Name: Wendy Persinger CommentsHi, Ryan! I love your new website, and can't wait to see more pictures. I have a son who is 5 1/2 (I don't dare forget the 1/2) who loves drawing and garbage trucks. Harrison is a big brother to Autumn, who is almost 16 months old with SMA type II. Harrison loves his little sister, as you love your Jorie. Hopefully we'll be able to meet soon. Be good for your mommy and daddy! Love, Wendy, Brian, Harrison, and Autumn (SMA type II) http://www.caringbridge.org/visit/autumn Name: MJ CommentsHey Ryan: I can't wait to start working on your website. I will start working on it Tuesday!!! HUGS to you all Name: marion Clark CommentsYou a Great Inspiration to many! Stay healthy and be smart! You know some of my very close friends have SMA and our doing very well. They just got married to each other and have three cats ! Also I have a really really good friend named Johnny who has duchenes MD and he just had his 48th birthday! that's right 4-8 he's a great guy and his parents and the nurses do a great job taking care of him! he loves to write poetry and paint, he goes to bible study weekly and he even sings Kareoke!!! God bless all the angels in our lives! Thanks! Name: Christine CommentsHi Ryan My name is Christine i love your page my son is almost 3 years old and he have SMA type II. He always smile just like you. Have a great day!! Name: marshall Commentssorry to hear about what you are going through... keep your head strong cause your already a strong young man Name: Krystal Brown CommentsHi again Ryan...just checking to see if the message boards are working or not. Had a great week with you while Mom and Dad were on their trip. Glad you are feeling fine. Hopefully we'll get somewhere with that annoying headrest next week. We will keep trying.. Grandma Name: Krystal Brown CommentsHi Ryan, just testing to see if this message works. Grandma Name: Kelli and Camden CommentsHey Ryan, it's us again. Forgot to wish you "Happy 4th of July!!!!" in our last message. Take care, Kelli and Camden Name: Kelli and Camden CommentsHi Ryan, We are praying for you and thinking of you as you recover from surgery. Hang in there...I'm sure it's no fun, but at least the anticipation of the surgery and the actual surgery is all over with. Hope you get well soon! Love Kelli and Camden Name: Kristi Pendleton CommentsHi Ryan! I love your website! The monsters inc stars make everything sooo cool! Your pictures are so fun to look at. What an amazing life you have! There is so much to learn about SMA. You have such a nice family, you are so lucky. They are lucky to have you too! I am the mommy of your first two girlfriends! I was so happy to see that picture. I have the same picture at my house. Its in a frame and on my wall. I hope to see you soon! I will bring the girls for you to see again. Brittany is your age and lots of fun. I will talk to you later! Good night! Kristi Name: Kelli and Camden CommentsWe really enjoyed the new pages added to your website! Love the song, too! Take care and find comfort in knowing that we and several others are praying for you and your upcoming surgery. Love, Kelli and Camden Bobosky Name: Eva Gill (Hannah's Mom) CommentsHey Ryan, I just wanted to let you know that most of the class wanted to come to your carnival the other day, but nobody got the word out at school. I would have had the room mom or Mrs. Hildebrandt send it in an e-mail, but I did not get the particulars until late Friday myself. I am sure you would have had a lot more fun surrounded by your friends. I know for a fact they all miss you and wanted to see you. Be well and good luck with the surgery! Hannah's mom. Name: Christine Mitzel (aunt) CommentsHi Ryan, My mom told me about your web site. I am glad to see that you are doing well. You are just as cute as pie. I wish that I could have been around you during your life so far. I hope that your mom has told you about your other family. Would love to hear from all of you. Take care and god bless. Love, Christine Name: Brianna CommentsHeyy im Brianna and I was looking at your pictures and you are so cute and your little sister too well I just wanted to let you know that I hope you are fine and you sister too and i saved your pictures because I wanted to show some people that I am trying to get a job with I LOVE workin wit people like you because you guys are so cute and I love it. I kidda work with my aunt in Bristal and take care of older ladies that have a little bit of a probluem and thehy are so nice. well i have to go but write back to let me know if u got my message ok bii hope to hear from u soon ohh yeah by the way im 15 Name: Rich Clingman CommentsYo, Ryan! Your mom says you're not feeling so hot. What's up, boy? I'm praying God helps those doctors figure out things real quick! ... Hey, I'm glad you like "The Clearest Image of a Man." Aren't "perfect dads" great? Even when they're not quite perfect! (And perfect moms are real cool, too!) God Bless! Rich Clingman Name: Pam & Boyd Lyle CommentsHi Ryan, We just read your story & are so thankful that you live on our planet & that we will see an angel like you in heaven someday when we all get there. You are very brave & inspirational. We have a new grandson 3 months old named Aden. Like you, he is very happy. We pray for you, your family & us all. Name: mj CommentsHi my friend!! Did you know that <img src="http://www.mjthesmaqueen.com/snags/ItsSpring-jumpingFrog.gif">??? I hope that you had a very happy Easter! I got to go to Ohio and spend time with my family and friends. I put pictures up on my website so <a href="http://www3.caringbridge.org/ny/mjpurk/photo.htm"> check it out </a>, if you want to. I'm so glad that <img src="http://www.mjthesmaqueen.com/snags/srungturtle.gif"> Love and warm Spring hugs, <a href="http://www3.caringbridge.org/ny/mjpurk/"> MJ </a> Name: Jen Madden CommentsRyan, My name is Jen Madden and I live down the street from Charlie Sykora, a beautiful and lively little boy with SMA. His mom told me about you and your family. My family and I will be moving to your town in June and I would love to hear what you like most there. I have a 7 yr old son-Will, a 5 yr old son-Joe and a 4 yr old daughter-Lily. I would love for our families to visit when we get there in June. Have a great day! Jen Name: Charlie, Kim, Lily and John CommentsHey! You need to update some more photos :0) Hope you guys are feeling all better. We were worried about Jorie and didn't want Ryan to catch it too. Hugs - Charlie, Lily & Kim Name: Krystal CommentsHi Ryan....Happy Birthday to a fantastic nine year old! This is the first chance I've had to sit down and write you a birthday greeting after having spent your birthday out of town with your family at the Drs. appointment. Glad we all got to have the nice dinner at Olive Garden. You and Jorie can sure put away those cheese pizzas! Wasn't it fun to have Lop with us and to get to give her a tour of the hospital and see the sky bridge and get that funny, green, multi-legged toy that scared Jorie half to death? You are a good big brother, aren't you? Just think, you are almost finished with the 3rd grade and it seems like just yesterday, you were that tiny baby in Mommie's arms. We thank God for you and the blessing you have been to our family. Grandpa says so too. We love you, Grandma and Grandpa Name: MJ CommentsHi: I know that I am early, but I wanted to wish you and your family I hope you enjoy your Spring!! Love, MJ Name: MJ Comments<img src="http://www.mjthesmaqueen.com/polarbear_val.gif"> I hope you have a very happy Valentine's Day! Love, MJ Name: Jenna CommentsHi Ryan, My name is Jenna and I came across your website. You are a real fighter and inspiration. You are in my thoughts and prayers. Keep smiling! Jenna http://www.caringbridge.org/canada/jenna This is my site about me and my fight with a rare bone disease. Name: MJ CommentsHi !!!! <img src="http://www.mjthesmaqueen.com/image006.gif"> Mickey and I wanted to say HAPPY FEBRUARY!!!! I hope you are doing well today. Big hugs to you and your family! Love, <img src="http://www.mjthesmaqueen.com/MJButterfly.gif"> http://www.caringbridge.com/ny/mjpurk - My Journal http://www.our-sma-angels.com/Margaret/ - My Original Website http://www.mjthesmaqueen.com/ - My New Website Name: Scott Sheppard CommentsGreetings Ryan! I just wanted to let you know that I love the music choice of "You Are My Sunshine" on your "About Me" page. It really touched me when I heard it. The song was the only one that would calm my son Grant down when he was upset. He had SMA type I and is now an angel that is watching over all of us. Take care anh happy 2005! Scott Sheppard Name: MJ CommentsHi!!!! Sorry I haven't signed your guest book in awhile. I hope you are doing ok and are enjoying the winter so far. I have a new website! It is <a href="http://www.mjthesmaqueen.com/"> MJ - The SMA Queen</a>....If you want to check it out. If you don't see your website on my friends page (and would like to) e-mail me, and I will put you up ASAP. I hope you have a <img src="http://www.mjthesmaqueen.com/valmiscani.gif">! and remember, <img src="http://www.mjthesmaqueen.com/valani3.gif"> MJ Name: Jennifer Considine CommentsHello Ryan, Happy New Year. I really enjoyed reading your poems and looking at your pictures. It makes me miss your smiling face.I hope you are enjoying 3rd grade. Are you still at Highland? Phillip misses you, and all his other friends too. Keep in touch. Love, Jennifer Name: ian Commentshi Ryan my name is Ian I am 7 years old with SMA 2. I saw your sight and I like it. If you can will you email me someday. I would like a friend to talk to that is like me. Name: Vita Comments?Dear Ryan, Here we are in France, thinking of you, Jorie and your lovely Family. Have a lovely Christmas and we wish you all a superb, fun and healthy 2005! From Vita, Gloria and Michael, and our dachsie (saussage dog) Hapi ? Name: Lindsey Muszkiewicz CommentsRyan, I like your web site! I love the movies Toy Story, Monsters Inc., and Finding Nemo too! I am so happy you got out of the hospital in time for Thanksgiving. I hate the hospital. I hate the shots they give me there. Your wheelchair is so cool. Mine is purple. I hope to meet you someday soon. Sending you my prayers and love, Lindsey age 6 SMA II/III Name: Krystal Brown CommentsHi Ryan, Well, we just got you home from another hospitalization, the shortest one on record, only 2 nights!! We are so happy you were able to get over the congestion so quickly. Maybe someday those hospital people will even learn to start IVs! Do ya think? How many pokes was it? 5 tries in 4 hours and all for nothing! You managed to get well in spite of their "help". God is good! So many praying people supporting you through all your battles. We love you! Grandma and Grandpa Name: LaRee CommentsI work with disabled children a lot. Its wonderful to see how far he has come. You look like a darling family. Name: Great grandpa and ma Brown CommentsA great story of a courageous boy and his family. Brought back many memories for us. Name: Skyler McAdams CommentsHi Ryan!! I love your guestbook! Monster's Inc. is SO cool! Hope you are having fun and I hope to meet you and Jorie someday!! Love, Skyler Name: Patty Newkirk CommentsHi Ryan, I read your poems on your web site tonight. They were very nice. Your mom is a poet incase she didn't know it!! HA!HA! I hope school is going well for you this year. Jennifer is doing good. She is trying to get over a cold. How do you like Ivana by now? I bet you are extremely happy. Hobbie likes to play fetch with Jennifer.. Take care. Your friend Patty from team training. Name: Kristin Laulainen CommentsHi Ryan, Do you remember me? (Jack's mom)...How's Ivy? Kalia is settling in good here at our house and Jack is loving to have her here at home! I love your website and reading all about you. You are special boy with amazing talents. I feel privileged to be your friend. I'm looking forward to seeing you in October if you are coming with your mom & grandma to Santa Rosa. Give Ivy a hug from me, Kristin Name: Great Aunt Patti CommentsHey Ryan! I have finally figured out how to get onto the Internet, so am able to visit your web site. It is awesome! I loved looking at your photos. They reminded me of the early years of sma and how I was always so amazed what a happy little guy you were and are. You are a precious gift from God to our family and our lives are enriched because you are a significant part of it. You will always be my little hero because your life each day takes an extraordinay amount of courage and inner strength! I am so happy that you get to have a companion dog! I think it will be a great friend for you and that it will be able to help you in ways unimaginable! I love you! Aunt Patti Name: Great Aunt Patti CommentsHey Ryan! I have finally figured out how to get on the internet with my new computer, so now I am able to visit your web site. It is awesome! I loved looking at your photos. They reminded me of those early days of sma and how I was always amazed at what a happy little guy you were and still are. You will always be my little hero, because everyday of your life takes an extra amount of courage and inner strength. You are a precious gift from God to our family and our lives are enriched because you are a significant part of it. I am so excited that you will be getting a companion dog. I think it will be a great friend to you and will be able to help you in ways unimaginable. I love you! Aunt Patti Name: Krystal CommentsHi Ryan: We just got back from Chicago and the fsma conference. You had so much fun playing video games with the other sma kids. I know you really enjoyed meeting Erinne, Annah, Bernie, Brett, Joshua, Jensen and her brothers, and a bunch of other awesome friends. We found out just a couple weeks ago now that you are selected for a class in August to travel to California and attend a 2 week session, training to receive a Canine Companion. There are several obstacles to overcome for us to be able to go down there for 2 weeks, including finding a good babysitter for baby sister, keeping all of us healthy, and just the 8 hour drive to get there. We are hoping it all works out, as we feel you would benefit so much from such a friend!! It is exciting to think about. We enjoyed our trip to the beach and the aquarium and are so glad you got to come with us after the conference. Your favorite part was just to lie down in the sand....(well, besides the homemade icecream shop). Grandpa and I love you so much! Love, Grandma Name: Joy CommentsHI Ryan..I love your website. It is cowabunga!!!!You and your sister are sooo cute. I especially like the characters on your website. My favorite characters are the turtles. I guess because I like pizza. Do you ?? And of course ice-cream for dessert. I hope you have a great summer. Take care of yourself and your family. hugs and kisses Name: JIM CommentsJUST CHECKING OUT THE WEBSITE. I AM THE UNCLE OF THE LATE CONNER RIGGS. YOU HAVE TWO BEAUTIFUL CHILDREN AND I'M SURE RYAN IS A GREAT BIG BROTHER. GOD BLESS YOUR FAMILY! Name: Mark & Lois Anderson CommentsHi Ryan, We keep praying for your health and your dad's. Let us know whether or not you are having surgery. It's great to see your site and photos. We'd like to see a recent photo of you. Keep up the wheelchair dancing. Someday you will dance at your sister's wedding. Love from half a world away, Lois & Mark Name: Gloria Hernandez CommentsHi Ryan you are so cute and you are so lucky to have a family that care about you , with love and faith you will be fighting with sma too.I had a baby with sma but she became my angel 1year and 2 months her name is Aimee Hernandez hope you see her web-site is in this web-site too! keep it up !!!!! Name: Krystal CommentsHi Ryan: Just wanted to let you know how proud I am of you. You are almost finished with 2nd grade already. You have become an expert reader and are learning new math games/skills every day. I can't believe you are learning "borrowing and carrying" already. The "challenge" questions Miss Walsh has been sending home with you are lots of fun too. I hope you will continue to learn and love learning as much as you do now. I will remember why the animals in Australia are unique. Do You? And I am glad to finally know the meaning of "ungulate"...I guess I'm just glad to know ungulate is even a word! Love you forever...Grandma Name: Kristin Webb and Cole CommentsHi Ryan. We are just looking at your website (again) Mr. cole sends hi fives and lots of kisses to your sister! Kristin and cole Name: Brett Wilson CommentsRyan, I love your website. We like the same things, the Ninja Turtles are one of my favorites right now. I loved looking at your website and so did my mommy. She said it had very good descriptions of all of your (and mine) machines. Coawbunga! Brett Name: Stacy & Morgan CommentsRyan, Your website looks wonderful! You are such a cute boy, and you look like a great big brother! Name: Lorraine & Jimmy CommentsRyan, We love your new website. How very cool! High-fives from Jimmy! Name: Bill Brown CommentsHey Ryan, I just discovered your web site. It's pretty cool and lots of people I know have signed in. Anyway, just wanted to say I'm proud to be your grandpa. And one of these days your going to start winning all the chess games, and I won't have a chance. You're getting to be so smart. Love you a whole bunch you sly lad. Grandpa Name: Annette aka Katelyn's Nana CommentsHi Ryan, I love your web site. I really like the Nemo part. That is Katelyn's favorite movie she could watch it for hours. Take good care of Jorie and stay well. Germ Free Hugs and Kisses, Annette Name: John and Jennie CommentsHI RYAN- YOU AND YOUR MOM DID SUCH A GREAT JOB WITH THIS WEBSITE, WE ESPECIALLY LIKE THE LITTLE TRAIN THAT RUNS AROUND. YOUR POEMS ARE WONDERFUL, WE DIDN'T KNOW THAT YOU WROTE POETRY. I HOPE THAT YOU CONTINUE WITH THAT. HOPE TO SEE YOU REALLY SOON. LOVE, JOHN AND JENNIE Name: Kelli and Camden CommentsHey Ryan, We like your new website! It's really cool. We also love all the pictures of you and Jorie your mom sends us. Jorie is so lucky to have you for a big brother. Hope to see you again soon. -Kelli and Camden Name: Aunt Esther Nold CommentsHi Ryan, This is your aunt Ester again. I just read your poems you have put on your web site and I think they are wonderful. Have sweet dreams, I love you and your family. Aunt Esther. Name: Aunt Esther Nold CommentsDear Ryan, I am your grandma Miriam Brown's sister. I live in Sandy Oregon. I have prayed for you many times. I have been printing pictures of you and your sister Jorie and sending the pictures to your grandma and grandpa Brown. I think you are a very fine boy. I am so glad you have a web stite so I can know how you and your family are doing. I have never met you, but I love you and your family. May the Lord bless you. Love ya, Aunt Esther. Name: Christie Bruce CommentsRyan, It is a privilege to know you and your family. We have a great time when our family hangs out with your family. I always like to hear your proud parents brag about your accomplishments and interests. :-) It has been really special to know you from the time you were 6 months old, and to see how you're growing up! You're an awesome kid! I like your poetry on your website ... Jesus is who we all need to lean on. Thanks for the great poem reminding of that! Name: Stephanie Nellis Commentsryan, your story is just like my daughters. She has type 2 and lives with all the same machines that you do. She is getting a gtube soon and we hope that will end her hospital stays too. Love your website the pictures are great. write to us sometime http://www.oursmaangels.com/makalias_memories Name: Krystal Brown CommentsHI RYAN....I AM SO THANKFUL YOU GOT TO COME HOME FROM THE HOSPITAL AND YOU ARE FEELING A LITTLE BETTER. YOU KNOW HOW MANY PEOPLE LOVE YOU AND PRAY FOR YOU ALL THE TIME, BUT ESPECIALLY WHEN YOU GET SICK. YOU ARE MY BRAVE BOY AND I AM SO LUCKY TO GET TO BE YOUR GRANDMA! I HOPE YOU HAVE FUN READING YOUR E-MAILS WHEN YOU FEEL WELL ENOUGH. LOVE YOU FOREVER, GRANDMA Name: Connie Kyker CommentsDear Ryan, What a great web site! We are praying for you every day and know you will be well again soon. Your cousins (Stephen, Caeli, Tianna and Karissa) enjoyed seeing your pictures and getting to know you better through your web site. Connie Name: Evvie Moore CommentsMarch 28, 2004 Hi, Ryan, I am a good friend of your great grandma and grandpa Brown. I am praying for you since they told me a few days ago how sick you are. I love your web page. Your mommy and daddy love you so much, and I am so glad you are getting better. I love your pictures, and the poems and stories about you on this page. I hope you are well soon. This is not the way any kid would want to spend his Spring Break. I will keep praying you will be better soon, and home again with your family. Love, "Grandma Evvie". (That is what all the kids at Oak Grove church call me, so I hope that is okay with you too. Name: Daddy CommentsHey Buddy. Hope you feel better soon. I love you very much. Love, Daddy Name:
grandma, grandpa Brown CommentsRyan's site is very impressive. We are touched very deeply. You know how much we love our little great grandson who at the moment is very sick again. We are praying faithfully for all of you. Name: Mommy CommentsWell, I am happy to be the first to write in your guestbook. Right now, you are very sick and in the hospital. Please get well soon buddy. This is such a lousy way to spend your spring break. I'm so sorry. You are such a fighter Ryan. I am so proud of you. You are my inspiration Ryan. I love you!!
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