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My
Ventilator - the LTV 950
This is my ventilator or
vent. It helps me breathe by giving me big breaths that I can't take
on my own. This vent stays at home.
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My
Heater for my Vent
This is my heater or
humidifier. It attaches to my vent and keeps the air moist and warm
when it goes into my lungs.
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My
Portable Ventilator
My portable vent is the
same as my home vent, except it has a bag so I can take it with me
wherever I go.
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My
Electric Suction Machine
This is my suction
machine. It helps me get the boogers out of my nose, since I can't
blow my nose and my lungs because I can't cough.
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My
Portable Suction Machine
This is the suction
machine that I can take with me. It has a battery inside it so I
don't have to be attached to the wall. It does the same job as my
electric suction, just when we are out and about.
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My Cough
Assist Machine
This is my Cough Assist
and does exactly what it says. It helps me cough. I don't have
strong muscles to cough so this machine simulates a cough by pushing
air into my lungs and pulling it back out to get the boogers out of
my lungs. With this and my suction machine I am able to stay
healthier.
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My Pulse
Oximeter
This is my oximeter or
pulse ox. The oximeter measures the amount of oxygen in my in my
blood and my heart rate. It is a little piece of tape that goes
around my toe and it doesn't hurt at all. It helps my family and
nurses know how I'm doing. If my oxygen is low (below 94), the big
green number on the left, we can use my other machines to get the
yuckies out. |
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My
Portable Pulse Oximeter
My portable pulse ox does
the same job as my regular pulse ox. The portable pulse ox goes with
me and runs on batteries.
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My
Nebulizer Machine
The nebulizer helps me
get medicine into my lungs which makes it easier for me to breathe. |
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My
Feeding Pump - the Kangaroo Joey
This is my feeding pump.
I can't eat by mouth so this feeds me through a tube in my tummy. I
get a special formula that will help me stay strong.
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Back Up
Battery & Charger
This battery keeps things
running in case of a power outage. |
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Portable
Battery
This battery runs my vent
when we are on the go. It's nice because it's small and doesn't way
very much. |
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My
Splints & Braces
(from top to bottom)
Hensinger neck support, back brace or TLSO, wrist splints, and AFOs
or foot splints. |
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My Hensinger Neck
Support
This supports my neck when I am sitting up, so that my head doesn't
fall over. I don't have head control to hold my head up, the collar
keeps my head up so I am able to see everything around me. |
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My Wrist
Splints
These keep my hands in,
what the therapists and Mommy call, a neutral position. I think that
means the position that is good for my hands to be in, meaning
straight. They keep my hands from turning in, so that one day I can
drive a power wheelchair. |
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TLSO or
Back Brace
This brace keeps my back
nice and straight. I like to sit up like a big boy and this keeps my
back straight so I can sit up. The hole on the right side is for my
feeding tube, so I can be fed when I'm sitting up. It has Spiderman
on it and I picked him out all by myself. |
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My AFOs
These are my AFOs (Ankle
Foot Orthotics). They help keep my feet nice and flat so that my
feet can go in shoes! I don't mind wearing them. They also have
Spiderman, to match my TLSO. |
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My
Tomato Seat
This is my special Tomato
seat. I don't know why they call it a tomato, it's not even red! It
supports me, along with my Hensinger and my TLSO, so that I am able
to sit up. |
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My
Trapeze
These are my arm and leg
slings. They help me move my arms and legs in ways that I can't with
out them. They take away gravity and I can move a lot more.
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My
High/Low Snug Seat Chair
This is my new seat. I
use it for playtime and sitting up nice & straight. It even says my
name on the tray! |
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My
Giraffe Stander
This is my stander. I use
this to help bone density, motility, and just to have a different
perspective in my world. |
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My Kid
Kart Express
It is a great stroller
and even has places for all of my machines. It DEFINITELY made my
traveling to school and doctors appointments. |