween! I know it is early but I wanted to make sure I stopped by before Halloween. I hope that you have a great Halloween! If you are looking for some Halloween fun, visit http://www.mjthesmaqueen.com/indexSMG <img src="http://mjthesmaqueen.com/snags/halloweenanimation.gif"> Love, MJ


Name:
kristy henry
Email:
crosby4@adelphia.net
Date:
September 26, 2005
Time:
05:20 PM

Comments

Hey guys i just wanted to drop in and see if mommy has been able to post a update on how everyone is doing! I hope everyone is doing well and that things will start to get a little easier for you all. I hope you enjoy your new pages there are more to come soon! We love you and hope to see you soon! GOD Bless you! Love, Auntie


Name:
Granny & Poppa
Email:
cchhenry@aol.com
Date:
September 23, 2005
Time:
10:24 PM

Comments

Hi Luvs, Granny & Poppa were checking out the new pages & pictures that Aunt Kristy put up on your site. Cutie pies!! Kaelan, we're so so happy you are home from the hospital and doing so well! We'll see you tomorrow when we bring Karlie's new bed over. Hugs & kisses from both of us! Give the extra ones to Kayla & Kain. All our love xoxoxoxoxo


Name:
Granny & Poppa
Email:
cchhenry@aol.com
Date:
September 23, 2005
Time:
10:23 PM

Comments

Hi Luvs, Granny & Poppa were checking out the new pages & pictures that Aunt Kristy put up on your site. Cutie pies!! Kaelan, we're so so happy you are home from the hospital and doing so well! We'll see you tomorrow when we bring Karlie's new bed over. Hugs & kisses from both of us! Give the extra ones to Kayla & Kain. All our love xoxoxoxoxo


Name:
cathy & john davis
Email:
cjmd1988@sbcglobal.net
Date:
September 20, 2005
Time:
04:49 PM

Comments

you are always in our prayers


Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
September 10, 2005
Time:
05:36 PM

Comments

Hi Friends: I'm SO sorry that it has been so long since I have visited you! I had a very busy summer ,including visits to Ohio, New Jersey, Connecticut, and Virginia Beach. How was your summer? I hope you are feeling well and if you are not, GET BETTER SOON! I will be back soon and will try to sign at least once a month! My banana, Annie Bannie, wanted to say hello to you! <img src="http://i5.photobucket.com/albums/y185/bshanson68/ani-bani.gif"> Big hugs, <A HREF=http://www.caringbridge.org/ny/mjpurk target="blank">MJ</A>


Name:
kristy henry
Email:
crosby4@adelphia.net
Date:
September 10, 2005
Time:
01:25 PM

Comments

Hey Kaelan! Granny told me that you are doing better! Hurray! I am so glad to hear that. You are a STRONG BIG boy sweetie and we love you so much! Keep up the AMAZING work! love auntie kristy


Name:
Rhonda Rios
Email:
bitbit73@yahoo.com
Date:
September 08, 2005
Time:
08:41 PM

Comments

Hi Kaelan, I have been praying for you every night. I know you will get better because of all the love surrounding you. Like I have always said before, you are amazing!....Please get better soon! I will be calling mommy every day to see how you are doing. I love you with all my heart. May God give you all my strength to keep fighting! Always, Your favorite Auntie (RHONDA) P.S. By the way, that was a really great story Cindy. It's not everyday that we run into people who are selfless and giving!.... It just gives all of us hope knowing there are really truley good people out there!


Name:
Granny
Email:
cchhenry@aol.com
Date:
September 07, 2005
Time:
12:14 AM

Comments

Lots of extra prayers coming your way Kaelan! I know you had a rough night last night and today was tough too. I pray that you will get over this quickly! I sure enjoyed reading you books tonight and it seemed to make you happy and calm you down. I love you Dino-Boy...you be strong and kick this cold or whatever it is quickly! All our love, Granny & Poppa


Name:
kristy henry
Email:
crosby4@adelphia.net
Date:
September 06, 2005
Time:
06:15 PM

Comments

Hey kids! It's Auntie. I just was stopping in and read about how you all are doing. That is good news to hear that everyone is doing well! I hope you all are enjoyed your time together this summer. We love and miss you all! Take care and God Bless you! love auntie


Name:
ruthie (mommy)
Email:
ruthiecorby@aol.com
Date:
September 02, 2005
Time:
03:01 AM

Comments

hello everyone, i just want to say thank you so much to all the people that have taken the time to visit, also with your wonderful thoughts and prayers. i appologize for not updating like i should. slowly i will try to be posting updates and put some of my own touch ups on the site soon. here's a brief update on the kids: karlie has been doing pretty well. sometimes it still seems we are all recovering from her last hospital stay. since she has been home we have adjusted well with the changes and she seems more comfortable and stable. although lately she has been pretty fussy from teething and getting over a cold. we will be celebrating her 2nd birthday on september 14th, hurray for our baby girl karlie! kaelan has been doing really well. he will be hospitalized for a planned surgery on september 21st. if there are no complications he should only be in for no more than a week. he's been healthy for good while, thank god. but we are trying to prepare as much as we can before then. can you guys believe he's going to be 4 years old soon. congrats, for our big boy kaelan. kain has had more energy this summer, didn't think he could have anymore huh. he can't stop talking or bouncing off the walls, gotta love him though. he starts 1st grade soon and doesn't want to go back to school because he's having too much fun being home, sleeping and waking up late. i'm sure he'll be so excited his first day though because he says he misses his buddies at school. kayla has started junior high and was pretty nervous, but excited at the same time. she's enjoying it and doing good now, thank goodness. i can't help but be worried and afraid for her. she thinks it's so different than elementary and that it's almost like the way movies with teen kids are at school setting scenarios, how funny she is. she just turned 12, ya i know, fortunatley she is a really good girl. well that's it for now, take care. thanks again to everyone and please keep the hopes and prayers flowing.


Name:
Granny
Email:
cchhenry@aol.com
Date:
September 01, 2005
Time:
06:20 PM

Comments

Hi Kaelan & Karlie, I was just looking through your site again to see if Aunt Kristy had added anymore pictures and to see who's been visiting you. I missed you this week when I was out of town. I'm so happy that Karlie is feeling better! Love you guys bunches! See you soon. Hugs & Kisses XXOO XXOO


Name:
Granny
Email:
cchhenry@aol.com
Date:
September 01, 2005
Time:
06:20 PM

Comments

Hi Kaelan & Karlie, I was just looking through your site again to see if Aunt Kristy had added anymore pictures and to see who's been visiting you. I missed you this week when I was out of town. I'm so happy that Karlie is feeling better! Love you guys bunches! See you soon. Hugs & Kisses XXOO XXOO


Name:
Nancy
Email:
nimugshots@msn.com
Date:
August 30, 2005
Time:
04:57 PM

Comments

Kaelan and Karlie, You sound like you have been blessed with many people who love you. You are in my prayers. Nancy


Name:
Jenny
Email:
millertime31560@yahoo.com
Date:
August 17, 2005
Time:
10:45 PM

Comments

I also have a little girl with sma type 1 and she is 6 yrs.old now. You little boy favor her alots when she was at that age. All of your children are precious. My little girl name is Kalei Ann Miller.


 
Name:
gma SANDY TO SARIA CLARK
Email:
clalands@pldi.net
Date:
July 04, 2005
Time:
09:29 PM

Comments

Hi guys, just stopping in today on the 4th to wish you a great 4th of July and hope you enjoy the fireworks. Your granny is so proud of you both and I know how much she loves you. I can read it in her postings. Keep strong and keep fighting. You are both very brave children. Sandy GMA to Saria 6/25/01 to 12/02/02


Name:
Granny
Email:
cchhenry@aol.com
Date:
June 18, 2005
Time:
12:16 AM

Comments

Hurray!! Karlie's Home!!! Sweetie...it was so wonderful to see your bright smile when you woke up and found yourself back at home in your own bed. You're amazing and such a fighter. Dad & Mom fought very hard to get you home today. I'm so proud of them and you! Can't wait to see you tomorrow. We're going to have lots of fun. Uncle Toby & Aunt Kristy and your cousins, Trevor & Tevan will be here. We're going to celebrate you being home and Kain's 6th birthday tomorrow. Hugs & Kisses, Granny & Poppa


Name:
Uncle Toby
Email:
jhenry74@excite.com
Date:
May 26, 2005
Time:
12:36 PM

Comments

Hello Kaelan & Karlie! I thought I would stop in and say hello. I love you both and just wanted to say I am proud of you both. Keep fighting you guys, you're doing great! Corby & Ruthie...I can never imagine the pain that you have gone through, I know how much it makes my heart ache. You two are wonderful parents and keep fighting for what you think is best for my beautiful nephew and niece!! Take care and love you all! :)


Name:
Auntie
Email:
crosby4@adelphia.net
Date:
May 13, 2005
Time:
07:33 PM

Comments

Hi Guys it's me. I wanted to leave a little note to tell you how proud I am of you all. Kaelan I heard all about you giving everyone a little lip. you are so smart. I enjoyed talking to you the other day! Karlie miya you are a true fighter We can't wait to see you! Get better soon a lot of people are keeping you and our family in their thoughts and prayers. We love you hugs and kisses!


Name:
Granny
Email:
cchhenry@aol.com
Date:
May 10, 2005
Time:
09:39 PM

Comments

Kaelan & Karlie, I love you...saying lots of prayers that you are home from the hospital soon. Karlie Miya...be strong and fight sweetie! Kaelan, you keep giving those doctors lip!! I loved seeing you both today, reading books to Kaelan and holding Karlie's hands..thanking God for bringing you into our lives and sending prayers to God to bring you home soon. Love with all my heart!! xoxoxo


Name:
Granny
Email:
cchhenry@aol.com
Date:
May 04, 2005
Time:
09:27 PM

Comments

Lots of love! I just stopped in to see some of the updates that Aunt Kristy is making. I really enjoyed spending time with you yesterday...reading dinosaur books to Kaelan. Watching Kaelan singing and dancing to his favorite video...you've sure got rythym big guy! Karlie, so precious, rocking you to sleep last night. Hugs & kisses to everyone! xxoo


Name:
Auntie Rhonda
Email:
bitbit73@yahoo.com
Date:
May 02, 2005
Time:
12:32 AM

Comments

Hi Kids, I just wanted to let you guys know that I miss you so much so I had to go into your website to look at your beautiful faces!....I will be visiting soon....Good Night and God Bless! Auntie Rhonda


Name:
Rhonda Totanes-Rios
Email:
bitbit73@yahoo.com
Date:
April 27, 2005
Time:
01:32 PM

Comments

Hi everyone, I am Kaelan and Karlie's proud Aunt and very proud sister of Ruthie. I am so happy to be a part of these two little angel's lives. They remind me everyday that life is precious and worth living!I love them and my sister so very much. Thanks for creating this website!


Name:
Grandpa & Grandma T
Email:
wltotanes@yahoo.com
Date:
April 26, 2005
Time:
09:23 PM

Comments

Great Website!! extend our thanks to Kristie. She did an outstanding job. See you all soon..


Name:
Auntie
Email:
crosby4@adelphia.net
Date:
April 22, 2005
Time:
10:25 PM

Comments

Hi guys it's me I just wanted to drop in and say hi and I love and miss you guys! Also I wanted to say thank you to everyone who enjoys coming here to visit Kaelan and Karlie's site. We love to see everyone who visits. So thank you for taking time to come and get to know our family and for helpings spread awareness.


Name:
Joanna Kurek
Email:
JoannaKurek@aol.com
Date:
April 21, 2005
Time:
10:10 PM

Comments

Great story! You guys sound like a very happy family. I have a 5 year old daughter, Natalie-SMA free. My baby girl Isabella, now 16 months has SMA type I. She has been trached since November and is on C-pap. She had the trach done at the same time as gastric tube. Everything is stable for now and we are looking towards warm weather so we can spend more time outside. I will be checking for more updates. Take care of each other. Best wishes, Joanna


Name:
Heather Dunham
Email:
Motherlyisis@aol.com
Date:
April 18, 2005
Time:
02:20 AM

Comments

Hello, I came across your name on the website I thought I check it out. Way to cute. I am glad That all is well with your children. I have a son named Kaige who has SMA type one as well he will turn 2 next month in May. We live in California and we go to Stanford for a clinical study.And he is also doing great. Please e-mail me I would love to talk to you. Thank you for sharing your picture they were a joy to look at . You son looks like my son Kaige. Heather Dunham


Name:
Irene
Email:
irene_mendiola2004@yahoo.com
Date:
April 12, 2005
Time:
11:39 AM

Comments

i'm heidi slapo-totanes' sister.. i'm very happy to get into kaelan and karlie's site. they are very fortunate that they are very well taken cared of and sincerely loved by the people around them. i pray that other babies and kids of the same condition as theirs are fortunate as them cos they are all God's special angels who need very special caring. God bless all the people who unconditionally give themselves to these beautiful babies.. :-)


Name:
Auntie
Email:
crosby4@adelphia.net
Date:
April 11, 2005
Time:
05:21 PM

Comments

Hey guys it's me. I just wanted to stop in and let you know that we had a wonderful visit this weekend! I saw the drawing that kayla won a contest for and it is AMAZING! Good job. Kain I heard you really did AWESOME in your baseball game. Uncle Toby and trevor said you did Great! Of course Kaelan auntie really enjoyed singing to you. Next visit it will be your turn. I will try and learn the words to some new songs. You are just such a SMART little guy! I can't wait to see you soon! To little Karlie girl you are so BEAUTIFUL and boy do you love those cookies! I got a lot of cute pictures of you. I got good ones of our entire visit. Well we love you and can't wait to see you again soon!


Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
April 11, 2005
Time:
10:54 AM

Comments

Hi my friend!! Did you know that <img src="http://www.mjthesmaqueen.com/snags/ItsSpring-jumpingFrog.gif">??? I hope that you had a very happy Easter! I got to go to Ohio and spend time with my family and friends. I put pictures up on my website so <a href="http://www3.caringbridge.org/ny/mjpurk/photo.htm"> check it out </a>, if you want to. I'm so glad that <img src="http://www.mjthesmaqueen.com/snags/srungturtle.gif"> Love and warm Spring hugs, <a href="http://www3.caringbridge.org/ny/mjpurk/"> MJ </a>


Name:
Dawn
Email:
LMenace12@aol.com
Date:
April 08, 2005
Time:
08:31 PM

Comments

Hi you guys!! Hope all is well.....Loved the website, the pictures are adorable. We need to have a get together real soon..We miss you guys!! Talk to you soon. Love, Dawn


Name:
Charlene Boske
Email:
cjboske@aol.com
Date:
April 07, 2005
Time:
02:59 PM

Comments

What an AMAZING Web-site. Thank you so much for sharing it with me. Not only did I get to see your BEAUTIFUL Children, but I was able to be informed about a disease I knew nothing about. I will definitely be a return visitor. May God bless you and your beautiful family and keep you safe in his loving arms.


Name:
Sarrah
Email:
sgarcia@pactiv.com
Date:
April 06, 2005
Time:
11:14 AM

Comments

This is a really cool website. Tell everyone I said hi. We'll come visit soon. We all miss you guys!


Name:
The Tamez Family
Email:
jenniferltamez@aol.com
Date:
April 06, 2005
Time:
11:09 AM

Comments

Great website! I really enjoyed all the pictures of the kids. I hope all is well with you and your family. We will continue to pray for you guys. Tell Kayla that Kiana said hi and I hope we see you guys real soon. Hugs!


Name:
Granny
Email:
cchhenry@aol.com
Date:
April 06, 2005
Time:
12:14 AM

Comments

Hi! It's granny...just dropping in to see the new guestbook signings. I am so happy your family and friends have visited your site and left loving messages Mommy & Daddy can share with you. Kaelan I had such fun today when I stopped over. You are growing up so quickly and you're as smart as a whip and so handsome! Karlie Miya Moo...it just melts my heart when your eyes light up when I say hello and give you kisses and you give me such a sweet little smile. I love you and am so proud that God chose us as your family. Love, Granny & Poppa (too)


Name:
Michelle
Email:
Qtmytrang@cox.net
Date:
April 05, 2005
Time:
11:06 PM

Comments

Your babies are so beautiful. I'm happy to hear that they are doing well. Joshua and Jorrell would love to meet their cousins. Keep in touch and take care. Remember, there are us in Az who love and miss you. Michelle, Josh & Jorrell


Name:
The Price Family
Email:
Date:
April 05, 2005
Time:
04:27 PM

Comments

We love the site and are so glad to hear all is well. I still Have kaelan's lst year with us album that is almost finished. Plus, lots of pictures of kayla and kain. I promise I will continue to work on it and get it finished for your family. With love, Deb,Terry,Morgan and Doralysse


Name:
Auntie Jen
Email:
lakergrl74@hotmail.com
Date:
April 05, 2005
Time:
10:49 AM

Comments

That is so cute. Hi Kaelan, Hi Karlie. Hi Kayla, Hi Kain.


Name:
mitch totanes
Email:
solice76@yahoo.com
Date:
April 04, 2005
Time:
09:45 PM

Comments

This is cool!!! Give the kids a big kiss for us.


Name:
Edith Willis
Email:
edithwillis@webtv.net
Date:
March 30, 2005
Time:
12:21 AM

Comments

I just happened to find your site tonight. You are both so very beautiul! You have a wonderful family, whom I know loves you very much. May God bless and keep you. I will check back often for up dates and to view your pictures. Sending my love Edith Willis


Name:
Auntie
Email:
crosby4@adelphia.net
Date:
March 18, 2005
Time:
02:36 PM

Comments

Hey little ones it's me again. Just wanted to stop by and see all of your sweet faces. We all miss you guys and hope to see you soon. Hope kain is starting to feel better. And kayla I can not wait to see your picture that you won 2nd place in your contest! Kaelan what a stong little man you are. We are amazed by your strength everyday! Karlie I can not wait to see your little angel face again and watch you fuss any time mommy comes in the room. Hope everyone is doing wonderful we will see you soon! We love you guys and think of you everyday!


Name:
GMA to Saria
Email:
clalands@pldi.net
Date:
March 10, 2005
Time:
12:32 PM

Comments

Came in to look around, Kaelan you are getting so big!! and Karlie is growing fast also. Love the website, you guys did a great job with it Sandy Clark


Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
March 08, 2005
Time:
11:34 AM

Comments

Hi: I know that I am early, but I wanted to wish you and your family a <img src="http://pic17.picturetrail.com/VOL815/2822478/6549091/88274216.jpg"> & <img src="http://pic17.picturetrail.com/VOL815/2822478/6549091/88272883.jpg"> I hope you enjoy your Spring!! Love, <a href="http://www.mjthesmaqueen.com/"> MJ </a>


Name:
Granny
Email:
cchhenry@aol.com
Date:
February 27, 2005
Time:
12:34 AM

Comments

Just stopping by to check to see if there are any new pictures or news on your site. I love looking at the pictures...they tell such a beautiful story about your life. I love you! Hugs & Kisses xxoo Love, Granny


Name:
Auntie
Email:
crosby4@adelphia.net
Date:
February 21, 2005
Time:
10:07 PM

Comments

Hi Guys it's me, I was just on the computer and I am always checking out this site, but I do not let you know that I was here. I have been thinking a lot about our visit to see you and your family. It makes my heart warm to be able to be close to you all. I sure hope you are enjoying the new puppy daddy brought home for you all. Hopefully she is learning the rules quickly. I just wanted to drop a note to say I am thinking of you all often and can't wait for our next visit! HUGS AND KISSES EVERYONE WE LOVE YOU!!!


Name:
Karissa Mobilia
Email:
karissa.rose@cliffstar.com
Date:
February 16, 2005
Time:
02:42 PM

Comments

Thanks to Cindy Henry for sharing this website with me. Your grandchildren are so beautiful and I admire the efforts on behalf of yourself and your family to make people more aware of this disease and how they can help!


Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
February 14, 2005
Time:
12:30 PM

Comments

<img src="http://www.mjthesmaqueen.com/polarbear_val.gif"> I hope you have a very happy Valentine's Day! Love, MJ


Name:
burga
Email:
blaesser@cannonsafe.com
Date:
February 10, 2005
Time:
12:18 PM

Comments

Hi, the pictures tell a story. Can't belief that Kaelan is 3 already. All the best for all of you. Love Burga


Name:
Laurie Siraguso
Email:
laurie.siraguso@cliffstar.com
Date:
February 09, 2005
Time:
09:45 AM

Comments


Name:
Bobbi Storer
Email:
Bobbi.Storer@Cliffstar.com
Date:
February 09, 2005
Time:
09:26 AM

Comments

Cindy Henry has the sweetest grandchildren! We hear alot about you! I wish you all the best of health and happiness!


Name:
Kim Schindler
Email:
Kimberly.Schindler@Cliffstar.com
Date:
February 09, 2005
Time:
08:39 AM

Comments

Very nice job on the website. The children are absolutely BEAUTIFUL!!!


Name:
Jan
Email:
jkochers@herspring.com
Date:
February 08, 2005
Time:
02:52 PM

Comments

Beautiful children, may God continue to watch over them......Jan


Name:
Karen - Mom to Connor type 1, almost 3!
Email:
threereillyboys2002@yahoo.com
Date:
February 06, 2005
Time:
06:04 PM

Comments

Hello to the Henry's!! It's so wonderful to see your website - everyone in the family looks fantastic! Thanks so much for sharing and I will come here from time to time for updates! Connor is doing well and sends some hugs your way!


Name:
Charlie, Kim, Lily and John
Email:
charlies-mom@oursmaangels.com
Date:
February 02, 2005
Time:
07:07 PM

Comments

Just thought I'd check out your new site! It looks great. We'll check back often. Hugs from Charlie, Lily, John and Kim


Name:
MJ
Email:
TWEETYROLL88@aol.com
Date:
February 02, 2005
Time:
12:17 PM

Comments

Hi !!!! <img src="http://www.mjthesmaqueen.com/image006.gif"> Mickey and I wanted to say HAPPY FEBRUARY!!!! I hope you are doing well today. Big hugs to you and your family! Love, <img src="http://www.mjthesmaqueen.com/MJButterfly.gif"> http://www.caringbridge.com/ny/mjpurk - My Journal http://www.our-sma-angels.com/Margaret/ - My Original Website http://www.mjthesmaqueen.com/ - My New Website


Name:
Terri
Email:
im2nr2trn@cox.net
Date:
January 30, 2005
Time:
10:06 PM

Comments

Hello, Your site is great. All of your kids will be in our prayers.


Name:
karen Weikle
Email:
weikfam@aol.com
Date:
January 29, 2005
Time:
05:09 PM

Comments

awesome website, I really enjoyed looking at it. Thanks for sending it to me. I love looking at all the pictures of all of you Love you all and and seeing this makes me miss you guys even more I will come back and check it often Sometimes in life we wonder what God has planned It is clear that he sent this family two remarkable sweet loving children we will keep your family in our prayers and Corby and Ruthie I am so very proud of you, you both are amazing. I love you


Name:
Terri Westfall
Email:
twestfall@unitedtitle.com
Date:
January 25, 2005
Time:
02:31 PM

Comments

What a great web-site and a beautiful way to share your sweet babies life with us all. Kaelan and Karlie touch each any everyone who hear their story. How can two very special children not change this world and show us so much beauty and grace. May God's Blessing be upon you and your family this day and everyday. Love, Terri


Name:
GMA to Saria
Email:
clalands@pldi.net
Date:
January 25, 2005
Time:
01:54 AM

Comments

Kaelan, woops I missed your wonderful wonderful 3rd birthday!!! and how exciting it must have been for all your family. I am so proud of you, you are showing all these people what you can do and you are a very brave little boy. Hugs from Oklahoma

Name:
Granny & Poppa
Email:
cchhenry@aol.com
Date:
January 22, 2005
Time:
11:37 PM

Comments

Just stopping by to tell you that Granny & Poppa love you all so much! We had fun today at your b-day party Kaelan! Your cake was so yummy! Tomorrow we will come back over so we can finger paint since we didn't have a chance today! Hugs to everyone including Mommy & Daddy!


Name:
Teresa Rich
Email:
blurainmite@aol.com
Date:
January 22, 2005
Time:
02:34 AM

Comments

What beautiful children. Thank you Cindy for sending me this link. This is a wonderful thing to share with us. I am extremely touched by the strength of their parents. Especially when they are smiling in these pictures. When God gives us such special children I think we blossom as His children. You are all such a very strong family and I will keep you all in my prayers but most of all that a cure will be found for Kaelan and Karlie. They are so blessed to have such a wonderful family. Im sure they bring you so much joy. You can see it in their eyes. May God be with them every second of every day. He is as He is with all of you. God bless and thank you for sharing with me.


Name:
Laura Stants
Email:
laura@our-sma-angels.com
Date:
January 20, 2005
Time:
02:12 PM

Comments

Hi Kaelan & Karlie! I love seeing your pictures online, and I hope you know what a wonderful family you two have! :)


Name:
Granny
Email:
cchhenry@aol.com
Date:
January 20, 2005
Time:
01:59 PM

Comments

Hi Kaelan & Karlie! I sent the link to your website to a lot of my friends. I know a few already checked out your site but maybe didn't leave a note...I'm sure they'll come back and visit often. I am so proud to be your Granny! I love you both so much! Hugs & Kisses xxxxoooo


Name:
GMA Sandy Clark to Saria Clark
Email:
clalands@pldi.net
Date:
January 18, 2005
Time:
11:24 PM

Comments

OH MY GOSH!! I am so so so excited to se this site of Kaelan and Karlie!! My favorite little boy and girl to enter my life since Saria!! THANKS for giving us this site, you guys are awesome!! SIMPLY AWESOME! I do realize how hard it was to do this, believe me I do. But I think you will find it healing when you see how many people will appreciate your efforts and Your Family Story. Gosh, I am jumping up and down for joy!! I love it, really I do. I know how hard it was for Jeff and Tara to finally share Saria's Story with "THE WORLD". At first they were mad at me because they did not want anyone to feel sorry for SARIA. I tried to explain to the kids, it is a healing process, Saria was not looked upon as a "weird kid" Saria was here to share the story of SMA and to help others understand. OH MY GOSH. I just cant get over this. I waited and waited for Kaelan and Karlie to come :ON BOARD: Welcome kids, I love you so much even though we have never met. Kaelan. little guy YOU ARE AN INSPIRATION to me, to Saria's GMA GMA, and your parents and (g-parents) are so special to me. Karlie, you are a dream come true, YOU GO GIRL, show the the world what an SMA child can do!! Gosh, thank you guys for making my day!! !!! This is so exciting!! LOL what a silly GMA Saria Clark has. But then again, what would a GMA be without a SARIA??? HUGS and Eskimo Kisses Saria, GMA Sandy Loves you. OH how silly I sound, I am just so excited over this site of Kaelan and Karlie!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1 Sandy to saria clark and erica cox


Name:
The ONeills
Email:
caseyandcolinsmom@yahoo.com
Date:
January 13, 2005
Time:
11:58 AM

Comments

Yay!! So glad the Henry kids have a website! I could look at the pictures all day long--ALL the Henry kids are so pretty/handsome/good-looking/cute, etc.!! Hugs from Casey and Colin O'Neill


Name:
Kristy Henry
Email:
crosby4@adelphia.net
Date:
January 11, 2005
Time:
02:17 PM

Comments

HAPPY BIRTHDAY TO YOU! HAPPY BIRTHDAY TO YOU! HAPPY BIRTHDAY DEAR KAELAN! HAPPY BIRTHDAY TO YOU! Wow honey you are 3 years old! What a big boy you are becoming! Hope you enjoy your special day sweetie! We Love You!


Name:
Granny and Poppa
Email:
cchhenry@aol.com
Date:
December 21, 2004
Time:
09:25 PM

Comments

I loved checking out your website!! Can't wait for you guys to see it too! All our love. Granny & Poppa


Name:
Kristy Henry
Email:
crosby4@adelphia.net
Date:
December 21, 2004
Time:
07:04 PM

Comments

Hey guys it's auntie kristy. You have not seen this site yet because it is a surprise from me and uncle toby. I just got done viewing what laura has done so far and she is great. She deserves all the credit! Well I hope you will enjoy it as much as I know your WHOLE family will. We love you guys so much and can't wait to surprise your mommy and daddy!